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Governance Register
US nonprofit · EIN 020600697 · Charlottesville, VAiSource and licenceOrganisation record IRS Exempt Organizations Business Master File (EIN 020600697) - NTEE activity code, address.Board and officers IRS Form 990 annual filings, Part VII (directors, trustees, officers, key employees), read year by year to observe tenure.Latest return IRS Form 990 series e-file data - 990 for the year to 30 September 2025: assets, liabilities, staff, website, telephone, pay.Finances by year IRS Form 990 e-file data - total revenue and total expenses by tax year.Renewal outlook Computed by Governance Register from the observed filing history and filed revenue (us-approach-v4-clean). Not a statement that the organisation is recruiting.Deductibility IRS Publication 78 data (code PC), downloaded 18 October 2026.State registers Colorado Secretary of State (17 October 2026).Licence US Federal Government public domain.How we handle data

Angioma Alliance's network

10 peoplei10 people on this map.The large node is the subject of this page. Solid lines are what the register itself records (10). Form 990 filings give names without a person identifier; SEC insider filings carry a CIK.

The board

10 listediTime on the board is observed from the annual filings: the IRS files no appointment date, so the bar counts years from the first filing the person appears on - a lower bound, not a filed start date. Names are exactly as filed. The IRS publishes no person identifier, so this edition does not yet link a person across organisations.Tenure and departures are observed across annual filings. Observed tenure is a lower bound - a member may have joined before the first year on record. The organisation reported 10 voting members of its governing body on its latest Form 990 Part VI, which matches the board listed here.
NameRole as filedSinceOn the board
David Borland ChairChair2022
4 yrs
Anthony MayerDirector2018
8 yrs
Christina CamposDirector2023
3 yrs
Dorothy RobinsonDirector2023
3 yrs
Kandance Weems NorrisDirector2020
6 yrs
Karen BuckTreasurer2018
8 yrs
Kimberly Foley MDDirector2019
7 yrs
Rona Gomel AsheVice Chair2019
7 yrs
Sara Sukalich MDDirector2024
2 yrs
Tyler FairbankDirector2019
7 yrs
Under 5 years5 to 6 years6 years or more

Officers and senior leadership

2 listediNamed in Part VII as officers, key employees or highest-compensated staff - not board members, shown for completeness.
NameTitle as filedOn the filings
Amy L AkersChief Scientific Officersince 2018
Cornelia Lee PsydCEOsince 2023

Pay and hours

year to 30 September 2025iFrom Part VII of the Form 990: compensation reported for each officer, director, trustee, key employee and highest-paid staff member, and the average hours a week they report. Most board members are unpaid; a blank means nothing was reported. Pay from related organisations is shown separately.
NameTitle as filedHours a weekPay from the organisationRelated organisationsOther
Cornelia Lee PsydCEO40$181k
Jianbo HuIndustry Relations Directorr40$172k
Karen BuckDirector - Loa15$0
David BorlandChair5$0
Kenneth BrevoortTresurer5$0
John AndresDirector0.5$0
Sara Sukalich MDDirector0.5$0
Tyler FairbankDirector0.5$0
Joseph Zabramski MDDirector0.5$0
Kimberly Foley MDDirector0.5$0
Kandance Weems NorrisDirector0.5$0
Dorothy RobinsonVice Chair4$0

Colorado roster

12 listediOfficers, directors and trustees from the latest filing with the Colorado Secretary of State (document 20263025257). Titles are as filed; some entries are registered agents or custodians of records rather than board members. Source: data.colorado.gov, public domain.
NameTitle as filed
Kimberly Foley, MDDirector
David BorlandChair
Cornelia Lee, Psy. D.CEO
Sara Sukalich, MDDirector
Dorothy Robinson, JDVice Chair
John Andres, JDDirector
Kenneth BrevoortTreasurer
Kandance Norris, JD, MBADirector
Barry SabloffDirector
Kenneth Brevoort
Joseph Zabramski, MDDirector
Tyler FairbankDirector

About

Legal name
Angioma Alliance
EIN
020600697
Address
977 Seminole Trail Box 367, Charlottesville, VA, 22901-2824
State
Virginia
Mission
The mission of angioma alliance is to drive a cure for cavernous malformation and improves lives for all affected. (as filed on the Form 990)
Activity (NTEE)
G80 Voluntary health associations and medical disciplines
IRS classification
501(c)03 (tax-exempt under section 501(c)(3) where shown)
Classified purpose
Voluntary Health Associations & Medical Disciplines
Size band
6 (IRS master file code)
Formed
2002
Principal officer
Cornelia Lee (as named on the Form 990)
IRS ruling date
1 July 2002
Status
Code 01 (unconditional exemption)
Form 990 filings on record
7, latest 2024
IRS Publication 78
PC (contributions deductible)

Most connected

Longest observed on the filings

≥8years on the filingsAnthony Mayer
≥8years on the filingsKaren Buck
≥7years on the filingsKimberly Foley MD
≥7years on the filingsRona Gomel Ashe

Latest return

year to 30 September 2025iFigures from the newest Form 990 or 990-EZ in the IRS e-file releases of 2025 and 2026, for the year ending 30 September 2025. US dollars, as filed.
Total assets
$1.1m
Total liabilities
$53k
Net assets or fund balances
$1.1m
Contributions and grants received
$1.3m
Program service revenue
$0
Employees
0
Volunteers
35

Filed finances

1 yeariTotals as filed on the IRS Form 990 (revenue and expenses), by tax year.
Tax yearTotal revenueTotal expensesSurplus or deficit
2023$1.3m$1.4mDeficit $67k

As filed on the IRS Form 990. US dollars.

State registration

1 entityiBusiness-entity registers published by US states. These records are matched to this organisation by name and state, not by EIN, and are labelled as likely matches. Street addresses are not shown.
Angioma Alliance likely matchiMatched by exact name and state (and ZIP where shown). State registers do not publish EINs, so this is not a confirmed match. Source: Colorado Secretary of State (CDOS), business entities (data.colorado.gov 4ykn-tg5h). Licence: public domain. Data last fetched 18 October 2026.
State
Colorado
Entity type
nonprofit corporation
Status
Good Standing
Formed
19 December 2011
Registered agent
Jenna Lee Gibbens (city and state not held)

This register does not publish officers or directors.