Registered charity (CIO) · Kent
Marfan Trust
- 9 trustees
- Income £287k (2024)
Official record Charity Commission · updated 27th September 2026 · Sources
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Who leads it
- Dr Anne ChildChair · since 2021
- Andrew ScaddingTrustee · since 2021
- Dr Nitha NaqviTrustee · since 2021
- Edward StilliardTrustee · since 2021
- Eleanor HydeTrustee · since 2021
- Helen SymsTrustee · since 2021
- James MccallumTrustee · since 2025
- Mohamed Essam Gamil AbdelrazekTrustee · since 2021
- Robin RandallTrustee · since 2018
Current trustees as listed by the Charity Commission, which does not publish previous trustees.
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About
- What it does
- Education/training, The Advancement Of Health Or Saving Of Lives, Disability
- Where
- Throughout England And Wales, Ireland, Scotland
- Website
- www.marfantrust.org (opens in a new tab)
- Registered
- 2022
Income and spending
- YearIncomeSpending
- 2024£287k£246k
- 2023£631k£31k
- 2022£0£0
Income trend, 2022 to 2024.
Charitable objects
THE OBJECTS OF THE CIO ARE: TO ADVANCE EDUCATION REGARDING, AND PROMOTE RESEARCH INTO THE NATURE OF, MARFAN SYNDROME AND RELATED CONNECTIVE TISSUE DISORDERS, METHODS OF TREATMENT AND TO DISSEMINATE THE USEFUL RESULTS OF SUCH RESEARCH FOR THE BENEFIT OF THE PUBLIC; AND THE PRESERVATION AND PROTECTION OF THE HEALTH OF PERSONS WITH MARFAN SYNDROME AND RELATED CONNECTIVE TISSUE DISORDERS AND THE RELIEF OF NEED OF PERSONS WITH MARFAN SYNDROME AND RELATED CONNECTIVE TISSUE DISORDERS AND THEIR FAMILIES BY PROVIDING ADVICE AND SUPPORT.
Grants received
2 grants · £36,688 total360Giving data, published by funders. Coverage only includes funders who publish their grants to 360Giving, so these figures are a floor, not a complete picture.
Top funders
- The National Lottery Community Fund · £36,688 (2 grants)
Most recent
- The National Lottery Community Fund
- The National Lottery Community Fund
Board analysis
Board DNA
How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.
9 trustees on the board
- Dr Anne Child Chair since 2021
- Andrew Scadding since 2021
- Dr Nitha Naqvi since 2021
- Edward Stilliard since 2021
- Eleanor Hyde since 2021
- Helen Syms since 2021
- James Mccallum since 2025
- Mohamed Essam Gamil Abdelrazek since 2021
- Robin Randall since 2018
Trustees past 6 years
- Robin Randall since 2018
First-time vs portfolio trustees
First-time (9)
- Dr Anne Child Chair since 2021
- Andrew Scadding since 2021
- Dr Nitha Naqvi since 2021
- Edward Stilliard since 2021
- Eleanor Hyde since 2021
- Helen Syms since 2021
- James Mccallum since 2025
- Mohamed Essam Gamil Abdelrazek since 2021
- Robin Randall since 2018
Sector coverage iSector coverageThe charitable fields this board's trustees govern in elsewhere, by Charity Commission classification. Excludes this charity.
Commercial experience iCommercial experienceThe industries this board's members are company directors in, by Companies House SIC code. Excludes this organisation's own company.
Succession forecast iSuccession forecastThe number of board seats likely to open in the next twelve months - summed across the board from each dated trustee’s tenure - and the profile worth recruiting next. From the filed record, deterministic.
Health of the organisation facts side by side - the conclusion is yours
Sources
Official record from the Charity Commission register for England and Wales. Governance Register calculates the connections.
Record details
- Registered charity number
- 1198847
- Status
- Registered
- Governing document
- CIO - FOUNDATION Registered 05 May 2022
- Contact on the register
- 0333 011 5256 · info@marfantrust.org
- Edition
- Register edition compiled 27th September 2026
- Labels
- Official record from the register · Calculated derived by Governance Register. Anything added by an organisation or person is labelled as provided by them.
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