Lewy Body Dementia Association Inc
Donations deductibleLewy Body Dementia Association Inc's network
10 peoplei10 people on this map.The large node is the subject of this page. Solid lines are what the register itself records (10). Form 990 filings give names without a person identifier; SEC insider filings carry a CIK.The board
10 listediTime on the board is observed from the annual filings: the IRS files no appointment date, so the bar counts years from the first filing the person appears on - a lower bound, not a filed start date. Names are exactly as filed. The IRS publishes no person identifier, so this edition does not yet link a person across organisations.Tenure and departures are observed across annual filings. Observed tenure is a lower bound - a member may have joined before the first year on record. The organisation reported 10 voting members of its governing body on its latest Form 990 Part VI, which matches the board listed here.| Name | Role as filed | Since | On the board |
|---|---|---|---|
| Andy Matteis | Co-Vice President | 2020 | 6 yrs |
| Angela Lunde | Member | 2023 | 3 yrs |
| Anitha RAO MD | Member | 2022 | 4 yrs |
| Carla Abdelnour MD (also filed as Carla Abdelnour) | Member | 2022 | 4 yrs |
| Jeffrey Jacob | Member | 2023 | 3 yrs |
| Marshall Cannon | Co-Vice President | 2020 | 6 yrs |
| Rodney Witcher | Member | 2022 | 4 yrs |
| Roger Bean | Treasurer | 2020 | 6 yrs |
| Sarah Sung | Company secretary | 2022 | 4 yrs |
| Shannon McCarty-Caplan | President | 2020 | 6 yrs |
Under 5 years5 to 6 years6 years or more
Officers and senior leadership
7 listediNamed in Part VII as officers, key employees or highest-compensated staff - not board members, shown for completeness.| Name | Title as filed | On the filings |
|---|---|---|
| Allison Feldman | Executive Director | since 2022 |
| Angela Taylor | Vice President of Strategic Initiatives | since 2022 |
| Ian Richard | Vice President of Development | since 2022 |
| Julia Wood | Director of Professional and Community Education | since 2022 |
| Keith Fargo | Director of Scientific Initiatives | 2023 |
| Mark Wall | Executive Director | since 2020 |
| Todd Graham | Executive Director | since 2020 |
Pay and hours
year to 31 December 2025iFrom Part VII of the Form 990: compensation reported for each officer, director, trustee, key employee and highest-paid staff member, and the average hours a week they report. Most board members are unpaid; a blank means nothing was reported. Pay from related organisations is shown separately.| Name | Title as filed | Hours a week | Pay from the organisation | Related organisations | Other |
|---|---|---|---|---|---|
| Allison Feldman | Executive Director | 40 | $229k | $9k | |
| Keith Fargo | Director of Scientific Initiatives | 40 | $189k | $8k | |
| Sudhir Sivakumaran | Chief Scientific Officer | 40 | $140k | $3k | |
| Julia Wood | Director of Professional & Community Education | 40 | $123k | $2k | |
| Angela Taylor | Vice President of Strategic Partnerships | 40 | $119k | $3k | |
| Lena Fung | Director of Development | 40 | $114k | $3k | |
| Carla Abdelnour | Vice President | 5 | $0 | ||
| Genell Greenberg | Secretary | 5 | $0 | ||
| Jeffrey Jacob | Treasurer | 5 | $0 | ||
| Sarah Sung | President | 5 | $0 | ||
| Angela Lunde | Member | 2 | $0 | ||
| Anitha Rao MD | Member | 2 | $0 | ||
| Jeffrey Bodington | Member | 2 | $0 | ||
| Jennifer Goldman | Member | 2 | $0 | ||
| Mary-Kay Boler | Member | 2 | $0 | ||
| Rodney Witcher | Member | 2 | $0 |
Colorado roster
19 listediOfficers, directors and trustees from the latest filing with the Colorado Secretary of State (document 20263018407). Titles are as filed; some entries are registered agents or custodians of records rather than board members. Source: data.colorado.gov, public domain.| Name | Title as filed |
|---|---|
| Angela Lunde | Vice President |
| Sudhir Sivakumaran | Chief Scientific Officer |
| Julia Wood | Director of Education |
| Sarah Sung | Director at Large |
| Melvin Thompson | Director at Large |
| Allison Feldman | CEO |
| Anitha Rao | Director at Large |
| Marguerite Edwards | Sr. Manager of Administration |
| Steven Brannon | Director at Large |
| Gennell Greenberg | Director at Large |
| Carla Abdelnour | Director at Large |
| Rodney Witcher | Secretary |
| Jennifer Goldman | Director at Large |
| Jeff Bodington | |
| Jeffrey Jacob | Board President |
| Lena Fung | Director of Development |
| Jeffrey Jacob | President |
| Jeff Bodington | Treasurer |
| Mary Kay Boler | Director at Large |
About
- Legal name
- Lewy Body Dementia Association Inc
- EIN
- 050577683
- Address
- 912 Killian Hill Road Sw, Lilburn, GA, 30047-3110
- State
- Georgia
- Mission
- Through outreach, education, and research,we support those affected by lewy body dementias. (as filed on the Form 990)
- Activity (NTEE)
- G96 Voluntary health associations and medical disciplines
- IRS classification
- 501(c)03 (tax-exempt under section 501(c)(3) where shown)
- Classified purpose
- Voluntary Health Associations & Medical Disciplines
- Size band
- 8 (IRS master file code)
- Formed
- 2003
- IRS ruling date
- 1 February 2004
- Status
- Code 01 (unconditional exemption)
- Form 990 filings on record
- 4, latest 2023
- IRS Publication 78
- PC (contributions deductible)
Most connected
Longest observed on the filings
≥6years on the filingsAndy Matteis
≥6years on the filingsMarshall Cannon
≥6years on the filingsRoger Bean
≥6years on the filingsShannon McCarty-Caplan
Latest return
year to 31 December 2025iFigures from the newest Form 990 or 990-EZ in the IRS e-file releases of 2025 and 2026, for the year ending 31 December 2025. US dollars, as filed.- Total assets
- $10.8m
- Total liabilities
- $462k
- Net assets or fund balances
- $10.3m
- Contributions and grants received
- $4.3m
- Program service revenue
- $477k
- Grants and similar paid out
- $565k
- Employees
- 21
- Volunteers
- 200
Grants paid
25+ listediFrom Schedule I of the Form 990: grants and assistance to organisations in the United States, largest first (up to 25). Schedule I is filed only by organisations that gave more than $5,000 to any one recipient.| Recipient | Purpose | Amount |
|---|---|---|
| Duke University | Dementia Nomenclature Initiative Project | $150k |
| University of Florida | New Investigator Pilot Study Award Program | $50k |
| Stanford University | RCOE Coordinating Center | $50k |
| Park Nicollet Methodist Hospital Struthers Parkinson Center | Research Centers of Excellence | $13k |
| Virginia Commonwealth University | Research Centers of Excellence | $13k |
| Regents of the University of Michigan | Research Centers of Excellence | $13k |
| Medical University of South Carolina | Research Centers of Excellence | $13k |
| Oregon Health & Science University | Research Centers of Excellence | $13k |
| Dignity Health | Research Centers of Excellence | $13k |
| Columbia University in the City of New York | Research Centers of Excellence | $13k |
| Rush University Medical Center | Research Centers of Excellence | $13k |
| University of Colorado Denver | Research Centers of Excellence | $13k |
| Massachusetts General Hospital | Research Centers of Excellence | $13k |
| Regents of the University of California San Diego | Research Centers of Excellence | $13k |
| University of Washington | Research Centers of Excellence | $13k |
| Mayo Clinic Rochester | Research Centers of Excellence | $13k |
| Mayo Clinic Arizona | Research Centers of Excellence | $13k |
| Mayo Clinic Jacksonville | Research Centers of Excellence | $13k |
| Emory University Grants Depository Account | Research Centers of Excellence | $13k |
| University of Pittsburgh | Research Centers of Excellence | $13k |
| University of Texas Health San Antonio | Research Centers of Excellence | $13k |
| University of Florida | Research Centers of Excellence | $13k |
| Cleveland Clinic Foundation | Research Centers of Excellence | $13k |
| Ohio State University | Research Centers of Excellence | $13k |
| Houston Methodist Research Institute | Research Centers of Excellence | $13k |
State registration
1 entityiBusiness-entity registers published by US states. These records are matched to this organisation by name and state, not by EIN, and are labelled as likely matches. Street addresses are not shown.Lewy Body Dementia Association, Inc. likely matchiMatched by exact name and state (and ZIP where shown). State registers do not publish EINs, so this is not a confirmed match. Source: Colorado Secretary of State (CDOS), business entities (data.colorado.gov 4ykn-tg5h). Licence: public domain. Data last fetched 18 October 2026.
- State
- Colorado
- Entity type
- nonprofit corporation
- Status
- Good Standing
- Formed
- 8 September 2009
- Registered agent
- Business Filings Incorporated (city and state not held)
This register does not publish officers or directors.