Registered charity (CIO) · Middlesex
Bruck Syndrome
Bruck Syndrome is a registered charity (number 1216729) based in Middlesex, governed by 4 trustees and chaired by Mahdi Koutizadeh since 2025. Source: Charity Commission register, updated 4th October 2026.
- 4 trustees
Official record Charity Commission · updated 4th October 2026 · Sources
Network
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Who leads it
Current trustees as listed by the Charity Commission, which does not publish previous trustees.
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About
- What it does
- Education/training, The Advancement Of Health Or Saving Of Lives, Disability
- Where
- Throughout England And Wales, Scotland, Northern Ireland
- Website
- www.brucksyndrome.org (opens in a new tab)
- Registered
- 2026
Charitable objects
THE OBJECTS ARE:TO RELIEVE THE NEED AND PROTECT THE HEALTH OF INDIVIDUALS, THEIR FAMILIES AND CARERS AFFECTED BY BRUCK SYNDROME ACROSS THE UK FOR THE PUBLIC BENEFIT BY:(1) PROVIDING ACTIVE COMMUNICATION BETWEEN THOSE DIAGNOSED WITH BRUCK SYNDROME OFFERING THEM FRIENDSHIP, REASSURANCE AND REDUCING THEIR SOCIAL ISOLATION. (2) RAISING AWARENESS OF BRUCK SYNDROME AND ITS IMPLICATIONS FOR THE INDIVIDUAL, THEIR FAMILY AND THE PUBLIC.(3) PROMOTING KNOWLEDGE, UNDERSTANDING AND ACKNOWLEDGEMENT OF BRUCK SYNDROME WITHIN THE MEDICAL PROFESSION AND SUPPORT SERVICES.(4) ENCOURAGING RESEARCH AND POTENTIAL TREATMENTS OF BRUCK SYNDROME AND ITS DISSEMINATION TO THE PUBLIC.
Board analysis
Board DNA
How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.
4 trustees on the board
- Mahdi Koutizadeh Chair since 2025
- Farzad Kootyzadeh since 2025
- Hadis Sharifian since 2026
- Zahra Koutizadeh since 2025
First-time vs portfolio trustees
First-time (4)
- Mahdi Koutizadeh Chair since 2025
- Farzad Kootyzadeh since 2025
- Hadis Sharifian since 2026
- Zahra Koutizadeh since 2025
Sector coverage iSector coverageThe charitable fields this board's trustees govern in elsewhere, by Charity Commission classification. Excludes this charity.
Gaps to watch
- No commercial or business experience on the board
- Mostly recent joiners - limited long-term continuity
Succession forecast iSuccession forecastThe number of board seats likely to open in the next twelve months - summed across the board from each dated trustee’s tenure - and the profile worth recruiting next. From the filed record, deterministic.
Sources
Official record from the Charity Commission register for England and Wales. Governance Register calculates the connections.
Record details
- Registered charity number
- 1216729
- Status
- Registered
- Governing document
- CIO - FOUNDATION Registered 04 Feb 2026
- Contact on the register
- 07525858565 · info@brucksyndrome.org
- Edition
- Register edition compiled 4th October 2026
- Labels
- Official record from the register · Calculated derived by Governance Register. Anything added by an organisation or person is labelled as provided by them.
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