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US nonprofit · EIN 061789643 · Beverly Hills, CAiSource and licenceOrganisation record IRS Exempt Organizations Business Master File (EIN 061789643) - NTEE activity code, address.Board and officers IRS Form 990 annual filings, Part VII (directors, trustees, officers, key employees), read year by year to observe tenure.Latest return IRS Form 990 series e-file data - 990 for the year to 31 December 2024: assets, liabilities, staff, website, telephone, pay, grants paid (Schedule I).Finances by year IRS Form 990 e-file data - total revenue and total expenses by tax year.Renewal outlook Computed by Governance Register from the observed filing history and filed revenue (us-approach-v4-clean). Not a statement that the organisation is recruiting.Deductibility IRS Publication 78 data (code PC), downloaded 18 October 2026.State registers Colorado Secretary of State (17 October 2026).Licence US Federal Government public domain.How we handle data

The Neuromuscular Disease Foundation

Donations deductible
Revenue
$65k
year to 31 December 2024
Expenses
$352k
year to 31 December 2024
Total assets
$660k
$1k liabilities
Net assets
$659k
assets less liabilities
Directors and trustees
10
4.0y av
Staff
0
10 volunteers
Left since last filing
0
no seats appear to have opened
Officers and senior staff
3
named in Part VII
How am I connected?

The Neuromuscular Disease Foundation's network

10 people2 organisationsi10 people and 2 organisations on this map.The large node is the subject of this page. Solid lines are what the register itself records (10). Violet dotted lines (2) are likely: the same full name sits on the current board of another organisation in the same register and region. Form 990 filings give names without a person identifier; SEC insider filings carry a CIK. It may be a different person.

The board

10 listediTime on the board is observed from the annual filings: the IRS files no appointment date, so the bar counts years from the first filing the person appears on - a lower bound, not a filed start date. Names are exactly as filed. The IRS publishes no person identifier, so this edition does not yet link a person across organisations in the tables. The network map shows same-name matches as likely links only, never as confirmed.Tenure and departures are observed across annual filings. Observed tenure is a lower bound - a member may have joined before the first year on record. The organisation reported 3 voting members of its governing body on its latest Form 990 Part VI; we list 10 in Part VII (Part VII does not always name every voting member).
NameRole as filedSinceOn the board
Amy CurranDirector2023
3 yrs
Coleman KennedyCEO2024
2 yrs
David DahlDirector2021
5 yrs
David GoldenCFO2024
2 yrs
David HaverimDirector2021
5 yrs
Isabella TyszlerDirector2023
3 yrs
Navid RachmanDirector2023
3 yrs
Suma Rao-GuptaDirector2023
3 yrs
Tahseen MozaffarDirector2019
7 yrs
Tara VoogelCompany secretary2023
3 yrs
Under 5 years5 to 6 years6 years or more

Officers and senior leadership

3 listediNamed in Part VII as officers, key employees or highest-compensated staff - not board members, shown for completeness.
NameTitle as filedOn the filings
Geoffrey GeeExecutive Directorsince 2021
Lale Jackson WelshCEOsince 2018
Nancy LurieDir of Opersince 2018

Pay and hours

year to 31 December 2024iFrom Part VII of the Form 990: compensation reported for each officer, director, trustee, key employee and highest-paid staff member, and the average hours a week they report. Most board members are unpaid; a blank means nothing was reported. Pay from related organisations is shown separately.
NameTitle as filedHours a weekPay from the organisationRelated organisationsOther
Navid RachmanDirector1$0
Tara VoogelSecretary1$0
Amy CurranDirector1$0
Tahseen MozaffarDirector1$0
Coleman KennedyCEO1$0
David GoldenCFO1$0
Suma Rao-GuptaDirector1$0
David HaverimDirector1$0
Isabella TyszlerDirector1$0
David DahlDirector1$0

No pay was reported for anyone in Part VII on this return.

Colorado roster

13 listediOfficers, directors and trustees from the latest filing with the Colorado Secretary of State (document 20213030477). Titles are as filed; some entries are registered agents or custodians of records rather than board members. Source: data.colorado.gov, public domain.
NameTitle as filed
Jason TabanBoard Member
Maria MontgomeryBoard Member
David HaverimBoard Member
Nancy LurieChief Operating Officer
Tahseen MozaffarBoard Member
Rachel LeibMedia & Operations Manager
Carolyn Yashari BecherSecretary
David DahlTreasurer
Lalé WelshCEO/Executive Director
Ralph LorenCo-Chair
Tricia MullinsCo-Chair
Alex MonsefBoard Member
David Dahl

About

Legal name
The Neuromuscular Disease Foundation
EIN
061789643
Address
269 S Beverly Dr, Beverly Hills, CA, 90212-3807
State
California
Mission
THE NEUROMUSCULAR DISEASE FOUNDATIONS (NDF) MISSION mission is to enhance the quality of the lives of people living with GNE Myopathy (also known as HIBM) through advocacy, education, outreach, and funding for critical research focused on treatments and a cure. (as filed on the Form 990)
Activity (NTEE)
G12 Voluntary health associations and medical disciplines
IRS classification
501(c)03 (tax-exempt under section 501(c)(3) where shown)
Classified purpose
Voluntary Health Associations & Medical Disciplines
Size band
5 (IRS master file code)
Formed
2006
Principal officer
Coleman Kennedy (as named on the Form 990)
IRS ruling date
1 January 2007
Status
Code 01 (unconditional exemption)
Form 990 filings on record
7, latest 2024
IRS Publication 78
PC (contributions deductible)

Most connected

Longest observed on the filings

≥7years on the filingsTahseen Mozaffar
≥5years on the filingsDavid Dahl
≥5years on the filingsDavid Haverim
≥3years on the filingsAmy Curran

Latest return

year to 31 December 2024iFigures from the newest Form 990 or 990-EZ in the IRS e-file releases of 2025 and 2026, for the year ending 31 December 2024. US dollars, as filed.
Total assets
$660k
Total liabilities
$1k
Net assets or fund balances
$659k
Contributions and grants received
$27k
Program service revenue
$0
Grants and similar paid out
$188k
Employees
0
Volunteers
10

Filed finances

1 yeariTotals as filed on the IRS Form 990 (revenue and expenses), by tax year.
Tax yearTotal revenueTotal expensesSurplus or deficit
2024$65k$352kDeficit $287k

As filed on the IRS Form 990. US dollars.

Grants paid

3 listediFrom Schedule I of the Form 990: grants and assistance to organisations in the United States, largest first (up to 25). Schedule I is filed only by organisations that gave more than $5,000 to any one recipient.
RecipientPurposeAmount
Abigail Wexner Research InstResearch Genetic Disorders$49k
University of WashingtonResearch Genetic Disorders$33k
Yale UniversityResearch Genetic Disorders$32k