Registered charity (CIO) · West Yorkshire
Batten Disease Family Association CIO
- 7 trustees
- Income £491k (2025)
Official record Charity Commission · updated 27th September 2026 · Sources
Network
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Who leads it
Current trustees as listed by the Charity Commission, which does not publish previous trustees.
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About
- What it does
- Education/training, The Advancement Of Health Or Saving Of Lives, Disability
- Where
- Throughout England And Wales, Scotland, Northern Ireland
- Website
- www.bdfa-uk.org.uk (opens in a new tab)
- Registered
- 2023
Income and spending
- YearIncomeSpending
- 2025£491k£634k
- 2024£0£0
Income trend, 2024 to 2025.
Charitable objects
THE OBJECTS OF THE CIO ARE:TO PRESERVE AND PROTECT THE HEALTH AND WELLBEING OF PERSONS AFFECTED BY ALL TYPES OF NEURONAL CERIOD LIPOFUSCINOSIS (NCL) COMMONLY KNOWN AS BATTEN DISEASE.TO ADVANCE THE EDUCATION OF THE MEDICAL PROFESSION AND THE GENERAL PUBLIC ON THE SUBJECT OF BATTEN DISEASE AND ITS IMPLICATIONS FOR THE FAMILY, IN PARTICULAR BUT NOT EXCLUSIVELY BY SUPPORTING AND CONDUCTING RESEARCH INTO THE MANAGEMENT OF BATTEN DISEASE AND TO PUBLISH THE USEFUL RESULTS THEREOF AND TO SUPPORT ORGANISATIONS PROMOTING RESEARCH INTO BATTEN DISEASE.
Grants received
2 grants · £20,125 total360Giving data, published by funders. Coverage only includes funders who publish their grants to 360Giving, so these figures are a floor, not a complete picture.
Top funders
- The National Lottery Community Fund · £20,000
- Making A Difference Locally · £125
Most recent
- The National Lottery Community Fund
Board analysis
Board DNA
How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.
7 trustees on the board
- Nigel Lorenzo Nicholls Chair since 2025
- Duncan Jamie Macgregor Mann since 2025
- Lucy Anne Rodrick since 2025
- Mark Alexander Thompson since 2023
- Richard Jonathan Oakley since 2025
- Robert James Peter Thompson since 2023
- Simon David Sewart since 2023
First-time vs portfolio trustees
First-time (7)
- Nigel Lorenzo Nicholls Chair since 2025
- Duncan Jamie Macgregor Mann since 2025
- Lucy Anne Rodrick since 2025
- Mark Alexander Thompson since 2023
- Richard Jonathan Oakley since 2025
- Robert James Peter Thompson since 2023
- Simon David Sewart since 2023
Sector coverage iSector coverageThe charitable fields this board's trustees govern in elsewhere, by Charity Commission classification. Excludes this charity.
Commercial experience iCommercial experienceThe industries this board's members are company directors in, by Companies House SIC code. Excludes this organisation's own company.
Succession forecast iSuccession forecastThe number of board seats likely to open in the next twelve months - summed across the board from each dated trustee’s tenure - and the profile worth recruiting next. From the filed record, deterministic.
Health of the organisation facts side by side - the conclusion is yours
Sources
Official record from the Charity Commission register for England and Wales. Governance Register calculates the connections.
Record details
- Registered charity number
- 1205650
- Status
- Registered
- Governing document
- CIO - ASSOCIATION Registered 09 Nov 2023
- Contact on the register
- 07354486586 · admin@bdfa-uk.org.uk
- Edition
- Register edition compiled 27th September 2026
- Labels
- Official record from the register · Calculated derived by Governance Register. Anything added by an organisation or person is labelled as provided by them.
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