GRI-UK

Registered charity 1207930 CIO Registered since 2024

Operates: Throughout England And Wales, Scotland, Northern Ireland

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Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.

trustees on the board

1.1y median 1.5y

average tenure

longest tenure

trustees past 6 years

1.7y

average years in governance

9 vs 0 portfolio

first-time trustees

company-linked trustees

Sector coverage

The Advancement Of Health Or Saving Of Lives 10Education/training 1General Charitable Purposes 1

Gaps to watch

No commercial or business experience on the board
Mostly recent joiners - limited long-term continuity

Boards that share trustees

ST White's Primary School PTA 1 shared trustee

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Related organisations

ST White's Primary School PTA 1 shared trustee
Hansy Josovic Maternity Trust Similar size; both Health
The Angel Charitable Trust Similar size; both Health
The Thomas Ball Children's Cancer Fund Similar size; both Health
The Rhema Mission Similar size; both Health
The Duchenne Research Fund Similar size; both Health

Boards that overlap with this one through shared trustees, or govern in the same field. Deterministic, from public records.

Contact

Website	www.gri-uk.org
Email	ALYSON.KOOPMAN@GRI-UK.ORG
Phone	07973252208
Address	Durham House, 10 Pony Chase, COBHAM, Surrey, KT11 2PF

Finances

£37,965 latest income

Year	Income	Spending
2025	£37,965	£640

What it does

What

The Advancement Of Health Or Saving Of Lives

Who

People With Disabilities

How

Makes Grants To OrganisationsProvides Advocacy/advice/informationSponsors Or Undertakes ResearchActs As An Umbrella Or Resource Body

Charitable objects

THE CIO’S OBJECT IS TO PRESERVE AND PROTECT GOOD HEALTH FOR THE PUBLIC BENEFIT IN PARTICULAR BUT NOT EXCLUSIVELY OF PEOPLE WITH GRIA, GRID, GRIK, & GRIN GENE DISORDERS BY:-AIMING TO ADVANCE CURES AND TREATMENTS;SUPPORTING FAMILIES SO THAT THOSE DIAGNOSED WITH THESE DISORDERS CAN LEAD THE BEST LIFE POSSIBLE;RAISING AWARENESS, INCLUDING WITHIN THE UK HEALTH SERVICE, AND MEDICAL CENTRES OF THE SYMPTOMS, NEEDS AND MEDICAL CONDITIONS OF THOSE LIVING WITH GRI DISORDERS TO HELP ENABLE BETTER AND FASTER ACCESS TO DIAGNOSIS AND TREATMENTS;MAKING THE UK A CENTRE OF EXCELLENCE FOR THE PUBLIC BENEFIT OF FINDING TREATMENTS AND CURES FOR GRI DISORDERS; AND BYFOCUSING ON BRINGING TOGETHER PATIENTS, PARENTS, FAMILY MEMBERS, MEDICAL PROFESSIONALS, RESEARCHERS, SCIENTISTS, PHARMACEUTICAL, BIOSCIENCE AND ACADEMIC COMMUNITIES.

Governing document: CIO - FOUNDATION Registered 19 Apr 2024

Trustees (10)

10trustees

0aged 70+

Alyson Michelle Koopman Chair since 2024
Alexandra Elena Anghelina since 2026
Ashleigh James since 2026
Colette Miriam Dufficy since 2025
David Clark since 2026
Jillian Lorna Hastings Ward Mahons MSc since 2024
Nicholas Clive Ward since 2026
Shilpa Kaluti since 2024
Susan Patricia Banks since 2024
Toni Lee Clarke since 2024

Connected charities (1)

ST White's Primary School PTA 1 shared trustee

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