Choroideremia Research Foundation Inc
Donations deductibleChoroideremia Research Foundation Inc's network
20 people5 organisationsi20 people and 5 organisations on this map.The large node is the subject of this page. Solid lines are what the register itself records (20). Violet dotted lines (5) are likely: the same full name sits on the current board of another organisation in the same register and region. Form 990 filings give names without a person identifier; SEC insider filings carry a CIK. It may be a different person.The board
20 listediTime on the board is observed from the annual filings: the IRS files no appointment date, so the bar counts years from the first filing the person appears on - a lower bound, not a filed start date. Names are exactly as filed. The IRS publishes no person identifier, so this edition does not yet link a person across organisations in the tables. The network map shows same-name matches as likely links only, never as confirmed.Time served and departures are observed across annual filings. Observed time served is a lower bound - a member may have joined before the first year on record. The organisation reported 20 voting members of its governing body on its latest Form 990 Part VI, which matches the board listed here.| Name | Role as filed | Since | On the board |
|---|---|---|---|
| Aurelie Harp | Director | 2023 | 3 yrs |
| Brian Counter | Director | 2023 | 3 yrs |
| Brian Mayer | Company secretary | 2019 | 7 yrs |
| Dr John-Ross Rizzo | Director | 2025 | 1 yr |
| Jason McKinney | Director | 2019 | 7 yrs |
| John Trott | Vice President | 2018 | 8 yrs |
| Jonathan Salois (also filed as Jon Salois, Jon Salois) | Director | 2021 | 5 yrs |
| Kayla Schiller | Treasurer | 2021 | 5 yrs |
| Liza Zumsteg | Treasurer | 2025 | 1 yr |
| Michael Laengsfeld | Director | 2019 | 7 yrs |
| Michael Mullen | Vice President | 2018 | 8 yrs |
| Mary Porter | Director | 2024 | 2 yrs |
| Neal Bench | President | 2018 | 8 yrs |
| Naama Goldman-Einhorn | Director | 2025 | 1 yr |
| Robert Hillier (also filed as Bob Hillier) | Director | 2023 | 3 yrs |
| Rachel Oster | Director | 2024 | 2 yrs |
| Sarah Thompson | Director | 2025 | 1 yr |
| Tara Cassidy-Driscoll | Director | 2021 | 5 yrs |
| Thomas Driscoll | Director | 2019 | 7 yrs |
| Yamil Rosete-Rodriguez | Director | 2025 | 1 yr |
Officers and senior leadership
7 listediNamed in Part VII as officers, key employees or highest-compensated staff - not board members, shown for completeness.| Name | Title as filed | On the filings |
|---|---|---|
| Brian Mayer | Company secretary | since 2023 |
| John Trott | 1st Vice Pres. | since 2023 |
| Kathi Wagner | Executive Dir. | since 2021 |
| Kayla Schiller | Treasurer | since 2023 |
| Michael Mullen | 2nd Vice Pres. | since 2023 |
| Neal Bench | President | since 2023 |
| Tara Cassidy-Driscoll | Treasurer | 2023 |
Pay and hours
year to 30 June 2025iFrom Part VII of the Form 990: compensation reported for each officer, director, trustee, key employee and highest-paid staff member, and the average hours a week they report. Most board members are unpaid; a blank means nothing was reported. Pay from related organisations is shown separately.| Name | Title as filed | Hours a week | Pay from the organisation | Related organisations | Other |
|---|---|---|---|---|---|
| Kathi Wagner | Executive Director | 40 | $108k | ||
| Neal Bench | President | 1 | $0 | ||
| John Trott | Vice President | 1 | $0 | ||
| Michael Mullen | Vice President | 1 | $0 | ||
| Tara Cassidy-Driscoll | Director | 1 | $0 | ||
| Brian Mayer | Secretary | 1 | $0 | ||
| Michael Laengsfeld | Director | 1 | $0 | ||
| Jason McKinney | Director | 1 | $0 | ||
| Dr John-Ross Rizzo | Director | 1 | $0 | ||
| Liza Zumsteg | Treasurer | 1 | $0 | ||
| Jon Salois | Director | 1 | $0 | ||
| Kayla Schiller | Treasurer | 1 | $0 | ||
| Bob Hillier | Director | 1 | $0 | ||
| Brian Counter | Director | 1 | $0 | ||
| Aurelie Harp | Director | 1 | $0 | ||
| Yamil Rosete-Rodriguez | Director | 1 | $0 | ||
| Sarah Thompson | Director | 1 | $0 | ||
| Mary Porter | Director | 1 | $0 | ||
| Rachel Oster | Director | 1 | $0 | ||
| Naama Goldman-Einhorn | Director | 1 | $0 | ||
| Thomas Driscoll | Director | 1 | $0 |
About
- Legal name
- Choroideremia Research Foundation Inc
- EIN
- 043511754
- Address
- 23 E Brundreth St, Springfield, MA, 01109-2110
- State
- Massachusetts
- Mission
- To raise funds in support of scientific research leading to a treatment or cure of Choroideremia, a hereditary retinal-degenerative disease that causes blindness; to educate people affected by the disease and the public. (as filed on the Form 990)
- Activity (NTEE)
- U05 Science and technology research
- IRS classification
- 501(c)03 (tax-exempt under section 501(c)(3) where shown)
- Classified purpose
- Science & Technology
- Size band
- 5 (IRS master file code)
- Formed
- 2000
- Principal officer
- Kathi Wagner (as named on the Form 990)
- IRS ruling date
- 1 March 2001
- Status
- Code 01 (unconditional exemption)
- Form 990 filings on record
- 8, latest 2025
- IRS Publication 78
- PC (contributions deductible)
Most connected
Longest observed on the filings
≥8years on the filingsJohn Trott
≥8years on the filingsMichael Mullen
≥8years on the filingsNeal Bench
≥7years on the filingsBrian Mayer
Latest return
year to 30 June 2025iFigures from the newest Form 990 or 990-EZ in the IRS e-file releases of 2025 and 2026, for the year ending 30 June 2025. US dollars, as filed.- Total assets
- $957k
- Total liabilities
- $0
- Net assets or fund balances
- $957k
- Contributions and grants received
- $932k
- Program service revenue
- $0
- Grants and similar paid out
- $419k
- Employees
- 6
- Volunteers
- 200
Filed finances
1 yeariTotals as filed on the IRS Form 990 (revenue and expenses), by tax year.| Tax year | Total revenue | Total expenses | Surplus or deficit |
|---|---|---|---|
| 2023 | $699k | $689k | $10k |
As filed on the IRS Form 990. US dollars.
Grants paid
4 listediFrom Schedule I of the Form 990: grants and assistance to organisations in the United States, largest first (up to 25). Schedule I is filed only by organisations that gave more than $5,000 to any one recipient.| Recipient | Purpose | Amount |
|---|---|---|
| University of Wisconson | General Support | $100k |
| University of Pennsylvannia | General Support | $59k |
| University of Virginia | General Support | $31k |
| University of Michigan | General Support | $25k |