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Registered charity (CIO) · Maidenhead

Action for Bpan

  • 4 trustees
  • Income £118k (2025)
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Official record Charity Commission · updated 27th September 2026 · Sources

Network

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Who leads it

Current trustees as listed by the Charity Commission, which does not publish previous trustees.

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About

What it does
Education/training, The Advancement Of Health Or Saving Of Lives, Disability
Where
Throughout England And Wales, Scotland, Jersey, Isle Of Man and more
Website
www.actionforbpan.com (opens in a new tab)
Registered
2024

Income and spending

  • YearIncomeSpending
  • 2025£118k£18k
Charitable objects

THE OBJECTS OF THE CIO ARE TO PRESERVE AND PROTECT THE GOOD HEALTH OF THOSE SUFFERING FROM BETA PROPELLER PROTEIN-ASSOCIATED NEURODEGENERATION (BPAN) BY:-MAKING GRANTS TO VETTED MEDICAL PROFESSIONALS TO CARRY OUT RESEARCH FOR A CURE OR TREATMENT OF THE CONDITION AND TO PROVIDE SUPPORT TO CAREGIVERS OF THOSE WITH BETA-PROPELLER PROTEIN-ASSOCIATED NEURODEGENERATION (BPAN);PROVIDING USEFUL INFORMATION FROM UK BPAN SPECIALIST DOCTORS, SIGNPOSTING AND HELPING NAVIGATE THE SUPPORT AVAILABLE BY SHARING PERSONAL EXPERIENCES TO ENSURE THEY CAN ACCESS SERVICES THAT MAY BE BENEFICIAL TO THEM; ANDPROMOTING AWARENESS AND ADVANCE THE EDUCATION OF BETA-PROPELLER PROTEIN[1]ASSOCIATED NEURODEGENERATION (BPAN) FOR THE GENERAL PUBLIC AND HEALTH PROFESSIONALS USING A VARIETY OF DIFFERENT MEDIUMS.

Grants received

2 grants · £2,832 total

360Giving data, published by funders. Coverage only includes funders who publish their grants to 360Giving, so these figures are a floor, not a complete picture.

Top funders

Most recent

Board analysis

Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.

4 trustees on the board

2y median 2y
average tenure
2y
longest tenure
0
trustees past 6 years
2y
average years in governance

First-time vs portfolio trustees

First-time (4)

0
company-linked trustees

Sector coverage iSector coverageThe charitable fields this board's trustees govern in elsewhere, by Charity Commission classification. Excludes this charity.

Disability 4Education/training 4The Advancement Of Health Or Saving Of Lives 4

Gaps to watch

  • No commercial or business experience on the board
  • Mostly recent joiners - limited long-term continuity

Succession forecast iSuccession forecastThe number of board seats likely to open in the next twelve months - summed across the board from each dated trustee’s tenure - and the profile worth recruiting next. From the filed record, deterministic.

🔒 Succession forecast is a Pro feature - the board seats likely to open in the next year and the ideal next trustee. Explore Pro →

Sources

Official record from the Charity Commission register for England and Wales. Governance Register calculates the connections.

Record details
Registered charity number
1210529
Status
Registered
Governing document
CIO - FOUNDATION Registered 17 Oct 2024
Contact on the register
07966975279 · engage@actionforbpan.co.uk
Edition
Register edition compiled 27th September 2026
Labels
Official record from the register · Calculated derived by Governance Register. Anything added by an organisation or person is labelled as provided by them.

Contains public sector information licensed under the Open Government Licence v3.0. Report an issue · How we handle data