Registered charity (CIO) · Solihull
Digeorge Syndrome Foundation
Digeorge Syndrome Foundation is a registered charity (number 1210661) based in Solihull, governed by 4 trustees and chaired by Renu Bhopal-Padhiar. Source: Charity Commission register, updated 4th October 2026.
- 4 trustees
Official record Charity Commission · updated 4th October 2026 · Sources
Network
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Who leads it
Current trustees as listed by the Charity Commission, which does not publish previous trustees.
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About
- What it does
- General Charitable Purposes, The Advancement Of Health Or Saving Of Lives, Disability, Human Rights/religious Or Racial Harmony/equality Or Diversity
- Where
- Throughout England And Wales
- Website
- www.dgsf.co.uk (opens in a new tab)
- Registered
- 2024
Charitable objects
THE OBJECTS ARE:TO ADVANCE EDUCATION AND RAISE AWARENESS FOR THE PUBLIC BENEFIT THROUGHOUT ENGLAND AND WALES OF THE IMPACT OF DIGEORGE SYNDROME, AND RELATED ILLNESSES AND ISSUES THAT ARISE WITH THIS CONDITION BY:1/ SUPPORTING SCHOOLS, COMMUNITY GROUPS, FAMILIES AND OTHER APPLICABLE GROUPS AND ORGANISATIONS WHEREBY EDUCATING HOW TO SUPPORT CHILDREN AND YOUNG PEOPLE WITH DIGEORGE SYNDROME. THIS TO ALSO INCLUDE SOCIAL PRESCRIBING, LINKS WITH THE NHS, ETC.2/ PROVIDING ENRICHMENT AND RESPITE PROGRAMMES FOR THOSE WITH, OR SUPPORTING THOSE WITH DIGEORGE SYNDROME, TO INCLUDE A RESIDENTIAL RETREAT, WHEN POSSIBLE.3/ WORKING TO PROMOTE AND SUPPORT THOSE RESEARCHING PREVENTION, TREATMENT, SUPPORT AND ONGOING RESEARCH INTO DIGEORGE SYNDROME; OFFERING PARTNERSHIP, EXPERTISE AND GRANT FUNDING IF / OR WHEN APPLICABLE AND/OR REQUIRED.
Grants received
1 grant · £19,890 total360Giving data, published by funders. Coverage only includes funders who publish their grants to 360Giving, so these figures are a floor, not a complete picture.
Top funders
- The National Lottery Community Fund · £19,890
Most recent
- The National Lottery Community Fund
Board analysis
Board DNA
How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.
4 trustees on the board
- Renu Bhopal-Padhiar Chair
- Anushka Amliwala
- Christopher Laing
- Luke Passmore since 2025
First-time vs portfolio trustees
First-time (4)
- Renu Bhopal-Padhiar Chair
- Anushka Amliwala
- Christopher Laing
- Luke Passmore since 2025
Sector coverage iSector coverageThe charitable fields this board's trustees govern in elsewhere, by Charity Commission classification. Excludes this charity.
Gaps to watch
- No commercial or business experience on the board
- Mostly recent joiners - limited long-term continuity
Succession forecast iSuccession forecastThe number of board seats likely to open in the next twelve months - summed across the board from each dated trustee’s tenure - and the profile worth recruiting next. From the filed record, deterministic.
Sources
Official record from the Charity Commission register for England and Wales. Governance Register calculates the connections.
Record details
- Registered charity number
- 1210661
- Status
- Registered
- Governing document
- CIO - FOUNDATION Registered 25 Oct 2024
- Contact on the register
- 01217427560 · info@dgsf.co.uk
- Edition
- Register edition compiled 4th October 2026
- Labels
- Official record from the register · Calculated derived by Governance Register. Anything added by an organisation or person is labelled as provided by them.
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