Registered charity (CIO) · Buckinghamshire
International Cardiomyopathy Network
International Cardiomyopathy Network is a registered charity (number 1184472) based in Buckinghamshire, governed by 10 trustees and chaired by Prof. Perry Mark Elliott since 2019. Latest income £40k (2024). Source: Charity Commission register, updated 4th October 2026.
Also known as Icon (Charity Commission)
- 10 trustees
- Income £40k (2024)
Official record Charity Commission · updated 4th October 2026 · Sources
Network
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Who leads it
- Prof. Perry Mark ElliottChair · since 2019
- Dr Aristides AnastasakisTrustee · since 2019
- Dr Juan Pablo KaskiTrustee · since 2019
- Dr Juan Ramon Gimeno BlanesTrustee · since 2019
- Dr Lucie CarrierTrustee · since 2019
- Prof. Ales LinhartTrustee · since 2019
- Prof. Eloisa ArbustiniTrustee · since 2019
- Prof. Guiseppe LimongelliTrustee · since 2024
- Prof. Jolanda Van Der VeldenTrustee · since 2021
- Professor Iacopo OlivottoTrustee · since 2019
Current trustees as listed by the Charity Commission, which does not publish previous trustees.
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Similar charities are matched by type of organisation or purpose and listed by latest income; shared trustees are formal board links. Neither is proof the organisations work together.
About
- What it does
- The Advancement Of Health Or Saving Of Lives
- Where
- Throughout England And Wales, France, Greece, Germany and more
- Registered
- 2019
Income and spending
- YearIncomeSpending
- 2024£40k£26k
- 2023£46k£105k
- 2022£120k£42k
Earlier years
- 2021£0£0
- 2020£0£0
Income trend, 2020 to 2024.
Charitable objects
(1) TO ADVANCE THE EDUCATION OF HEALTHCARE PROFESSIONAL ON THE SUBJECT OF CARDIOMYOPATHY AND RELATED DISEASES OF THE HEART MUSCLE THROUGH THE PROVISION OF EDUCATIONAL LEARNING OPPORTUNITIES AND OTHER METHODS THAT TRUSTEES SEE FIT SO AS TO IMPROVE THE DETECTION AND TREATMENT OF SUCH DISEASES FOR THE PUBLIC BENEFIT.(2) TO IMPROVE THE HEALTH OF PEOPLE AFFECTED BY CARDIOMYOPATHY AND RELATED DISEASES OF THE HEART MUSCLE THROUGH THE PROMOTION AND FACILITATION OF RESEARCH FOR THE PUBLIC BENEFIT IN ALL ASPECTS OF CARDIOMYOPATHY AND RELATED DISEASES OF THE HEART MUSCLE BY PROVIDING NETWORKING OPPORTUNITIES FOR RESEARCHERS, SUPPORT AND ADVICE TO RESEARCHERS AND OTHER MEANS TRUSTEES SEE FIT.(3) TO ADVANCE THE EDUCATION OF HEALTHCARE PROFESSIONALS WORLDWIDE THROUGH THE DISSEMINATION OF THE RESULTS OF RESEARCH INTO CARDIOMYOPATHY AND RELATED DISEASES OF THE HEART MUSCLE.(4) TO IMPROVE THE HEALTH OF PEOPLE AFFECTED BY CARDIOMYOPATHY AND DISEASES OF THE HEART MUSCLE WORLDWIDE THROUGH THE CREATION, MONITORING AND DEVELOPMENT OF RELEVANT GUIDANCE ON THE TREATMENT OF SUCH DISEASES.(5) TO IMPROVE THE HEALTH OF PEOPLE AFFECTED BY CARDIOMYOPATHY WORLDWIDE THROUGH COLLABORATION WITH RELEVANT STAKEHOLDERS IN ADVOCATING FOR IMPROVE ACCESS TO TREATMENT FOR PEOPLE AFFECTED BY SUCH DISEASES.(6) TO INCREASE AWARENESS OF CARDIOMYOPATHY AND RELATED DISORDERS AMONG THE GENERAL PUBLIC AND THE SUPPORT AND INFORMATION AVAILABLE TO PEOPLE WITH CARDIOMYOPATHY AND RELATED CONDITIONS.
Board analysis
Board DNA
How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.
10 trustees on the board
- Prof. Perry Mark Elliott Chair since 2019
- Dr Aristides Anastasakis since 2019
- Dr Juan Pablo Kaski since 2019
- Dr Juan Ramon Gimeno Blanes since 2019
- Dr Lucie Carrier since 2019
- Prof. Ales Linhart since 2019
- Prof. Eloisa Arbustini since 2019
- Prof. Guiseppe Limongelli since 2024
- Prof. Jolanda Van Der Velden since 2021
- Professor Iacopo Olivotto since 2019
Trustees past 6 years
- Prof. Perry Mark Elliott Chair since 2019
- Dr Aristides Anastasakis since 2019
- Dr Juan Pablo Kaski since 2019
- Dr Juan Ramon Gimeno Blanes since 2019
- Dr Lucie Carrier since 2019
- Prof. Ales Linhart since 2019
- Prof. Eloisa Arbustini since 2019
- Professor Iacopo Olivotto since 2019
First-time vs portfolio trustees
First-time (10)
- Prof. Perry Mark Elliott Chair since 2019
- Dr Aristides Anastasakis since 2019
- Dr Juan Pablo Kaski since 2019
- Dr Juan Ramon Gimeno Blanes since 2019
- Dr Lucie Carrier since 2019
- Prof. Ales Linhart since 2019
- Prof. Eloisa Arbustini since 2019
- Prof. Guiseppe Limongelli since 2024
- Prof. Jolanda Van Der Velden since 2021
- Professor Iacopo Olivotto since 2019
Sector coverage iSector coverageThe charitable fields this board's trustees govern in elsewhere, by Charity Commission classification. Excludes this charity.
Gaps to watch
- No commercial or business experience on the board
- Several long-serving trustees could step down together
- Narrow spread of causes across the board
Succession forecast iSuccession forecastThe number of board seats likely to open in the next twelve months - summed across the board from each dated trustee’s tenure - and the profile worth recruiting next. From the filed record, deterministic.
Health of the organisation facts side by side - the conclusion is yours
Sources
Official record from the Charity Commission register for England and Wales. Governance Register calculates the connections.
Record details
- Registered charity number
- 1184472
- Status
- Registered
- Governing document
- CIO - FOUNDATION Registered 18 Jul 2019
- Contact on the register
- 01494791224 · joel@cardiomyopathy-icon.org
- Edition
- Register edition compiled 4th October 2026
- Labels
- Official record from the register · Calculated derived by Governance Register. Anything added by an organisation or person is labelled as provided by them.
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