The Broken Hearts Foundation

THE OBJECTS OF THE CIO ARETO PRESERVE AND PROTECT GOOD HEALTH FOR THE PUBLIC BENEFIT OF CHILDREN SUFFERING FROM THE RARE HEART CONDITION OF EBSTEINS ANOMALY BY:-• PROVIDING INFORMATION AND FINANCIAL SUPPORT TOWARDS OVERSEAS COSTS OF TREATMENT, WHERE TREATMENT OUTSIDE OF THE UK OFFERS THE BEST CLINICAL OUTCOME IN TERMS OF MORTALITY AND QUALITY OF LIFE;• RAISING, HOLDING AND ADMINISTERING FUNDS FOR THAT PURPOSE. THIS WILL ONLY APPLY IN CASES WHERE THERE IS CLINICAL EVIDENCE THAT OVERSEAS TREATMENT OFFERS THE BEST CHANCE OF SURVIVAL FOR AN EBSTEIN’S ANOMALY SUFFERER; AND• SUPPORTING RESEARCH INTO THE CAUSES OF EBSTEINS ANOMALY BY CITING ALL USEFUL RESULTS FROM EXISTING RECOGNISED MEDICAL JOURNALS AND RECOGNISED RESEARCH REPOSITORIES SUCH AS PUMED.ORG FOR THE PUBLIC BENEFIT;• THE CHARITY TRUSTEES COMMIT TO SEEKING AS MUCH UNDERSTANDING AS POSSIBLE OF RISK FACTORS THAT COULD LEAD TO THE EBSTEIN DEFECT IN NEWBORNS AND WHERE POSSIBLE TO SHARE THAT IN THE COMMUNITY FOR THE BENEFIT OF ALL.