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Registered charity (CIO) · Wiltshire

The Smith-Magenis Syndrome (SMS) Foundation UK CIO

  • 10 trustees
  • Income £191k (2025)
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Official record Charity Commission · updated 27th September 2026 · Sources

Network

The large node is The Smith-Magenis Syndrome (SMS) Foundation UK CIO. Red nodes are organisations, white nodes are people. Sign in free to explore further.

Who leads it

Current trustees as listed by the Charity Commission, which does not publish previous trustees.

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About

What it does
General Charitable Purposes, The Advancement Of Health Or Saving Of Lives, Disability
Where
Throughout England And Wales, Scotland, Northern Ireland
Website
www.smith-magenis.org (opens in a new tab)
Registered
2019

Income and spending

  • YearIncomeSpending
  • 2025£191k£193k
  • 2024£82k£85k
  • 2023£83k£90k
Earlier years
  • 2022£106k£135k
  • 2021£78k£98k

Income trend, 2021 to 2025.

Charitable objects

THE OBJECTS OF THE CIO ARE:A) TO PRESERVE AND PROTECT THE HEALTH AND PROMOTE THE RELIEF OF PERSONS AFFECTED BY SMITH-MAGENIS SYNDROME AND ANY ASSOCIATED CONDITION,B) TO ADVANCE THE EDUCATION OF THE MEDICAL PROFESSION AND THE GENERAL PUBLIC ON THE SUBJECT OF SMITH-MAGENIS SYNDROME AND ITS IMPLICATIONS FOR THE FAMILY,C) TO ADVANCE PUBLIC EDUCATION BY PROMOTING RESEARCH INTO THE MANAGEMENT OF SMITH-MAGENIS SYNDROME AND TO PUBLISH USEFUL RESULTS THEREOF AND TO SUPPORT ORGANISATIONS PROMOTING RESEARCH INTO SMITH-MAGENIS SYNDROME.

Grants received

4 grants · £158,775 total

360Giving data, published by funders. Coverage only includes funders who publish their grants to 360Giving, so these figures are a floor, not a complete picture.

Top funders

  • The National Lottery Community Fund · £149,338 (3 grants)
  • Department for Digital, Culture, Media & Sport · £9,437

Most recent

  • The National Lottery Community Fund £132,4712024-10-01
  • The National Lottery Community Fund £8,9552023-05-23
  • Department for Digital, Culture, Media & Sport £9,4372020-09-11
  • The National Lottery Community Fund £7,9122020-04-15
Board analysis

Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.

10 trustees on the board

3.3y median 2y
average tenure
7y
longest tenure

Trustees past 6 years

5.6y
average years in governance

First-time vs portfolio trustees

First-time (10)

1
company-linked trustees

Sector coverage iSector coverageThe charitable fields this board's trustees govern in elsewhere, by Charity Commission classification. Excludes this charity.

Disability 10General Charitable Purposes 10The Advancement Of Health Or Saving Of Lives 10

Succession forecast iSuccession forecastThe number of board seats likely to open in the next twelve months - summed across the board from each dated trustee’s tenure - and the profile worth recruiting next. From the filed record, deterministic.

🔒 Succession forecast is a Pro feature - the board seats likely to open in the next year and the ideal next trustee. Explore Pro →

Health of the organisation facts side by side - the conclusion is yours

Income v spending, filed accountsiIncome v spendingTotal gross income and expenditure from filed annual returns, Charity Commission, last 5 years.
2020
2021
2022
2023
2024
incomespending£82k latest income · spending exceeded income in 2023 and 2024

Sources

Official record from the Charity Commission register for England and Wales. Governance Register calculates the connections.

Record details
Registered charity number
1186647
Status
Registered
Governing document
CIO - FOUNDATION Registered 28 Nov 2019 as amended on 22 Feb 2021
Contact on the register
03001010034 · contact@smith-magenis.co.uk
Edition
Register edition compiled 27th September 2026
Labels
Official record from the register · Calculated derived by Governance Register. Anything added by an organisation or person is labelled as provided by them.

Contains public sector information licensed under the Open Government Licence v3.0. Report an issue · How we handle data