Batten Disease Family Association CIO

Registered charity 1205650 CIO Registered since 2023

Operates: Throughout England And Wales, Scotland, Northern Ireland

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Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.

trustees on the board

1.9y median 1y

average tenure

longest tenure

trustees past 6 years

5.2y

average years in governance

7 vs 0 portfolio

first-time trustees

company-linked trustees

Sector coverage

Disability 7Education/training 7The Advancement Of Health Or Saving Of Lives 7

Commercial experience

Health and social care 2

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Boards that overlap with this one through shared trustees, or govern in the same field. Deterministic, from public records.

Contact

Website	www.bdfa-uk.org.uk
Email	admin@bdfa-uk.org.uk
Phone	07354486586
Address	10 Nidderdale Walk, Baildon, SHIPLEY, West Yorkshire, BD17 6TW

Finances

£491,462 latest income

Year	Income	Spending
2024	£0	£0
2025	£491,462	£634,269

What it does

What

Education/trainingThe Advancement Of Health Or Saving Of LivesDisability

Who

Children/young PeoplePeople With Disabilities

How

Provides ServicesProvides Advocacy/advice/informationSponsors Or Undertakes Research

Charitable objects

THE OBJECTS OF THE CIO ARE:TO PRESERVE AND PROTECT THE HEALTH AND WELLBEING OF PERSONS AFFECTED BY ALL TYPES OF NEURONAL CERIOD LIPOFUSCINOSIS (NCL) COMMONLY KNOWN AS BATTEN DISEASE.TO ADVANCE THE EDUCATION OF THE MEDICAL PROFESSION AND THE GENERAL PUBLIC ON THE SUBJECT OF BATTEN DISEASE AND ITS IMPLICATIONS FOR THE FAMILY, IN PARTICULAR BUT NOT EXCLUSIVELY BY SUPPORTING AND CONDUCTING RESEARCH INTO THE MANAGEMENT OF BATTEN DISEASE AND TO PUBLISH THE USEFUL RESULTS THEREOF AND TO SUPPORT ORGANISATIONS PROMOTING RESEARCH INTO BATTEN DISEASE.

Governing document: CIO - ASSOCIATION Registered 09 Nov 2023

Trustees (7)

7trustees

61median age

0aged 70+

Nigel Lorenzo Nichollsage 61 Chair since 2025
Duncan Jamie Macgregor Mann since 2025
Lucy Anne Rodrick since 2025
Mark Alexander Thompson since 2023
Richard Jonathan Oakley since 2025
Robert James Peter Thompson since 2023
Simon David Sewart since 2023

Connected charities (0)

No charities share a trustee (from current data).

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