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Company

Northern Ireland Rare Disease Partnership

Northern Ireland Rare Disease Partnership is an active UK company (number NI611153), incorporated 2012, with 9 current directors including Eva Fox and Christine Rosemary Collins. Source: Companies House, updated 4th October 2026.

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Official record Companies House · updated 4th October 2026 · Sources

Network

The large node is Northern Ireland Rare Disease Partnership. Red nodes are organisations, white nodes are people. Sign in free to explore further.

Who leads it

Previous officers 37

  1. Julie Noelle Eastwood 2024-2024 Director View profile
  2. Jan Wright 2022-2024 Director View profile
  3. John Mcevoy 2022-2025 Director View profile
  4. Vanessa Boulanger 2022-2023 Director View profile
  5. Sarah Marie Callaghan 2022-2024 Director View profile
  6. Dr Conan Brian Donnelly 2021-2024 Director View profile
  7. Angela Lyn Phillips 2021-2023 Director View profile
  8. Dr Kerry Longmore 2021-2022 Director View profile
  9. Rosaline Callaghan 2021-2022 Director View profile
  10. Dr William John Duddy-Duguez 2019-2021 Director View profile
  11. Dr Stephanie Marie-Rose Duddy-Duguez 2019-2024 Director View profile
  12. Rhoda Jean Walker 2018-2022 Director View profile
  13. Cindy Helen Merrilees Mcknight 2018-2022 Director View profile
  14. Dr Helen Mcaneney 2018-2022 Director View profile
  15. Dr Nichola Mccullough 2017-2018 Director View profile
  16. Aodhan Barnes 2016-2018 Director View profile
  17. Gillian Cassidy 2016-2021 Director View profile
  18. Patricia Blaney 2016-2017 Director View profile
  19. Dr Tabib Dabir 2016-2022 Director View profile
  20. James Arthur Caldwell 2015-2022 Director View profile
  21. Julie Power 2015-2022 Director View profile
  22. Alexander Samuel Duncan 2015-2019 Director View profile
  23. Teresa Craig 2015-2016 Director View profile
  24. Alison Wilson 2013-2016 Director View profile
  25. Carol Mccullough 2013-2016 Director View profile
  26. David Christopher Finegan 2013-2016 Director View profile
  27. Sarah Marie Mccandless 2013-2014 Director View profile
  28. Farhana Ali 2013-2015 Director View profile
  29. Catherine Mary Mckillop 2012-2017 Director View profile
  30. Helen Agnes Mcclean 2012-2016 Director View profile
  31. Lesley Rooney 2012-2015 Director View profile
  32. Frances Mary Murphy 2012-2017 Director View profile
  33. Dr Fiona Jane Stewart 2012-2015 Director View profile
  34. Mark Cunningham 2012-2016 Director View profile
  35. Stephen Nutt 2012-2013 Director View profile
  36. Rosemary Catherine Arbuthnot 2012-2017 Director View profile
  37. James Arthur Caldwell 2017-2022 Secretary View profile

Directors and secretaries as filed at Companies House.

Do you help lead this organisation? Set up its network · How it works

About

Incorporated
13/02/2012

Ownership

Owned by (2) iOwned byIndividuals and companies registered as having significant control over this company, from the Companies House PSC (persons with significant control) register. People whose ownership could not be confirmed to one individual are not listed as confirmed owners.

  • Anne-Marie O'Loan
    significant influence (firm) · notified 2022-07-10
  • Fiona Marie Mclaughlin ceased 2019-03-01
    appoints directors · notified 2016-04-06
  • Possible match - name could not be confirmed to one individualiPossible matchThis PSC filing could not be confirmed to one individual. Not shown as confirmed ownership.

Group

  1. Northern Ireland Rare Disease Partnership is controlled by Anne-Marie O'Loan
    Evidence
    active significant influence (firm) · notified 2022-07-10 · source: Companies House PSC register

Ultimately controlled by Anne-Marie O'Loan.

Ownership paths are calculated from Companies House persons-with-significant-control filings. Each step shows the filed nature of control and dates; a step marked "ceased" is historical, not current.

Grants received

2 grants · £122,124 total

360Giving data, published by funders. Coverage only includes funders who publish their grants to 360Giving, so these figures are a floor, not a complete picture.

Top funders

  • The National Lottery Community Fund · £122,124 (2 grants)

Most recent

  • The National Lottery Community Fund £10,0002023-12-15
  • The National Lottery Community Fund £112,1242017-05-02
Board analysis

Board DNA

How this board is put together, from the Companies House officer record and Charity Commission trustee records - deterministic, no AI.iBoard compositionCounted from the dated Companies House officer record: the current directors only, past directors excluded.

9 directors on the board

2.2y median 1.5y
average tenure
4.1y
longest tenure
0
directors past 6 years

First-time vs portfolio directors

First-time (6)

Portfolio (3)

0
also govern a charity
1
left in the last 12 months

Where else this board sits iWhere else this board sitsThe charitable fields these directors govern in elsewhere, by Charity Commission classification. Excludes this company and any charity it is the legal face of.

Health and social care 1Professional services 1

The sectors these directors govern in elsewhere. This company, and any charity it is the legal face of, are excluded - counting them would just tell you what you are already looking at.

Gaps to watch

  • No director brings board experience from anywhere else
  • Narrow spread of sectors across the board

Where to look Suggested search: a director with board experience elsewhere; directors from a wider range of sectors.

Sources

Official record from Companies House. Governance Register calculates the connections.

Record details
Company number
NI611153
Status
Active
Type
PRI/LBG/NSC (Private, Limited by guarantee, no share capital, use of 'Limited' exemption)
Edition
Register edition compiled 4th October 2026
Labels
Official record from Companies House · Calculated derived by Governance Register.

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