Registered charity (CIO) · Ashbourne
Kleefstra Syndrome UK
- 7 trustees
- Income £15k (2025)
Official record Charity Commission · updated 4th October 2026 · Sources
Network
The large node is Kleefstra Syndrome UK. Red nodes are organisations, white nodes are people. Sign in free to explore further.
Who leads it
Current trustees as listed by the Charity Commission, which does not publish previous trustees.
Do you help lead this organisation? Set up its network · How it works
About
- What it does
- Disability
- Where
- Throughout England And Wales
- Website
- www.kleefstrasyndrome.org (opens in a new tab)
- Registered
- 2024
Income and spending
- YearIncomeSpending
- 2025£15k£2k
- 2024£4k£13k
Income trend, 2024 to 2025.
Charitable objects
THE OBJECTS OF THE CIO ARE TO RELIEVE THE NEEDS OF PEOPLE WITH KLEEFSTRA SYNDROME AND THEIR FAMILIES AND PEOPLE CONNECTED TO, CARES FOR, SUPPORTS, OR WORKS WITH SOMEONE WITH KLEEFSTRA SYNDROME BY:-• INCREASING AWARENESS OF THE SYMPTOMS OF KLEEFSTRA SYNDROME TO SUPPORT DIAGNOSIS AND PROFESSIONAL AND MEDICAL ASSISTANCE;• THE PROVISION OF INFORMATION, ADVICE AND OTHER ASSISTANCE, TO SUPPORT THOSE AFFECTED WITH KLEEFSTRA SYNDROME;• THE PROMOTION OF RESEARCH INTO THE CAUSES, TREATMENT AND MANAGEMENT OF KLEEFSTRA SYNDROME AND • DISSEMINATING AND PUBLISHING THE USEFUL RESULTS OF ANY SUCH RESEARCH; AND• UNDERTAKING ANY OTHER CHARITABLE ACTIVITIES IN CONNECTION WITH KLEEFSTRA SYNDROME.NOTHING IN THIS CONSTITUTION SHALL AUTHORISE AN APPLICATION OF THE PROPERTY OF THE CIO FOR THE PURPOSES WHICH ARE NOT CHARITABLE IN ACCORDANCE WITH [SECTION 7 OF THE CHARITIES AND TRUSTEE INVESTMENT (SCOTLAND) ACT 2005] AND [SECTION 2 OF THE CHARITIES ACT (NORTHERN IRELAND) 2008].
Grants received
1 grant · £12,346 total360Giving data, published by funders. Coverage only includes funders who publish their grants to 360Giving, so these figures are a floor, not a complete picture.
Top funders
- The National Lottery Community Fund · £12,346
Most recent
- The National Lottery Community Fund
Board analysis
Board DNA
How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.
7 trustees on the board
- Wendy Elizabeth Hocking Chair since 2023
- Anna Gibbs since 2023
- Barbara Janet Roberts since 2023
- Courtney Helliwell since 2024
- Dr Katherine Palmer since 2023
- Hannah Banfield since 2024
- Vytautas Berzanskis since 2023
First-time vs portfolio trustees
First-time (7)
- Wendy Elizabeth Hocking Chair since 2023
- Anna Gibbs since 2023
- Barbara Janet Roberts since 2023
- Courtney Helliwell since 2024
- Dr Katherine Palmer since 2023
- Hannah Banfield since 2024
- Vytautas Berzanskis since 2023
Sector coverage iSector coverageThe charitable fields this board's trustees govern in elsewhere, by Charity Commission classification. Excludes this charity.
Gaps to watch
- No commercial or business experience on the board
- Narrow spread of causes across the board
Succession forecast iSuccession forecastThe number of board seats likely to open in the next twelve months - summed across the board from each dated trustee’s tenure - and the profile worth recruiting next. From the filed record, deterministic.
Health of the organisation facts side by side - the conclusion is yours
Sources
Official record from the Charity Commission register for England and Wales. Governance Register calculates the connections.
Record details
- Registered charity number
- 1208059
- Status
- Registered
- Governing document
- CIO - FOUNDATION Registered 30 Apr 2024
- Contact on the register
- 01335346772 · chair@kleefstrasyndrome.org
- Edition
- Register edition compiled 4th October 2026
- Labels
- Official record from the register · Calculated derived by Governance Register. Anything added by an organisation or person is labelled as provided by them.
Contains public sector information licensed under the Open Government Licence v3.0. Report an issue · How we handle data