Registered charity (CIO) · Hertfordshire
Osteogenesis Imperfecta Foundation Network
- 4 trustees
- Income £8k (2025)
Official record Charity Commission · updated 4th October 2026 · Sources
Network
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Who leads it
Current trustees as listed by the Charity Commission, which does not publish previous trustees.
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About
- What it does
- General Charitable Purposes, Education/training, The Advancement Of Health Or Saving Of Lives, Disability and 1 more
- Where
- Throughout England And Wales, Nigeria, Ghana, Kenya and more
- Website
- www.oifn.org (opens in a new tab)
- Registered
- 2020
Income and spending
- YearIncomeSpending
- 2025£8k£8k
- 2024£3k£3k
- 2023£12k£11k
Earlier years
- 2022£1k£688
- 2021£243£115
Income trend, 2021 to 2025.
Income source mix, 2024: Government grants 100%. From the charity's annual return.
Charitable objects
1)THE RELIEF OF POVERTY FOR THE PUBLIC BENEFIT IN ANY PART OF THE WORLD THROUGH THE PROVISION OF ADVICE, SUPPORT, GRANTS, EQUIPMENT, TREATMENTS AND CARE TO THOSE THAT SUFFER FROM OSTEOGENESIS IMPERFECTA; AND2)TO PRESERVE AND PROTECT GOOD HEALTH FOR THE PUBLIC BENEFIT BY PROMOTING, MAINTAINING, IMPROVING AND ADVANCING RESEARCH INTO THE NATURE, CAUSES, DIAGNOSIS, PREVENTION, TREATMENT AND CURE OF OSTEOGENESIS AND TO EDUCATE THE PUBLIC IN ANY PART OF THE WORLD CONCERNING THE NATURE, CAUSES AND EFFECT OF OSTEOGENESIS IMPERFECTA BY PROMOTING, RAISING AWARENESS AND PROVIDING INFORMATION ABOUT IT TO BOTH THE MEDICAL COMMUNITY AND GENERAL POPULATION.
Grants received
1 grant · £9,991 total360Giving data, published by funders. Coverage only includes funders who publish their grants to 360Giving, so these figures are a floor, not a complete picture.
Top funders
- The National Lottery Community Fund · £9,991
Most recent
- The National Lottery Community Fund
Board analysis
Board DNA
How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.
4 trustees on the board
- Tarela Aghanti Chair since 2019
- Caroline Harrigan since 2019
- Louisiana Oluwabukunola Adeleke-Ewenla since 2026
- Maureen Ebiere Whitehead since 2019
Trustees past 6 years
- Tarela Aghanti Chair since 2019
- Caroline Harrigan since 2019
- Maureen Ebiere Whitehead since 2019
First-time vs portfolio trustees
First-time (4)
- Tarela Aghanti Chair since 2019
- Caroline Harrigan since 2019
- Louisiana Oluwabukunola Adeleke-Ewenla since 2026
- Maureen Ebiere Whitehead since 2019
Sector coverage iSector coverageThe charitable fields this board's trustees govern in elsewhere, by Charity Commission classification. Excludes this charity.
Gaps to watch
- No commercial or business experience on the board
- Several long-serving trustees could step down together
Succession forecast iSuccession forecastThe number of board seats likely to open in the next twelve months - summed across the board from each dated trustee’s tenure - and the profile worth recruiting next. From the filed record, deterministic.
Health of the organisation facts side by side - the conclusion is yours
Sources
Official record from the Charity Commission register for England and Wales. Governance Register calculates the connections.
Record details
- Registered charity number
- 1190022
- Status
- Registered
- Governing document
- CIO - FOUNDATION Registered 19 Jun 2020
- Contact on the register
- 07868547673 · oifnett@gmail.com
- Edition
- Register edition compiled 4th October 2026
- Labels
- Official record from the register · Calculated derived by Governance Register. Anything added by an organisation or person is labelled as provided by them.
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