Registered charity (CIO) · Surrey
GRI-UK
- 10 trustees
- Income £38k (2025)
Official record Charity Commission · updated 4th October 2026 · Sources
Network
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Who leads it
- Alyson Michelle KoopmanChair · since 2024
- Alexandra Elena AnghelinaTrustee · since 2026
- Ashleigh JamesTrustee · since 2026
- Colette Miriam DufficyTrustee · since 2025
- David ClarkTrustee · since 2026
- Jillian Lorna Hastings Ward Mahons MScTrustee · since 2024
- Nicholas Clive WardTrustee · since 2026
- Shilpa KalutiTrustee · since 2024
- Susan Patricia BanksTrustee · since 2024
- Toni Lee ClarkeTrustee · since 2024
Current trustees as listed by the Charity Commission, which does not publish previous trustees.
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About
- What it does
- The Advancement Of Health Or Saving Of Lives
- Where
- Throughout England And Wales, Scotland, Northern Ireland
- Website
- www.gri-uk.org (opens in a new tab)
- Registered
- 2024
Income and spending
- YearIncomeSpending
- 2025£38k£640
Charitable objects
THE CIO’S OBJECT IS TO PRESERVE AND PROTECT GOOD HEALTH FOR THE PUBLIC BENEFIT IN PARTICULAR BUT NOT EXCLUSIVELY OF PEOPLE WITH GRIA, GRID, GRIK, & GRIN GENE DISORDERS BY:-AIMING TO ADVANCE CURES AND TREATMENTS;SUPPORTING FAMILIES SO THAT THOSE DIAGNOSED WITH THESE DISORDERS CAN LEAD THE BEST LIFE POSSIBLE;RAISING AWARENESS, INCLUDING WITHIN THE UK HEALTH SERVICE, AND MEDICAL CENTRES OF THE SYMPTOMS, NEEDS AND MEDICAL CONDITIONS OF THOSE LIVING WITH GRI DISORDERS TO HELP ENABLE BETTER AND FASTER ACCESS TO DIAGNOSIS AND TREATMENTS;MAKING THE UK A CENTRE OF EXCELLENCE FOR THE PUBLIC BENEFIT OF FINDING TREATMENTS AND CURES FOR GRI DISORDERS; AND BYFOCUSING ON BRINGING TOGETHER PATIENTS, PARENTS, FAMILY MEMBERS, MEDICAL PROFESSIONALS, RESEARCHERS, SCIENTISTS, PHARMACEUTICAL, BIOSCIENCE AND ACADEMIC COMMUNITIES.
Board analysis
Board DNA
How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.
10 trustees on the board
- Alyson Michelle Koopman Chair since 2024
- Alexandra Elena Anghelina since 2026
- Ashleigh James since 2026
- Colette Miriam Dufficy since 2025
- David Clark since 2026
- Jillian Lorna Hastings Ward Mahons MSc since 2024
- Nicholas Clive Ward since 2026
- Shilpa Kaluti since 2024
- Susan Patricia Banks since 2024
- Toni Lee Clarke since 2024
First-time vs portfolio trustees
First-time (8)
- Alexandra Elena Anghelina since 2026
- Ashleigh James since 2026
- Colette Miriam Dufficy since 2025
- David Clark since 2026
- Nicholas Clive Ward since 2026
- Shilpa Kaluti since 2024
- Susan Patricia Banks since 2024
- Toni Lee Clarke since 2024
Portfolio (2)
- Alyson Michelle Koopman Chair since 2024
- Jillian Lorna Hastings Ward Mahons MSc since 2024
Sector coverage iSector coverageThe charitable fields this board's trustees govern in elsewhere, by Charity Commission classification. Excludes this charity.
Gaps to watch
- No commercial or business experience on the board
- Mostly recent joiners - limited long-term continuity
Succession forecast iSuccession forecastThe number of board seats likely to open in the next twelve months - summed across the board from each dated trustee’s tenure - and the profile worth recruiting next. From the filed record, deterministic.
Sources
Official record from the Charity Commission register for England and Wales. Governance Register calculates the connections.
Record details
- Registered charity number
- 1207930
- Status
- Registered
- Governing document
- CIO - FOUNDATION Registered 19 Apr 2024
- Contact on the register
- 07973252208 · ALYSON.KOOPMAN@GRI-UK.ORG
- Edition
- Register edition compiled 4th October 2026
- Labels
- Official record from the register · Calculated derived by Governance Register. Anything added by an organisation or person is labelled as provided by them.
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