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Registered charity (CIO) · Herefordshire

XLH UK

  • 7 trustees
  • Income £24k (2026)
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Official record Charity Commission · updated 27th September 2026 · Sources

Network

The large node is XLH UK. Red nodes are organisations, white nodes are people. Sign in free to explore further.

Who leads it

Current trustees as listed by the Charity Commission, which does not publish previous trustees.

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About

What it does
The Advancement Of Health Or Saving Of Lives
Where
Throughout England And Wales, Scotland, Jersey, Guernsey and more
Website
xlhuk.org (opens in a new tab)
Registered
2021

Income and spending

  • YearIncomeSpending
  • 2026£24k£15k
  • 2025£13k£16k
  • 2024£18k£24k
Earlier years
  • 2023£23k£28k

Income trend, 2023 to 2026.

Charitable objects

THE PRESERVATION OF GOOD HEALTH AMONG SUFFERERS OF X-LINKED HYPOPHOSPHATEMIA AND RELATED DISORDERS BY:A) SUPPORTING RESEARCH FOR THE PUBLIC BENEFIT INTO THE CAUSES, PREVENTION, DIAGNOSIS AND METHODS OF TREATMENT OF X-LINKED HYPOPHOSPHATEMIA AND RELATED DISORDERS AND PUBLISHING THE USEFUL RESULTS OF THAT RESEARCH;B) PROVISION OF A SUPPORT NETWORK FOR FAMILIES SUFFERING FROM THE EFFECTS OF X-LINKED HYPOPHOSPHATEMIA AND RELATED DISORDERS; C) ADVOCATING EARLY DIAGNOSIS AND WELL-MANAGED TREATMENT OF X-LINKED HYPOPHOSPHATEMIA AND RELATED DISORDERS.

Grants received

2 grants · £10,000 total

360Giving data, published by funders. Coverage only includes funders who publish their grants to 360Giving, so these figures are a floor, not a complete picture.

Top funders

  • The National Lottery Community Fund · £10,000 (2 grants)

Most recent

  • The National Lottery Community Fund £5,0002025-02-06
  • The National Lottery Community Fund £5,0002024-02-16
Board analysis

Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.

7 trustees on the board

2.4y median 2y
average tenure
5y
longest tenure
0
trustees past 6 years
2.7y
average years in governance

First-time vs portfolio trustees

First-time (6)

Portfolio (1)

1
company-linked trustees

Sector coverage iSector coverageThe charitable fields this board's trustees govern in elsewhere, by Charity Commission classification. Excludes this charity.

The Advancement Of Health Or Saving Of Lives 7Disability 1Education/training 1

Commercial experience iCommercial experienceThe industries this board's members are company directors in, by Companies House SIC code. Excludes this organisation's own company.

Other services 1

Gaps to watch

  • Mostly recent joiners - limited long-term continuity

Succession forecast iSuccession forecastThe number of board seats likely to open in the next twelve months - summed across the board from each dated trustee’s tenure - and the profile worth recruiting next. From the filed record, deterministic.

🔒 Succession forecast is a Pro feature - the board seats likely to open in the next year and the ideal next trustee. Explore Pro →

Health of the organisation facts side by side - the conclusion is yours

Income v spending, filed accountsiIncome v spendingTotal gross income and expenditure from filed annual returns, Charity Commission, last 3 years.
2023
2024
2025
incomespending£13k latest income · spending exceeded income in 2024 and 2025

Sources

Official record from the Charity Commission register for England and Wales. Governance Register calculates the connections.

Record details
Registered charity number
1196811
Status
Registered
Governing document
CIO - FOUNDATION Registered 29 Nov 2021
Contact on the register
07905115944 · contact@xlhuk.org
Edition
Register edition compiled 27th September 2026
Labels
Official record from the register · Calculated derived by Governance Register. Anything added by an organisation or person is labelled as provided by them.

Contains public sector information licensed under the Open Government Licence v3.0. Report an issue · How we handle data