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Registered charity (CIO) · Shrewsbury

Foundation Exploring Skeletal Dysplasias Together (Fest)

  • 5 trustees

Official record Charity Commission · updated 4th October 2026 · Sources

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Who leads it

Current trustees as listed by the Charity Commission, which does not publish previous trustees.

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About

What it does
Disability
Where
Throughout England And Wales
Website
www.myskeletaldysplasia.org.uk (opens in a new tab)
Registered
2025
Charitable objects

THE OBJECT OF THE CIO IS TO PRESERVE AND PROTECT THE HEALTH OF PERSONS AFFECTED BY SKELETAL DYSPLASIA COMMONLY KNOWN AS RESTRICTED GROWTH BY:- ADVANCING THE EDUCATION OF THE MEDICAL PROFESSION AND THE GENERAL PUBLIC ON THE SUBJECT OF GROWTH RESTRICTIVE SKELETAL DYSPLASIA; PROMOTING RESEARCH INTO THE MANAGEMENT OF SKELETAL DYSPLASIAS AND TO PUBLISH THE USEFUL RESULTS THEREOF; INFORMING ALL PEOPLE INTERESTED IN SKELETAL DYSPLASIAS BY COLLATING A COLLECTION OF THE MOST UP-TO-DATE SCIENTIFIC INFORMATION, BOTH MEDICAL AND PSYCHOSOCIAL; AND SHARING RESEARCH, INNOVATION AND COLLABORATIONS, AS WELL AS CLINICAL AND PATIENT SUPPORT EXPERIENCE, THAT CAN POSITIVELY CHANGE THE LIVES OF THOSE WITH SKELETAL DYSPLASIAS. NOTHING IN THIS CONSTITUTION SHALL AUTHORISE AN APPLICATION OF THE PROPERTY OF THE CIO FOR THE PURPOSES WHICH ARE NOT CHARITABLE IN ACCORDANCE WITH [SECTION 7 OF THE CHARITIES AND TRUSTEE INVESTMENT (SCOTLAND) ACT 2005] AND [SECTION 2 OF THE CHARITIES ACT (NORTHERN IRELAND) 2008].

Board analysis

Board DNA

How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.

5 trustees on the board

1.4y median 1y
average tenure
4y
longest tenure
0
trustees past 6 years
1.9y
average years in governance

First-time vs portfolio trustees

First-time (5)

0
company-linked trustees

Sector coverage iSector coverageThe charitable fields this board's trustees govern in elsewhere, by Charity Commission classification. Excludes this charity.

Disability 5

Gaps to watch

  • No commercial or business experience on the board
  • Narrow spread of causes across the board
  • Mostly recent joiners - limited long-term continuity

Succession forecast iSuccession forecastThe number of board seats likely to open in the next twelve months - summed across the board from each dated trustee’s tenure - and the profile worth recruiting next. From the filed record, deterministic.

🔒 Succession forecast is a Pro feature - the board seats likely to open in the next year and the ideal next trustee. Explore Pro →

Sources

Official record from the Charity Commission register for England and Wales. Governance Register calculates the connections.

Record details
Registered charity number
1215632
Status
Registered
Governing document
CIO - FOUNDATION Registered 05 Nov 2025
Contact on the register
07385284101 · myskeletaldysplasia@gmail.com
Edition
Register edition compiled 4th October 2026
Labels
Official record from the register · Calculated derived by Governance Register. Anything added by an organisation or person is labelled as provided by them.

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