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Registered charity (CIO) · Ockenden Road

Desmoid AID UK

  • 4 trustees
  • Income £8k (2025)
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Official record Charity Commission · updated 27th September 2026 · Sources

Network

The large node is Desmoid AID UK. Red nodes are organisations, white nodes are people. Sign in free to explore further.

Who leads it

Current trustees as listed by the Charity Commission, which does not publish previous trustees.

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About

What it does
General Charitable Purposes
Where
Throughout England And Wales
Website
www.desmoidaiduk.com (opens in a new tab)
Registered
2024

Income and spending

  • YearIncomeSpending
  • 2025£8k£963
Charitable objects

TO RELIEVE CHARITABLE NEEDS OF PEOPLE DIAGNOSED WITH DESMOID-TYPE FIBROMATOSIS (ALSO KNOWN AS AGGRESSIVE FIBROMATOSIS AND DESMOID TUMOURS) AND THOSE WHO CARE FOR THEM FOR THE PUBLIC BENEFIT BY THE PROVISION OF:A. FINANCIAL GRANTS TO PEOPLE DIAGNOSED WITH DESMOID-TYPE FIBROMATOSIS;B. EDUCATION AND INFORMATION TO RAISE PUBLIC AWARENESS AND PROMOTE THE EFFECTIVE CARE OF PEOPLE AFFECTED BY DESMOID TUMOURS;C. ANY OTHER ADDITIONAL SUPPORT TO PEOPLE AFFECTED BY DESMOID TUMOURS AND RELATED CONDITIONS AS TRUSTEES SEE FIT.THERE IS NO GEOGRAPHICAL LIMITS WITHIN ENGLAND AND WALES.

Board analysis

Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.

4 trustees on the board

2y median 2y
average tenure
2y
longest tenure
0
trustees past 6 years
2.6y
average years in governance

First-time vs portfolio trustees

First-time (4)

0
company-linked trustees

Sector coverage iSector coverageThe charitable fields this board's trustees govern in elsewhere, by Charity Commission classification. Excludes this charity.

General Charitable Purposes 4

Gaps to watch

  • No commercial or business experience on the board
  • Narrow spread of causes across the board
  • Mostly recent joiners - limited long-term continuity

Succession forecast iSuccession forecastThe number of board seats likely to open in the next twelve months - summed across the board from each dated trustee’s tenure - and the profile worth recruiting next. From the filed record, deterministic.

🔒 Succession forecast is a Pro feature - the board seats likely to open in the next year and the ideal next trustee. Explore Pro →

Sources

Official record from the Charity Commission register for England and Wales. Governance Register calculates the connections.

Record details
Registered charity number
1207309
Status
Registered
Governing document
CIO - FOUNDATION Registered 05 Mar 2024
Contact on the register
07974005676 · info@desmoidaiduk.com
Edition
Register edition compiled 27th September 2026
Labels
Official record from the register · Calculated derived by Governance Register. Anything added by an organisation or person is labelled as provided by them.

Contains public sector information licensed under the Open Government Licence v3.0. Report an issue · How we handle data