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Governance Register
US nonprofit · EIN 043294138 · Damascus, MDiSource and licenceOrganisation record IRS Exempt Organizations Business Master File (EIN 043294138) - NTEE activity code, address.Board and officers IRS Form 990 annual filings, Part VII (directors, trustees, officers, key employees), read year by year to observe tenure.Latest return IRS Form 990 series e-file data - 990 for the year to 30 September 2025: assets, liabilities, staff, website, telephone, pay, grants paid (Schedule I).Finances by year IRS Form 990 e-file data - total revenue and total expenses by tax year.Renewal outlook Computed by Governance Register from the observed filing history and filed revenue (us-approach-v4-clean). Not a statement that the organisation is recruiting.Deductibility IRS Publication 78 data (code PC), downloaded 18 October 2026.Licence US Federal Government public domain.How we handle data

PXE International Inc's network

7 peoplei7 people on this map.The large node is the subject of this page. Solid lines are what the register itself records (7). Form 990 filings give names without a person identifier; SEC insider filings carry a CIK.

The board

7 listediTime on the board is observed from the annual filings: the IRS files no appointment date, so the bar counts years from the first filing the person appears on - a lower bound, not a filed start date. Names are exactly as filed. The IRS publishes no person identifier, so this edition does not yet link a person across organisations.Tenure and departures are observed across annual filings. Observed tenure is a lower bound - a member may have joined before the first year on record. The organisation reported 8 voting members of its governing body on its latest Form 990 Part VI, which matches the board listed here.
NameRole as filedSinceOn the board
Barbara DrewiczDirector2018
8 yrs
Claire DriscollDirector2023
3 yrs
Jessica HarperDirector2018
8 yrs
Joseph MaasTreasurer2018
8 yrs
Kathy HerseyDirector2018
8 yrs
Lionel BercovitchMedical Director2018
8 yrs
Sam HarperDirector2020
6 yrs
Under 5 years5 to 6 years6 years or more

Officers and senior leadership

1 listediNamed in Part VII as officers, key employees or highest-compensated staff - not board members, shown for completeness.
NameTitle as filedOn the filings
Sharon TerryCEOsince 2018

Pay and hours

year to 30 September 2025iFrom Part VII of the Form 990: compensation reported for each officer, director, trustee, key employee and highest-paid staff member, and the average hours a week they report. Most board members are unpaid; a blank means nothing was reported. Pay from related organisations is shown separately.
NameTitle as filedHours a weekPay from the organisationRelated organisationsOther
Lionel BercovitchMedical Director1$0
Joseph MaasTreasurer4$0
Barbara DrewiczDirector6$0
Jessica HarperDirector1$0
Kathy HerseyDirector1$0
Sam HarperDirector1$0
Claire DriscollDirector4$0
Sharon TerryCEO20$0

No pay was reported for anyone in Part VII on this return.

About

Legal name
Pxe International Inc
EIN
043294138
Address
26400 Woodfield Rd Unit 189, Damascus, MD, 20872-7509
State
Maryland
Mission
Pxe international inc. Initiates and conducts research, educates clinicians, and supports individuals affected by pseudoxanthoma elasticum (pxe). (as filed on the Form 990)
Activity (NTEE)
G80 Voluntary health associations and medical disciplines
IRS classification
501(c)03 (tax-exempt under section 501(c)(3) where shown)
Classified purpose
Voluntary Health Associations & Medical Disciplines
Size band
4 (IRS master file code)
Formed
1995
Principal officer
Sharon Terry (as named on the Form 990)
IRS ruling date
1 May 1996
Status
Code 01 (unconditional exemption)
Form 990 filings on record
7, latest 2024
IRS Publication 78
PC (contributions deductible)

Most connected

Longest observed on the filings

≥8years on the filingsBarbara Drewicz
≥8years on the filingsJessica Harper
≥8years on the filingsJoseph Maas
≥8years on the filingsKathy Hersey

Latest return

year to 30 September 2025iFigures from the newest Form 990 or 990-EZ in the IRS e-file releases of 2025 and 2026, for the year ending 30 September 2025. US dollars, as filed.
Total assets
$290k
Total liabilities
$80k
Net assets or fund balances
$210k
Contributions and grants received
$690k
Program service revenue
$0
Grants and similar paid out
$223k
Employees
3

Filed finances

1 yeariTotals as filed on the IRS Form 990 (revenue and expenses), by tax year.
Tax yearTotal revenueTotal expensesSurplus or deficit
2023$680k$739kDeficit $59k

As filed on the IRS Form 990. US dollars.

Grants paid

1 listediFrom Schedule I of the Form 990: grants and assistance to organisations in the United States, largest first (up to 25). Schedule I is filed only by organisations that gave more than $5,000 to any one recipient.
RecipientPurposeAmount
Thomas Jefferson UniversityTo support research staff and facilities for the establishment of the pxe international center of excellence in research and clinical care.$223k