The National Wiedemann-Steiner Syndrome Warriors (Nwssw)

Registered charity 1191194 CIO Registered since 2020

Operates: Throughout England

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Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.

trustees on the board

5y median 5.5y

average tenure

longest tenure

trustees past 6 years

4.8y

average years in governance

4 vs 0 portfolio

first-time trustees

company-linked trustees

Sector coverage

Disability 4Education/training 4General Charitable Purposes 4

Gaps to watch

No commercial or business experience on the board
Several long-serving trustees could step down together

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Related organisations

The Babington Charity Similar size; both Disability
North Warwickshire & Coventry Dyslexia Association Similar size; both Disability
Special Kids in the UK Similar size; both Disability
The Lary Project Similar size; both Disability
Fiona Foundation for Kids Similar size; both Disability
Mandala CIO Similar size; both Disability

Boards that overlap with this one through shared trustees, or govern in the same field. Deterministic, from public records.

Contact

Email	alisonsmith0971@gmail.com
Phone	07557052670
Address	37 Palesides Avenue, OSSETT, West Yorkshire, WF5 9NL

Finances

£502 latest income

Year	Income	Spending
2021	£5,043	£776
2022	£17,732	£3,210
2023	£8,665	£5,880
2024	£5,488	£6,667
2025	£502	£972

What it does

What

General Charitable PurposesEducation/trainingDisability

Who

Children/young PeoplePeople With Disabilities

How

Provides ServicesProvides Advocacy/advice/informationOther Charitable Activities

Charitable objects

TO RELIEVE THE NEEDS OF PEOPLE WITH WIEDEMANN-STEINER SYNDROME, THEIR PARENTS AND CARERS IN ANY PART OF THE WORLD IN PARTICULAR BUT NOT EXCLUSIVELY BY PROVIDING SUPPORT, ADVICE, TRAINING AND RECREATIONAL ACTIVITIES, WITH A VIEW TO CREATING AND DEVELOPING CONDITIONS WHICH WILL ENABLE PEOPLE WITH WIEDEMANN-STEINER SYNDROME TO ATTAIN THEIR FULL POTENTIAL

Governing document: CIO - FOUNDATION Registered 08 Sep 2020

Trustees (4)

4trustees

0aged 70+

Alison Jane Smith Chair since 2020
Dawn Lisa Howard since 2021
Joanne Elizabeth Armitage since 2020
Kim Purnell since 2023

Connected charities (0)

No charities share a trustee (from current data).

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