Registered charity · Portsmouth
Williams Syndrome Foundation Limited
- 10 trustees
- Income £208k (2025)
Official record Charity Commission · updated 27th September 2026 · Sources
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Who leads it
- Paul Richard LawrieChair · since 2020
- Bethan VaseyTrustee · since 2022
- Dr Michael John WolfmanTrustee · since 2023
- Dr Paul Francis HeeryTrustee · since 2025
- Janet Bolaji Wanjiru LatinwoTrustee · since 2025
- Joanne Victoria CooperTrustee · since 2025
- John Roy FollissTrustee · since 2020
- Louise FiskTrustee · since 2012
- Patrick TaylorTrustee
- Stephanie Jayne SpencerTrustee · since 2022
Current trustees as listed by the Charity Commission, which does not publish previous trustees.
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About
- What it does
- The Advancement Of Health Or Saving Of Lives, Disability
- Where
- Throughout England And Wales, Scotland, Northern Ireland
- Website
- www.williams-syndrome.org.uk (opens in a new tab)
- Linked company
- Williams Syndrome Foundation
- Registered
- 1980
Income and spending
- YearIncomeSpending
- 2025£208k£197k
- 2024£220k£156k
- 2023£188k£295k
Earlier years
- 2022£159k£126k
- 2021£96k£88k
Income trend, 2021 to 2025.
Charitable objects
THE ADVANCEMENT OF PUBLIC EDUCATION AS TO AND RESEARCH INTO THE CAUSE, DIAGNOSIS, RECOGNITION, EFFECTS AND TREATMENT OF WILLIAMS SYNDROME AND OTHER RELATED CONDITIONS AND FOR THE TREATMENT, CARE, EDUCATION AND ASSISTANCE OF THOSE AFFECTED BY SUCH CONDITIONS WITHIN THE UNITED KINGDOM AND ELSEWHERE.
Grants received
1 grant · £19,500 total360Giving data, published by funders. Coverage only includes funders who publish their grants to 360Giving, so these figures are a floor, not a complete picture.
Top funders
- The National Lottery Community Fund · £19,500
Most recent
- The National Lottery Community Fund
Board analysis
Board DNA
How this board is put together, from Charity Commission trustee records and Companies House - deterministic, no AI.iBoard compositionCounted from the dated Charity Commission trustee register: the current board only, past trustees excluded.
10 trustees on the board
- Paul Richard Lawrie Chair since 2020
- Bethan Vasey since 2022
- Dr Michael John Wolfman since 2023
- Dr Paul Francis Heery since 2025
- Janet Bolaji Wanjiru Latinwo since 2025
- Joanne Victoria Cooper since 2025
- John Roy Folliss since 2020
- Louise Fisk since 2012
- Patrick Taylor
- Stephanie Jayne Spencer since 2022
Trustees past 6 years
- Paul Richard Lawrie Chair since 2020
- Louise Fisk since 2012
First-time vs portfolio trustees
First-time (10)
- Paul Richard Lawrie Chair since 2020
- Bethan Vasey since 2022
- Dr Michael John Wolfman since 2023
- Dr Paul Francis Heery since 2025
- Janet Bolaji Wanjiru Latinwo since 2025
- Joanne Victoria Cooper since 2025
- John Roy Folliss since 2020
- Louise Fisk since 2012
- Patrick Taylor
- Stephanie Jayne Spencer since 2022
Sector coverage iSector coverageThe charitable fields this board's trustees govern in elsewhere, by Charity Commission classification. Excludes this charity.
Commercial experience iCommercial experienceThe industries this board's members are company directors in, by Companies House SIC code. Excludes this organisation's own company.
Gaps to watch
- Narrow spread of causes across the board
Succession forecast iSuccession forecastThe number of board seats likely to open in the next twelve months - summed across the board from each dated trustee’s tenure - and the profile worth recruiting next. From the filed record, deterministic.
Health of the organisation facts side by side - the conclusion is yours
Sources
Official record from the Charity Commission register for England and Wales. Governance Register calculates the connections.
Record details
- Registered charity number
- 281014
- Status
- Registered
- Governing document
- MEMORANDUM AND ARTICLES OF ASSOCIATION INCORPORATED 15TH SEPTEMBER 1980 AS AMENDED ON 14 AUGUST 1995AS AMENDED BY SPECIAL RESOLUTION(S) DATED 13 OCT 2015 as amended on 27 Jul 2022 as amended on 16 Dec 2022
- Companies House
- Company number 01523794 · Active
- Contact on the register
- 02085671374 · enquiries@williams-syndrome.org.uk
- Edition
- Register edition compiled 27th September 2026
- Labels
- Official record from the register · Calculated derived by Governance Register. Anything added by an organisation or person is labelled as provided by them.
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