Registered charity (CIO) · London
Down Syndrome UK
- 7 trustees
- Income £455k (2025)
Official record Charity Commission · updated 20th September 2026 · Sources
Who leads it
Current trustees as listed by the Charity Commission, which does not publish previous trustees.
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About
- What it does
- Education/training, Disability, Human Rights/religious Or Racial Harmony/equality Or Diversity
- Where
- Throughout England And Wales, Scotland, Northern Ireland
- Website
- www.downsyndromeuk.co.uk (opens in a new tab)
- Registered
- 2019
Income and spending
- YearIncomeSpending
- 2025£455k£427k
- 2024£379k£361k
- 2023£317k£321k
Earlier years
- 2022£246k£253k
- 2021£192k£93k
Charitable objects
TO RELIEF OF THOSE IN NEED BY REASON OF PARENTS AND FAMILIES OF CHILDREN AND YOUNG PEOPLE WITH DOWN SYNDROME IN THE UK THROUGH THE PROVISION OF A FORUM THAT PROVIDES ACCURATE UP TO DATE INFORMATION ON THE REALITIES OF LIVING WITH DOWN SYNDROME AND IS A CENTRAL HUB OF INFORMATION AND RESOURCES FOR THE CONDITION
Board analysis for researchers
Board DNA
How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.
7 trustees on the board
- Casimir Stephen Bower Knight Chair since 2022
- Caroline Warren since 2019
- David Leemon since 2026
- Dr Ayesha Mahmud since 2023
- James Fox since 2024
- Rebecca Kate Louise Wilson since 2026
- Richard Francis Baker since 2023
Trustees past 6 years
- Caroline Warren since 2019
First-time vs portfolio trustees
First-time (6)
- Casimir Stephen Bower Knight Chair since 2022
- David Leemon since 2026
- Dr Ayesha Mahmud since 2023
- James Fox since 2024
- Rebecca Kate Louise Wilson since 2026
- Richard Francis Baker since 2023
Portfolio (1)
- Caroline Warren since 2019
Sector coverage iSector coverageThe charitable fields this board's trustees govern in elsewhere, by Charity Commission classification. Excludes this charity.
Gaps to watch
- No commercial or business experience on the board
Succession forecast iSuccession forecastThe number of board seats likely to open in the next twelve months - summed across the board from each dated trustee’s tenure - and the profile worth recruiting next. From the filed record, deterministic.
Health of the organisation facts side by side - the conclusion is yours
Sources
Official record from the Charity Commission register for England and Wales. Governance Register calculates the connections.
Record details
- Registered charity number
- 1184564
- Status
- Registered
- Governing document
- CIO - FOUNDATION Registered 24 Jul 2019
- Contact on the register
- 03301112121 · info@downsyndromeuk.co.uk
- Edition
- Register edition compiled 20th September 2026
- Labels
- Official record from the register · Calculated derived by Governance Register. Anything added by an organisation or person is labelled as provided by them.
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