Registered charity (CIO) · Nottingham
Albinism Fellowship
- 9 trustees
- Income £16k (2025)
Official record Charity Commission · updated 4th October 2026 · Sources
Network
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Who leads it
- Kristina Jane Venning RoseChair · since 2021
- Cristina Perez ArranzTrustee · since 2025
- Dr Laura Elizabeth EdwardsTrustee · since 2025
- Helen Ruth WardTrustee · since 2021
- Jenny Clare WensleyTrustee · since 2025
- Joannne Clare BennettTrustee · since 2021
- Jonathan Christopher MillerTrustee · since 2025
- Rebecca KerrTrustee · since 2026
- Rosaleen Anne DempseyTrustee · since 2022
Current trustees as listed by the Charity Commission, which does not publish previous trustees.
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About
- What it does
- General Charitable Purposes, Disability
- Where
- Throughout England And Wales, Scotland, Ireland, Northern Ireland
- Website
- www.albinism.org.uk (opens in a new tab)
- Registered
- 2021
Income and spending
- YearIncomeSpending
- 2025£16k£11k
- 2024£32k£34k
- 2023£36k£46k
Earlier years
- 2022£29k£4k
Income trend, 2022 to 2025.
Charitable objects
TO PRESERVE AND PROTECT THE HEALTH OF PEOPLE WITH ALBINISM AND THEIR FAMILIES AND CARERS BY:-PROVIDING INFORMATION ABOUT ALBINISM INCLUDING TO PROFESSIONALS WORKING WITH AND ADVISING PEOPLE WITH ALBINISM AND OTHER APPROPRIATE INTERESTED PARTIES; RAISING POSITIVE AWARENESS OF THE CONDITION; ARRANGING OPPORTUNITIES FOR PEOPLE WITH ALBINISM AND THEIR FAMILIES TO MEET FOR SUPPORT AND ENCOURAGE THE SHARING OF EXPERIENCES; ANDPROVIDING SUCH OTHER INFORMATION, ADVICE AND SUPPORT AS THE TRUSTEES DEEM APPROPRIATE.”NOTHING IN THIS CONSTITUTION SHALL AUTHORISE AN APPLICATION OF THE PROPERTY OF THE CIO FOR THE PURPOSES WHICH ARE NOT CHARITABLE IN ACCORDANCE WITH SECTION 7 OF THE CHARITIES AND TRUSTEE INVESTMENT (SCOTLAND) ACT 2005 AND [SECTION 2 OF THE CHARITIES ACT (NORTHERN IRELAND) 2008.
Grants received
1 grant · £9,500 total360Giving data, published by funders. Coverage only includes funders who publish their grants to 360Giving, so these figures are a floor, not a complete picture.
Top funders
- The National Lottery Community Fund · £9,500
Most recent
- The National Lottery Community Fund
Board analysis
Board DNA
How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.
9 trustees on the board
- Kristina Jane Venning Rose Chair since 2021
- Cristina Perez Arranz since 2025
- Dr Laura Elizabeth Edwards since 2025
- Helen Ruth Ward since 2021
- Joannne Clare Bennett since 2021
- Jenny Clare Wensley since 2025
- Jonathan Christopher Miller since 2025
- Rebecca Kerr since 2026
- Rosaleen Anne Dempsey since 2022
First-time vs portfolio trustees
First-time (9)
- Kristina Jane Venning Rose Chair since 2021
- Cristina Perez Arranz since 2025
- Dr Laura Elizabeth Edwards since 2025
- Helen Ruth Ward since 2021
- Joannne Clare Bennett since 2021
- Jenny Clare Wensley since 2025
- Jonathan Christopher Miller since 2025
- Rebecca Kerr since 2026
- Rosaleen Anne Dempsey since 2022
Sector coverage iSector coverageThe charitable fields this board's trustees govern in elsewhere, by Charity Commission classification. Excludes this charity.
Commercial experience iCommercial experienceThe industries this board's members are company directors in, by Companies House SIC code. Excludes this organisation's own company.
Gaps to watch
- Narrow spread of causes across the board
- Mostly recent joiners - limited long-term continuity
Succession forecast iSuccession forecastThe number of board seats likely to open in the next twelve months - summed across the board from each dated trustee’s tenure - and the profile worth recruiting next. From the filed record, deterministic.
Health of the organisation facts side by side - the conclusion is yours
Sources
Official record from the Charity Commission register for England and Wales. Governance Register calculates the connections.
Record details
- Registered charity number
- 1196004
- Status
- Registered
- Governing document
- CIO - ASSOCIATION Registered 01 Oct 2021
- Contact on the register
- 07946457979 · info@albinism.org.uk
- Edition
- Register edition compiled 4th October 2026
- Labels
- Official record from the register · Calculated derived by Governance Register. Anything added by an organisation or person is labelled as provided by them.
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