Rare Disease Nurse Network
Registered charity 1199654 Registered since 2022
Operates: Throughout England And Wales, Scotland, Northern Ireland
Connected trustee network
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Sign in, freeBoard DNA
How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.
3 trustees on the board
- Neil Dugdale since 1998
- Simon Stuart Mouncer since 2022
- Zoe Georgina Morrison since 2024
Trustees past 6 years
- Neil Dugdale since 1998
First-time vs portfolio trustees
First-time (3)
- Neil Dugdale since 1998
- Simon Stuart Mouncer since 2022
- Zoe Georgina Morrison since 2024
Commercial experience iCommercial experienceThe industries this board's members are company directors in, by Companies House SIC code. Excludes this organisation's own company.
Gaps to watch
- Small board - little cover if a trustee leaves
Succession forecast iSuccession forecastThe number of board seats likely to open in the next twelve months - summed across the board from each dated trustee’s tenure - and the profile worth recruiting next. From the filed record, deterministic.
Health of the organisation facts side by side - the conclusion is yours
Contact
| Website | https://www.rdnn.org/ |
| kay.parkinson@rdnn.org | |
| Phone | 07738697979 |
| Address | 71-75 Shelton St, Covent Garden, London, WC2H 9JQ |
Finances
£0 latest income
| Year | Income | Spending |
|---|---|---|
| 2023 | £0 | £4,784 |
| 2024 | £5,000 | £2,225 |
| 2025 | £0 | £296 |
What it does
What
Education/trainingThe Advancement Of Health Or Saving Of LivesHow
Provides ServicesProvides Advocacy/advice/informationSponsors Or Undertakes ResearchCharitable objects
THE RELIEF OF SICKNESS OF PERSONS WITH RARE DISEASES, IN PARTICULAR BUT NOT EXCLUSIVELY THROUGH THE PROVISION OF: A) SPECIALISED SUPPORT, ADVICE, INFORMATION AND ASSISTANCE DIRECTLY AND INDIRECTLY TO PEOPLE AFFECTED BY RARE DISEASES INCLUDING BUT NOT LIMITED TO THE ESTABLISHMENT OF A NURSE’S NETWORK TO PROVIDE SUCH SUPPORT. B) EDUCATION TO HEALTHCARE PROFESSIONALS WORKING IN THE RARE DISEASE ARENA AND THE GENERAL PUBLIC AND PROMOTE PUBLIC AWARENESS OF RARE DISEASES AND RELATED SYNDROMES, INCLUDING BUT NOT LIMITED TO THE SUBJECTS OF DIAGNOSES, POTENTIAL CURES AND TREATMENTS, AND THE SUPPORT REQUIRED BY PEOPLE AFFECTED BY RARE DISEASE. C) THE PROMOTION, SUPPORT AND ASSISTANCE OF RESEARCH INTO RARE DISEASES AND RELATED SYNDROMES, BOTH IN THE UK AND ABROAD AND THE PUBLIC DISSEMINATION OF THE USEFUL RESULTS THEREOF.FOR THE PURPOSES OF THESE OBJECTS, “PERSONS AFFECTED BY RARE DISEASE” INCLUDES REFERENCE TO PEOPLE WHO HAVE A RARE DISEASE (WHETHER DIAGNOSED OR UNDIAGNOSED), THEIR CARERS, FAMILY MEMBERS AND FRIENDS, CLINICIANS AND NURSES AND OTHERS WORKING WITH AFFECTED INDIVIDUALS OR AFFECTED DIRECTLY OR INDIRECTLY IN SOME CAPACITY BY A RARE DISEASE.
Governing document: MEMORANDUM AND ARTICLES INCORPORATED 17 JAN 2018AS AMENDED BY SPECIAL RESOLUTION(S) DATED 09 JUN 2022AS REGISTERED AT COMPANIES HOUSE ON 17 JUN 2022
Trustees (3)
- Neil Dugdaleage band 55-59 since 1998
- Simon Stuart Mouncerage band 65-69 since 2022
- Zoe Georgina Morrisonage band 30-34 since 2024
Connected charities (0)
No charities share a trustee (from current data).
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