Skip to content
Governance Register
Sign inFind yourself
Find yourselfSign in
Search How it works For organisations For professionals

Edition

United Kingdom (current)IrelandUnited StatesNew ZealandCanadaAustraliaScotlandNorthern Ireland
Registered charity (CIO) · No. 1215837 · Dyfed

Tommy's Bloom Syndrome UK

iSource and licenceOfficial record from the Charity Commission register for England and Wales. Governance Register calculates the connections.Register edition compiled 8 November 2026.Anything added by an organisation or person is labelled as provided by them.Contains public sector information licensed under the Open Government Licence v3.0.How we handle data
Income
N/A
Not reported
Expenditure
N/A
Not reported
Reserves
N/A
Small charityi
Reserves last
N/A
Small charityi
Spent on charitable work
N/A%
Small charityi
Trustees
5
1.4 years on average
Staff
N/A
Small charityi
Volunteers
N/A
Small charityi
How am I connected?

Overview

Tommy's Bloom Syndrome UK's network

5 people6 organisationsi5 listed on the board. 6 organisations share a board member with this charity.The large node is Tommy's Bloom Syndrome UK. The map shows two steps out from the public record. Hover a node to focus its connections; click one to open it.

The board

5 listediCurrent trustees as listed by the Charity Commission, which does not publish previous trustees.
NameRoleSinceOn the board
Leia PerryChair2025
1 yr
Jayne Helena Hughes B.E.M.Trustee2025
1 yr
Joshua ParryTrustee2025
1 yr
Megan Samantha Julie Ann SimpsonTrustee2025
1 yr
Michelle HowTrustee2025
1 yr
Under 5 years5 to 6 years6 years or more

Purposes and governing document

Register page (opens in a new tab)

Charitable objectsiAs filed with the Charity Commission. Clause breaks added for reading; the wording and capitals are unchanged.

TO PROMOTE AND PROTECT THE PHYSICAL AND MENTAL HEALTH OF PATIENTS WITH BLOOM SYNDROME IN THE UNITED KINGDOM BY:

  • 1.

    THE PROVISION OF INFORMATION, SUPPORT, EDUCATION AND PRACTICAL ADVICE TO PATIENTS, THEIR FAMILIES AND THEIR CARERS AS WELL AS RAISING AWARENESS OF ALL MATTERS RELATING TO BLOOM SYNDROME WITH THE GENERAL PUBLIC.

  • 2.

    PROMOTING AND SUPPORTING RESEARCH PROJECTS INTO THE CAUSES, DIAGNOSIS, PREVENTION, TREATMENT AND CURE OF BLOOM SYNDROME AND DISSEMINATING THE RESULTS OF SUCH RESEARCH.

What it does

  • General charitable purposes
  • Disability

Who it helps

  • Children/young people
  • People with disabilities

How it helps

  • Provides services
  • Provides advocacy/advice/information
Where it operates
Throughout England and Wales
Governing document
CIO - FOUNDATION Registered 19 Nov 2025 as filed
Register history
  • 19 November 2025Registered as a charitable incorporated organisation

Policies the charity says it has

  • Risk management
  • Investment
  • Safeguarding vulnerable beneficiaries
  • Conflicting interests
  • Volunteer management
  • Complaints handling
  • Internal charity financial controls policy and procedures
  • Safeguarding policy and procedures
  • Financial reserves policy and procedures
  • Complaints policy and procedures
  • Serious incident reporting policy and procedures
  • Internal risk management policy and procedures
  • Trustee expenses policy and procedures
  • Trustee conflicts of interest policy and procedures
  • Investing charity funds policy and procedures
  • Bullying and harassment policy and procedures
  • Social media policy and procedures

Source: Charity Commission for England and Wales, register of charities (governing document, classification, area of operation, register history and policies), Open Government Licence v3.0.

About

Website
www.tommysbloomsyndromeuk.org (opens in a new tab)
Registered
2025

Board

The board

5 listediCurrent trustees as listed by the Charity Commission, which does not publish previous trustees.
NameRoleSinceOn the board
Leia PerryChair2025
1 yr
Jayne Helena Hughes B.E.M.Trustee2025
1 yr
Joshua ParryTrustee2025
1 yr
Megan Samantha Julie Ann SimpsonTrustee2025
1 yr
Michelle HowTrustee2025
1 yr
Under 5 years5 to 6 years6 years or more

Who is on the board

iCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.
Average tenure
1y
median 1y
Longest tenure
1y
since 2025
Over 6 years
0
of 5 on the board
Years in governance
1y
per person, across all their boards
Also company directors
0
also sit on company boards
Joined in the last 3 years
5
of 5 on the board

5 trustees on the board

First-time vs portfolio trustees

First-time (5)

Sector coverageiThe charitable fields this board's trustees govern in elsewhere, by Charity Commission classification. Excludes this charity.

Disability 5General Charitable Purposes 5

Gaps to watch

  • No commercial or business experience on the board
  • Narrow spread of causes across the board
  • Mostly recent joiners - limited long-term continuity

Succession forecast

🔒 Succession forecast is a Pro feature - the board seats likely to open in the next year and the ideal next trustee. Explore Pro →

Network

Network

iThe large node is Tommy's Bloom Syndrome UK. Red nodes are organisations, white nodes are people. Dashed links are historical or inferred. Dashed blue-grey links are company secretaries. Click any node to explore.

Most connected

Working out who is most connected...

About

About

What it does
General Charitable Purposes, Disability
Where
Throughout England and Wales
Website
www.tommysbloomsyndromeuk.org (opens in a new tab)
Registered
2025
Charitable objects

TO PROMOTE AND PROTECT THE PHYSICAL AND MENTAL HEALTH OF PATIENTS WITH BLOOM SYNDROME IN THE UNITED KINGDOM BY: 1. THE PROVISION OF INFORMATION, SUPPORT, EDUCATION AND PRACTICAL ADVICE TO PATIENTS, THEIR FAMILIES AND THEIR CARERS AS WELL AS RAISING AWARENESS OF ALL MATTERS RELATING TO BLOOM SYNDROME WITH THE GENERAL PUBLIC. 2. PROMOTING AND SUPPORTING RESEARCH PROJECTS INTO THE CAUSES, DIAGNOSIS, PREVENTION, TREATMENT AND CURE OF BLOOM SYNDROME AND DISSEMINATING THE RESULTS OF SUCH RESEARCH.