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Registered charity (CIO) · London

PCD Research

PCD Research is a registered charity (number 1197528) based in London, governed by 5 trustees and chaired by Dr Harriet Holme since 2022. Latest income £73k (2026). Source: Charity Commission register, updated 4th October 2026.

  • 5 trustees
  • Income £73k (2026)

Official record Charity Commission · updated 4th October 2026 · Sources

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Who leads it

Current trustees as listed by the Charity Commission, which does not publish previous trustees.

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About

What it does
The Advancement Of Health Or Saving Of Lives
Where
Throughout England And Wales, Italy, Australia, France and more
Website
www.PCDresearch.org (opens in a new tab)
Registered
2022

Income and spending

  • YearIncomeSpending
  • 2026£73k£161k
  • 2025£239k£19k
  • 2024£41k£12k
Earlier years
  • 2023£154k£2k

Income trend, 2023 to 2026.

Charitable objects

THE OBJECT OF THE CIO IS TO ADVANCE THE HEALTH OF CHILDREN AND ADULTS WITH PRIMARY CILIARY DYSKINESIA (PCD), INVOLVING INHERITED MOTILE OR NON-MOTILE CILIARY DYSFUNCTION. THE CIO WILL CARRY OUT THIS OBJECT FOR THE PUBLIC BENEFIT BY VARIOUS MEANS, INCLUDING: • FUNDING AND SUPPORTING PURE SCIENTIFIC AND APPLIED/TRANSLATIONAL RESEARCH TO UNDERSTAND INHERITED CILIARY DYSFUNCTION; • ADVOCATING FOR AN EFFECTIVE CARE REGIME AND THERAPIES FOR PCD; • PROVIDING PATIENT VOICE TO ENSURE THAT RESEARCH AND THERAPEUTICS REFLECT LIVED EXPERIENCES OF PEOPLE WITH PCD; AND • RAISING AWARENESS ABOUT INHERITED CILIOPATHIES. NOTHING IN THIS CONSTITUTION SHALL AUTHORISE AN APPLICATION OF THE PROPERTY OF THE CIO FOR THE PURPOSES WHICH ARE NOT CHARITABLE IN ACCORDANCE WITH SECTION 7 OF THE CHARITIES AND TRUSTEE INVESTMENT (SCOTLAND) ACT 2005 AND SECTION 2 OF THE CHARITIES ACT (NORTHERN IRELAND) 2008

Board analysis

Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.

5 trustees on the board

3.4y median 4y
average tenure
4y
longest tenure
0
trustees past 6 years
3.8y
average years in governance

First-time vs portfolio trustees

First-time (4)

Portfolio (1)

0
company-linked trustees

Sector coverage iSector coverageThe charitable fields this board's trustees govern in elsewhere, by Charity Commission classification. Excludes this charity.

The Advancement Of Health Or Saving Of Lives 5Education/training 1Environment/conservation/heritage 1

Gaps to watch

  • No commercial or business experience on the board

Succession forecast iSuccession forecastThe number of board seats likely to open in the next twelve months - summed across the board from each dated trustee’s tenure - and the profile worth recruiting next. From the filed record, deterministic.

🔒 Succession forecast is a Pro feature - the board seats likely to open in the next year and the ideal next trustee. Explore Pro →

Health of the organisation facts side by side - the conclusion is yours

Income v spending, filed accountsiIncome v spendingTotal gross income and expenditure from filed annual returns, Charity Commission, last 3 years.
2023
2024
2025
incomespending£239k latest income · income exceeded spending in 2024 and 2025

Sources

Official record from the Charity Commission register for England and Wales. Governance Register calculates the connections.

Record details
Registered charity number
1197528
Status
Registered
Governing document
CIO - FOUNDATION REGISTERED 17 JAN 2022AMENDED ON 24 JUN 2024
Contact on the register
07920572992 · info@pcdresearch.org
Edition
Register edition compiled 4th October 2026
Labels
Official record from the register · Calculated derived by Governance Register. Anything added by an organisation or person is labelled as provided by them.

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