Registered charity (CIO) · West Yorkshire
The National Wiedemann-Steiner Syndrome Warriors (Nwssw)
The National Wiedemann-Steiner Syndrome Warriors (Nwssw) is a registered charity (number 1191194) based in West Yorkshire, governed by 4 trustees and chaired by Alison Jane Smith since 2020. Latest income £502 (2025). Source: Charity Commission register, updated 4th October 2026.
- 4 trustees
- Income £502 (2025)
Official record Charity Commission · updated 4th October 2026 · Sources
Network
The large node is The National Wiedemann-Steiner Syndrome Warriors (Nwssw). Red nodes are organisations, white nodes are people. Sign in free to explore further.
Who leads it
Current trustees as listed by the Charity Commission, which does not publish previous trustees.
Do you help lead this organisation? Set up its network · How it works
Similar charities are matched by type of organisation or purpose and listed by latest income; shared trustees are formal board links. Neither is proof the organisations work together.
About
- What it does
- General Charitable Purposes, Education/training, Disability
- Where
- Throughout England
- Registered
- 2020
Income and spending
- YearIncomeSpending
- 2025£502£972
- 2024£5k£7k
- 2023£9k£6k
Earlier years
- 2022£18k£3k
- 2021£5k£776
Income trend, 2021 to 2025.
Charitable objects
TO RELIEVE THE NEEDS OF PEOPLE WITH WIEDEMANN-STEINER SYNDROME, THEIR PARENTS AND CARERS IN ANY PART OF THE WORLD IN PARTICULAR BUT NOT EXCLUSIVELY BY PROVIDING SUPPORT, ADVICE, TRAINING AND RECREATIONAL ACTIVITIES, WITH A VIEW TO CREATING AND DEVELOPING CONDITIONS WHICH WILL ENABLE PEOPLE WITH WIEDEMANN-STEINER SYNDROME TO ATTAIN THEIR FULL POTENTIAL
Board analysis
Board DNA
How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.
4 trustees on the board
- Alison Jane Smith Chair since 2020
- Dawn Lisa Howard since 2021
- Joanne Elizabeth Armitage since 2020
- Kim Purnell since 2023
Trustees past 6 years
- Alison Jane Smith Chair since 2020
- Joanne Elizabeth Armitage since 2020
First-time vs portfolio trustees
First-time (4)
- Alison Jane Smith Chair since 2020
- Dawn Lisa Howard since 2021
- Joanne Elizabeth Armitage since 2020
- Kim Purnell since 2023
Sector coverage iSector coverageThe charitable fields this board's trustees govern in elsewhere, by Charity Commission classification. Excludes this charity.
Gaps to watch
- No commercial or business experience on the board
- Several long-serving trustees could step down together
Succession forecast iSuccession forecastThe number of board seats likely to open in the next twelve months - summed across the board from each dated trustee’s tenure - and the profile worth recruiting next. From the filed record, deterministic.
Health of the organisation facts side by side - the conclusion is yours
Sources
Official record from the Charity Commission register for England and Wales. Governance Register calculates the connections.
Record details
- Registered charity number
- 1191194
- Status
- Registered
- Governing document
- CIO - FOUNDATION Registered 08 Sep 2020
- Contact on the register
- 07557052670 · alisonsmith0971@gmail.com
- Edition
- Register edition compiled 4th October 2026
- Labels
- Official record from the register · Calculated derived by Governance Register. Anything added by an organisation or person is labelled as provided by them.
Contains public sector information licensed under the Open Government Licence v3.0. Report an issue · How we handle data