National MPS Society Inc
Donations deductibleNational MPS Society Inc's network
12 peoplei12 people on this map.The large node is the subject of this page. Solid lines are what the register itself records (12). Form 990 filings give names without a person identifier; SEC insider filings carry a CIK.The board
12 listediTime on the board is observed from the annual filings: the IRS files no appointment date, so the bar counts years from the first filing the person appears on - a lower bound, not a filed start date. Names are exactly as filed. The IRS publishes no person identifier, so this edition does not yet link a person across organisations.Time served and departures are observed across annual filings. Observed time served is a lower bound - a member may have joined before the first year on record. The organisation reported 12 voting members of its governing body on its latest Form 990 Part VI, which matches the board listed here.| Name | Role as filed | Since | On the board |
|---|---|---|---|
| Carl Kapes | Director | 2022 | 4 yrs |
| Jason Madison | Director | 2018 | 8 yrs |
| Lisa Berry | Director | 2024 | 2 yrs |
| Lisa Todd | Board Chairm | 2018 | 8 yrs |
| Lynn Scott Hopkins | Treasurer | 2019 | 7 yrs |
| Maureen Cote | Company secretary | 2021 | 5 yrs |
| Patricia Espinal | Director | 2023 | 3 yrs |
| Sheri Wise | Director | 2019 | 7 yrs |
| Stacey Montgomery | Director | 2023 | 3 yrs |
| Stephanie Cozine | Director | 2020 | 6 yrs |
| Steve Amy Holland | Vice Chairma | 2019 | 7 yrs |
| Tamara Cullere | Director | 2022 | 4 yrs |
Officers and senior leadership
2 listediNamed in Part VII as officers, key employees or highest-compensated staff - not board members, shown for completeness.| Name | Title as filed | On the filings |
|---|---|---|
| Matthew Ellinwood | Cso | since 2020 |
| Terri Klein | President & | since 2018 |
Pay and hours
year to 31 December 2025iFrom Part VII of the Form 990: compensation reported for each officer, director, trustee, key employee and highest-paid staff member, and the average hours a week they report. Most board members are unpaid; a blank means nothing was reported. Pay from related organisations is shown separately.| Name | Title as filed | Hours a week | Pay from the organisation | Related organisations | Other |
|---|---|---|---|---|---|
| Terri Klein | President & | 55 | $156k | $5k | |
| Scott Loiler | Cso | 40 | $133k | $4k | |
| Matthew Ellinwood | Cso | 40 | $64k | $2k | |
| Sharon King | COO | 40 | $63k | $2k | |
| Carl Kapes | Treasurer | 1 | $0 | ||
| Stephanie Cozine | Secretary | 1 | $0 | ||
| Steve Amy Holland | Board Chairm | 1 | $0 | ||
| Maureen Cote | Vice Chairma | 1 | $0 | ||
| Steven Chesser | Director | 1 | $0 | ||
| Colleen Kraft | Director | 1 | $0 | ||
| Tamara Cullere | Director | 1 | $0 | ||
| Lisa Berry | Director | 1 | $0 | ||
| Sheri Lueb | Director | 1 | $0 | ||
| Scott Lynn Hopkins | Director | 1 | $0 | ||
| Patricia Espinal | Director | 1 | $0 | ||
| Jason Madison | Director | 1 | $0 |
Colorado roster
20 listediOfficers, directors and trustees from the latest filing with the Colorado Secretary of State (document 20263023465). Titles are as filed; some entries are registered agents or custodians of records rather than board members. Source: data.colorado.gov, public domain.| Name | Title as filed |
|---|---|
| Scott Loiler | Chief Scientific Officer |
| Terri Klein | CEO/President |
| Maureen Cote | Vice Chair |
| Angela Guajardo | |
| Sheri Lueb | Director |
| Stephanie Cozine | Secretary |
| King Sharon | Chief Operating Officer |
| Jason Madison | Director |
| Stephen Holland | Chairman of the Board |
| Patricia Espinal | Director |
| Amy Holland | Director |
| Steve Holland | Chairman of the Board |
| Colleen Kraft | Director |
| Lisa Berry | Director |
| Carl Kapes | Treasurer |
| Norman Matthew Ellinwood | Chief Scientific Officer Thru Apr |
| Lisa Todd | Director |
| Tamara Cullere | Director |
| Scott Hopkins | Director |
| Lynn Hopkins | Director |
About
- Legal name
- National MPS Society Inc
- EIN
- 112734849
- Address
- 1007 Slater Rd Ste 220, Durham, NC, 27703-8057
- State
- North Carolina
- Mission
- The national mps society exists to cure, support, and advocate for mucopolysaccharidosis (mps) and mucolipidosis (ml). (as filed on the Form 990)
- IRS classification
- 501(c)03 (tax-exempt under section 501(c)(3) where shown)
- Size band
- 6 (IRS master file code)
- Formed
- 1985
- Principal officer
- Terri Klein (as named on the Form 990)
- IRS ruling date
- 1 July 1986
- Status
- Code 01 (unconditional exemption)
- Form 990 filings on record
- 7, latest 2024
- IRS Publication 78
- PC (contributions deductible)
Most connected
Longest observed on the filings
≥8years on the filingsJason Madison
≥8years on the filingsLisa Todd
≥7years on the filingsLynn Scott Hopkins
≥7years on the filingsSheri Wise
Latest return
year to 31 December 2025iFigures from the newest Form 990 or 990-EZ in the IRS e-file releases of 2025 and 2026, for the year ending 31 December 2025. US dollars, as filed.- Total assets
- $6.6m
- Total liabilities
- $227k
- Net assets or fund balances
- $6.4m
- Contributions and grants received
- $4.8m
- Program service revenue
- $448k
- Grants and similar paid out
- $490k
- Employees
- 14
- Volunteers
- 75
Filed finances
1 yeariTotals as filed on the IRS Form 990 (revenue and expenses), by tax year.| Tax year | Total revenue | Total expenses | Surplus or deficit |
|---|---|---|---|
| 2024 | $2.1m | $2.5m | Deficit $398k |
As filed on the IRS Form 990. US dollars.
Grants paid
6 listediFrom Schedule I of the Form 990: grants and assistance to organisations in the United States, largest first (up to 25). Schedule I is filed only by organisations that gave more than $5,000 to any one recipient.| Recipient | Purpose | Amount |
|---|---|---|
| Regents of the Univ of California | Medical research | $100k |
| Greenwood Genetic Center Inc | Medical research | $50k |
| Stanford University | Medical research | $50k |
| Crosswalks Therapeutics Inc | Medical research | $50k |
| Massachusetts Eye & Ear Infirmary | Medical research | $23k |
| University of Minnesota Foundation | Medical research | $13k |