Registered charity · Leeds
British Epilepsy Association
British Epilepsy Association is a registered charity (number 234343) based in Leeds, governed by 11 trustees and chaired by Jane Elizabeth Riley since 2014. Latest income £5.3m (2025). Source: Charity Commission register, updated 18th October 2026.
Also known as Epilepsy Action (Charity Commission)
- 11 trustees
- Income £5.3m (2025)
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Official record Charity Commission · updated 18th October 2026 · Sources · Free, no card or password
Network
The large node is British Epilepsy Association. Red nodes are organisations, white nodes are people. Dashed links are historical or inferred. Click any node to explore.
Who leads it
- Jane Elizabeth RileyChair · since 2014
- Deborah Louise CockayneTrustee · since 2026
- Deirdre BlackTrustee · since 2023
- Dr Peter CloughTrustee · since 2012
- James Christopher MarshTrustee · since 2026
- Joanne GreerTrustee · since 2021
- Katie StevensTrustee · since 2022
- Louise CookeTrustee · since 2026
- Nicola AdamsonTrustee · since 2024
- Sally Anne TaylorTrustee · since 2024
- Thomas Osborne MclaughlanTrustee · since 2022
Current trustees as listed by the Charity Commission, which does not publish previous trustees.
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Similar charities are matched by type of organisation or purpose and listed by latest income; shared trustees are formal board links. Neither is proof the organisations work together.
About
- What it does
- Education/training, The Advancement Of Health Or Saving Of Lives, Disability
- Where
- Throughout England And Wales, Scotland, Northern Ireland, Guernsey and more
- Website
- www.epilepsy.org.uk (opens in a new tab)
- Linked company
- British Epilepsy Association
- Registered
- 1964
Income and spending
- YearIncomeSpending
- 2025£5.3m£4.3m
- 2024£3.6m£4.3m
- 2023£2.8m£4.1m
Earlier years
- 2022£5.3m£3.5m
- 2021£3.3m£3.3m
Income trend, 2021 to 2025.
Charitable objects
(I) TO SUPPORT PEOPLE WITH EPILEPSY OR THOSE WITH AN INTEREST IN THE CONDITION(II) TO RAISE AWARENESS AND UNDERSTANDING OF THE CONDITIONAND(III) TO PROMOTE RESEARCH INTO EPILEPSY
Grants received
40 grants · £948,755 total360Giving data, published by funders. Coverage only includes funders who publish their grants to 360Giving, so these figures are a floor, not a complete picture.
Top funders
- The National Lottery Community Fund · £788,380 (31 grants)
- Garfield Weston Foundation · £135,000 (4 grants)
- SHAREGIFT · £10,000
- R S Macdonald Charitable Trust · £8,500 (2 grants)
- The Grocers' Charity · £5,000
Most recent
- The National Lottery Community Fund
- R S Macdonald Charitable Trust
Board analysis
Board DNA
How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.
11 trustees on the board
- Jane Elizabeth Riley Chair since 2014
- Deborah Louise Cockayne since 2026
- Deirdre Black since 2023
- Dr Peter Clough since 2012
- James Christopher Marsh since 2026
- Joanne Greer since 2021
- Katie Stevens since 2022
- Louise Cooke since 2026
- Nicola Adamson since 2024
- Sally Anne Taylor since 2024
- Thomas Osborne Mclaughlan since 2022
Trustees past 6 years
- Jane Elizabeth Riley Chair since 2014
- Dr Peter Clough since 2012
First-time vs portfolio trustees
First-time (10)
- Jane Elizabeth Riley Chair since 2014
- Deborah Louise Cockayne since 2026
- Deirdre Black since 2023
- Dr Peter Clough since 2012
- James Christopher Marsh since 2026
- Joanne Greer since 2021
- Louise Cooke since 2026
- Nicola Adamson since 2024
- Sally Anne Taylor since 2024
- Thomas Osborne Mclaughlan since 2022
Portfolio (1)
- Katie Stevens since 2022
Sector coverage iSector coverageThe charitable fields this board's trustees govern in elsewhere, by Charity Commission classification. Excludes this charity.
Commercial experience iCommercial experienceThe industries this board's members are company directors in, by Companies House SIC code. Excludes this organisation's own company.
Succession forecast iSuccession forecastThe number of board seats likely to open in the next twelve months - summed across the board from each dated trustee’s tenure - and the profile worth recruiting next. From the filed record, deterministic.
Health of the organisation facts side by side - the conclusion is yours
6.0 months of spending held in free reserves · median for charities its size: 3.9 months · was 9.3 in 2020
Sources
Official record from the Charity Commission register for England and Wales. Governance Register calculates the connections.
Record details
- Registered charity number
- 234343
- Status
- Registered
- Governing document
- MEMORANDUM AND ARTICLES OF ASSOCIATION INCORPORATED 25 MARCH 1964 AS AMENDED BY SPECIAL RESOLUTION DATED 3 MAY 1990, 23 JUNE 1994, 19 JUNE 1997, 17 JUNE 2006 AND 14 JUNE 2008. as amended on 29 Jun 2021 as amended on 09 Sept 2025
- Companies House
- Company number 00797997 · Active
- Contact on the register
- 01132108800 · epilepsy@epilepsy.org.uk
- Edition
- Register edition compiled 18th October 2026
- Labels
- Official record from the register · Calculated derived by Governance Register. Anything added by an organisation or person is labelled as provided by them.
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