The Governance RegisterEdition 2026 · Compiled 12th July 2026

Down Syndrome UK

Registered charity 1184564 CIO Registered since 2019

Operates: Throughout England And Wales, Scotland, Northern Ireland

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Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.

7
trustees on the board
2.7y median 3y
average tenure
7y
longest tenure
1
trustees past 6 years
2.8y
average years in governance
6 vs 1 portfolio
first-time trustees
0
company-linked trustees

Sector coverage

Disability 7Education/training 7Human Rights/religious Or Racial Harmony/equality Or Diversity 7

Gaps to watch

  • No commercial or business experience on the board
  • Mostly recent joiners - limited long-term continuity

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Related organisations

Boards that overlap with this one through shared trustees, or govern in the same field. Deterministic, from public records.

Contact

Websitewww.downsyndromeuk.co.uk
Emailinfo@downsyndromeuk.co.uk
Phone03301112121
AddressDown Syndrome UK, 483 Green Lanes, LONDON, N13 4BS

Finances

£454,578 latest income

YearIncomeSpending
2021£191,972£93,079
2022£245,685£253,097
2023£317,265£321,049
2024£378,974£361,055
2025£454,578£426,852

What it does

What

Education/trainingDisabilityHuman Rights/religious Or Racial Harmony/equality Or Diversity

Who

Children/young PeoplePeople With Disabilities

How

Provides Advocacy/advice/information

Charitable objects

TO RELIEF OF THOSE IN NEED BY REASON OF PARENTS AND FAMILIES OF CHILDREN AND YOUNG PEOPLE WITH DOWN SYNDROME IN THE UK THROUGH THE PROVISION OF A FORUM THAT PROVIDES ACCURATE UP TO DATE INFORMATION ON THE REALITIES OF LIVING WITH DOWN SYNDROME AND IS A CENTRAL HUB OF INFORMATION AND RESOURCES FOR THE CONDITION

Governing document: CIO - FOUNDATION Registered 24 Jul 2019

Trustees (7)

7trustees
0aged 70+

Connected charities (2)

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