The Smith-Magenis Syndrome (SMS) Foundation UK CIO

Registered charity 1186647 CIO Registered since 2019

Operates: Throughout England And Wales, Scotland, Northern Ireland

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Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.

trustees on the board

3.3y median 2y

average tenure

longest tenure

trustees past 6 years

5.4y

average years in governance

10 vs 0 portfolio

first-time trustees

company-linked trustees

Sector coverage

Disability 10General Charitable Purposes 10The Advancement Of Health Or Saving Of Lives 10

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Boards that overlap with this one through shared trustees, or govern in the same field. Deterministic, from public records.

Contact

Website	www.smith-magenis.org
Email	contact@smith-magenis.co.uk
Phone	03001010034
Address	61 High Street, PEWSEY, Wiltshire, SN9 5AF

Finances

£81,579 latest income

Year	Income	Spending
2020	£13,388	£7,696
2021	£78,468	£98,206
2022	£105,691	£135,109
2023	£82,983	£89,727
2024	£81,579	£84,648

What it does

What

General Charitable PurposesThe Advancement Of Health Or Saving Of LivesDisability

Who

People With Disabilities

How

Provides ServicesProvides Advocacy/advice/informationSponsors Or Undertakes Research

Charitable objects

THE OBJECTS OF THE CIO ARE:A) TO PRESERVE AND PROTECT THE HEALTH AND PROMOTE THE RELIEF OF PERSONS AFFECTED BY SMITH-MAGENIS SYNDROME AND ANY ASSOCIATED CONDITION,B) TO ADVANCE THE EDUCATION OF THE MEDICAL PROFESSION AND THE GENERAL PUBLIC ON THE SUBJECT OF SMITH-MAGENIS SYNDROME AND ITS IMPLICATIONS FOR THE FAMILY,C) TO ADVANCE PUBLIC EDUCATION BY PROMOTING RESEARCH INTO THE MANAGEMENT OF SMITH-MAGENIS SYNDROME AND TO PUBLISH USEFUL RESULTS THEREOF AND TO SUPPORT ORGANISATIONS PROMOTING RESEARCH INTO SMITH-MAGENIS SYNDROME.

Governing document: CIO - FOUNDATION Registered 28 Nov 2019 as amended on 22 Feb 2021

Trustees (10)

10trustees

79median age

1aged 70+

Hazel Wotherspoon Chair since 2019
Alistair Hudson since 2025
Alvar de Wolff since 2025
Andrew Bird since 2025
Emma Riddell since 2019
Jacqueline Jenkinsage 79 since 2023
Jayne Marie Dainty since 2022
Laurie Grainger since 2025
Michael Pearson since 2019
William Stevenson since 2025

Connected charities (0)

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