The Governance RegisterEdition 2026 · Compiled 12th July 2026

A Rare Cause

Registered charity 1198461 CIO Registered since 2022

Operates: Throughout England, Botswana, United States, Rwanda, South Africa

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Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.

4 trustees on the board

3.2y median 4y
average tenure
4y
longest tenure
0
trustees past 6 years
3.4y
average years in governance

First-time vs portfolio trustees

First-time (3)

Portfolio (1)

0
company-linked trustees

Sector coverage iSector coverageThe charitable fields this board's trustees govern in elsewhere, by Charity Commission classification. Excludes this charity.

General Charitable Purposes 1Religious Activities 1

Gaps to watch

  • No commercial or business experience on the board

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Related organisations iRelated organisationsTwo groups, both deterministic from public records. Related organisations share two or more trustees with this board - a real structural link, such as a subsidiary or sister charity. Connected through a shared trustee share exactly one person - a genuine connection, but not the same group. A board with no shared trustee at all may still appear here when it is active in the same charitable field.

Connected through a shared trustee

Also active in the same field

Deterministic, from public records.

Contact

Websitehttps://ararecause.org/
Emailflorence@ararecause.org
Phone07801960480
Address6 The Green, Burley In Wharfedale, ILKLEY, West Yorkshire, LS29 7FF

Finances

£120 latest income

YearIncomeSpending
2022£0£0
2023£0£0
2024£120£0

What it does

What

The Advancement Of Health Or Saving Of Lives

Who

Children/young PeopleElderly/old PeoplePeople With DisabilitiesOther Charities Or Voluntary BodiesOther Defined GroupsThe General Public/mankind

How

Provides ServicesProvides Advocacy/advice/information

Charitable objects

THE OBJECTS OF THE CIO ARE THE ADVANCEMENT OF HEALTH OR THE SAVING OF LIVES IN RELATION TO THE GLOBAL RARE DISEASE COMMUNITY IN PARTICULAR BY PROVIDING INFORMATION AND RESOURCES TO RAISE KNOWLEDGE AND INCREASE AWARENESS.

Governing document: CIO - FOUNDATION Registered 31 Mar 2022

Trustees (4)

4trustees
0aged 70+

Connected charities (1)

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