Cdls - Hope for Hasti
Registered charity 1188769 CIO Registered since 2020
Operates: Throughout England And Wales
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Commercial experience
Gaps to watch
- Several long-serving trustees could step down together
- Narrow spread of causes across the board
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- Israel Norman Smith Charitable Trust Similar size; both Health
Boards that overlap with this one through shared trustees, or govern in the same field. Deterministic, from public records.
Contact
| Website | www.hopeforhasti.org |
| hello@hopeforhasti.org | |
| Phone | 07920162569 |
| Address | 7 Bucks Close, WEST BYFLEET, Surrey, KT14 6RU |
Finances
£41,673 latest income
| Year | Income | Spending |
|---|---|---|
| 2021 | £897,100 | £29,386 |
| 2022 | £269,682 | £108,339 |
| 2023 | £32,165 | £23,233 |
| 2024 | £67,677 | £25,446 |
| 2025 | £41,673 | £37,967 |
What it does
What
General Charitable PurposesThe Advancement Of Health Or Saving Of LivesWho
Other Defined GroupsHow
Sponsors Or Undertakes ResearchCharitable objects
THE OBJECTS OF THE CIO IS:FOR THE PUBLIC BENEFIT, THE RELIEF OF SICKNESS AND THE PRESERVATION AND PROTECTION OF GOOD HEALTH AMONG PEOPLE SUFFERING FROM CORNELIA DE LANGE SYNDROME (CDLS) IN PARTICULAR BY: (1) PROVIDING GRANTS OF FINANCIAL ASSISTANCE TO ORGANISATIONS AND INDIVIDUALS UNDERTAKING RESEARCH INTO CORNELIA DE LANGE SYNDROME (CDLS) ANYWHERE IN THE WORLD, THE USEFUL RESULTS OF WHICH WILL BE DISSEMINATED FOR THE PUBLIC BENEFIT.(2) ESTABLISHING AND OPERATING A PATIENT REGISTRY FOR PERSONS SUFFERING FROM CORNELIA DE LANGE SYNDROME (CDLS) ANYWHERE IN THE WORLD AS A MEANS TO SUPPORT CLINICAL TRIALS, STUDIES AND RESEARCH INTO THE CONDITION.
Governing document: CIO - FOUNDATION Registered 25 Mar 2020
Trustees (5)
- Christopher Brannigan Chair since 2020
- David Rutherford Playerage 59 since 2020
- Hengameh Delfaninejad since 2020
- Keith Goddard since 2020
- Sebastian Pearce since 2020
Connected charities (0)
No charities share a trustee (from current data).
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