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Governance Register
US nonprofit · EIN 112779073 · Reston, VAiSource and licenceOrganisation record IRS Exempt Organizations Business Master File (EIN 112779073) - NTEE activity code, address.Board and officers IRS Form 990 annual filings, Part VII (directors, trustees, officers, key employees), read year by year to observe tenure.Latest return IRS Form 990 series e-file data - 990 for the year to 30 June 2025: assets, liabilities, staff, website, telephone, pay, grants paid (Schedule I).Finances by year IRS Form 990 e-file data - total revenue and total expenses by tax year.Renewal outlook Computed by Governance Register from the observed filing history and filed revenue (us-approach-v4-clean). Not a statement that the organisation is recruiting.Deductibility IRS Publication 78 data (code PC), downloaded 18 October 2026.State registers Colorado Secretary of State (17 October 2026).Licence US Federal Government public domain.How we handle data

Sjogrens Foundation Inc's network

17 people1 organisationi17 people and 1 organisation on this map.The large node is the subject of this page. Solid lines are what the register itself records (17). Violet dotted lines (1) are likely: the same full name sits on the current board of another organisation in the same register and region. Form 990 filings give names without a person identifier; SEC insider filings carry a CIK. It may be a different person.

The board

17 listediTime on the board is observed from the annual filings: the IRS files no appointment date, so the bar counts years from the first filing the person appears on - a lower bound, not a filed start date. Names are exactly as filed. The IRS publishes no person identifier, so this edition does not yet link a person across organisations in the tables. The network map shows same-name matches as likely links only, never as confirmed.Tenure and departures are observed across annual filings. Observed tenure is a lower bound - a member may have joined before the first year on record. The organisation reported 17 voting members of its governing body on its latest Form 990 Part VI, which matches the board listed here.
NameRole as filedSinceOn the board
Alan Baer MD ChairDirector, Chairman of Msac2021
5 yrs
Donald E Thomas MD ChairPast Chairman2019
7 yrs
Susan Barajas ChairChairman2019
7 yrs
Allissa LathamDirector2021
5 yrs
Brent P Goodman MDDirector2023
3 yrs
Daniel Wallace MDDirector2023
3 yrs
David SchraderDirector2020
6 yrs
Katie ForteCompany secretary2023
3 yrs
Nishant Gupta MDDirector2023
3 yrs
Robyn LaukienDirector2023
3 yrs
Rubenstein LisaDirector2025
1 yr
Sara McCoy MDDirector2023
3 yrs
Scott Lieberman MDDirector2019
7 yrs
Tammy DotsonDirector2023
3 yrs
Tom IatestaDirector2023
3 yrs
Vatinee Bunya MD MsceDirector2023
3 yrs
Vidya Sankar DMD MHSTreasurer2023
3 yrs
Under 5 years5 to 6 years6 years or moreShow all 17 →

Officers and senior leadership

9 listediNamed in Part VII as officers, key employees or highest-compensated staff - not board members, shown for completeness.
NameTitle as filedOn the filings
Ben BasloeVP of Philanthropy and Operationssince 2020
Janet E ChurchPresident and CEOsince 2021
Katherine MorlandVice President of Medical & Scientific2023
Katherine Morland HammittVP of Medical and Scientific Affairssince 2019
Lane DestroSr. Director, Corporate Partnerships & Strategic Isince 2024
Matthew MakaraSr. Dir of Research and Scientific Affairssince 2024
Michele ChampignyVP of Patient Services and Educationsince 2023
Sheriese DefruscioVice President of Marketingsince 2019
Steven TaylorChief Executive Officersince 2019

Pay and hours

year to 30 June 2025iFrom Part VII of the Form 990: compensation reported for each officer, director, trustee, key employee and highest-paid staff member, and the average hours a week they report. Most board members are unpaid; a blank means nothing was reported. Pay from related organisations is shown separately.
NameTitle as filedHours a weekPay from the organisationRelated organisationsOther
Janet ChurchPresident and CEO40$368k
Katherine Morland HammittVP of Medical and Scientific Affairs40$189k
Ben BasloeVP of Philanthropy and Operations40$135k
Lane DestroSr. Director, Corporate Partnerships & Strategic I40$125k
Michele ChampignyVP of Patient Services and Education40$116k
Matthew MakaraSenior Director of Research & Scientific Affairs40$114k
Susan BarajasChairman2$0
Donald E Thomas MDPast Chairman2$0
Vidya Sankar DMD MHSTreasurer2$0
Katie ForteSecretary2$0
Alan Baer MDDirector, Chairman of Msac2$0
Allissa LathamDirector2$0
Brent P Goodman MDDirector2$0
Daniel Wallace MDDirector2$0
David SchraderDirector2$0
Nishant Gupta MDDirector2$0
Robyn LaukienDirector2$0
Rubenstein LisaDirector2$0
Sara McCoy MDDirector2$0
Scott Lieberman MDDirector2$0
Tammy DotsonDirector2$0
Tom IatestaDirector2$0
Vatinee Bunya MD MsceDirector2$0

Colorado roster

23 listediOfficers, directors and trustees from the latest filing with the Colorado Secretary of State (document 20253039734). Titles are as filed; some entries are registered agents or custodians of records rather than board members. Source: data.colorado.gov, public domain.
NameTitle as filed
Alan BaerMsac Chair
Barahas SusanChairperson
Nishant GuptaVice Chair
Allissa LathamBoard Member
Scott LiebermanResearch Chair
Lane DestroSr. Director of Corporate Partnerships
Ghaith NoaisehBoard Member
Katherine Morland HammittVP Medical and Scientfic Affairs
Tammy DotsonBoard Member
Michele ChampignyVP of Patient Services & Education
Sara McCoyBoard Member
Benjamin BasloeSr VP of Operations & Philanthropy
Lisa RubensteinBoard Member
Susan BarajasChairperson
Robyn LaukienBoard Member
Janet Church
Daniel WallaceClinical Trials Consortium Chair
Anat GalorBoard Member
Janet E ChurchPresident & CEO
Vidya SankarTreasurer
Brent GoodmanBoard Member
Vatinee BunyaSecretary
Tom IatestaBoard Member

About

Legal name
Sjogrens Foundation Inc
EIN
112779073
Address
10701 Parkridge Blvd Ste 170, Reston, VA, 20191-5326
State
Virginia
Mission
The foundation's mission is to provide education and resources to sjogren's patients and their loved ones, provide credible resources/education to healthcare professionals, serve as the voice of all patients through advocacy and fund innovative research. (as filed on the Form 990)
Activity (NTEE)
G40 Voluntary health associations and medical disciplines
IRS classification
501(c)03 (tax-exempt under section 501(c)(3) where shown)
Classified purpose
Voluntary Health Associations & Medical Disciplines
Size band
7 (IRS master file code)
Formed
1983
Principal officer
Janet Church (as named on the Form 990)
IRS ruling date
1 May 1986
Status
Code 01 (unconditional exemption)
Form 990 filings on record
6, latest 2025
IRS Publication 78
PC (contributions deductible)

Most connected

Longest observed on the filings

≥7years on the filingsDonald E Thomas MD
≥7years on the filingsSusan Barajas
≥7years on the filingsScott Lieberman MD
≥6years on the filingsDavid Schrader

Latest return

year to 30 June 2025iFigures from the newest Form 990 or 990-EZ in the IRS e-file releases of 2025 and 2026, for the year ending 30 June 2025. US dollars, as filed.
Total assets
$5.2m
Total liabilities
$1.2m
Net assets or fund balances
$4m
Contributions and grants received
$4.7m
Program service revenue
$503k
Grants and similar paid out
$637k
Employees
16
Volunteers
684

Filed finances

1 yeariTotals as filed on the IRS Form 990 (revenue and expenses), by tax year.
Tax yearTotal revenueTotal expensesSurplus or deficit
2024$5.3m$4.2m$1.1m

As filed on the IRS Form 990. US dollars.

Grants paid

6 listediFrom Schedule I of the Form 990: grants and assistance to organisations in the United States, largest first (up to 25). Schedule I is filed only by organisations that gave more than $5,000 to any one recipient.
RecipientPurposeAmount
Foundation for the National Institutes of HealthResearch grant$200k
The University of UtahResearch grant$120k
Mass General BrighamResearch grant$100k
The Regents of the University of CaliforniaResearch grant$50k
Oklahoma Medical Research FoundationResearch grant$50k
University of Wisconsin-MadisonResearch grant$50k

State registration

1 entityiBusiness-entity registers published by US states. These records are matched to this organisation by name and state, not by EIN, and are labelled as likely matches. Street addresses are not shown.
Sjogrens Foundation Inc. likely matchiMatched by exact name and state (and ZIP where shown). State registers do not publish EINs, so this is not a confirmed match. Source: Colorado Secretary of State (CDOS), business entities (data.colorado.gov 4ykn-tg5h). Licence: public domain. Data last fetched 18 October 2026.
State
Colorado
Entity type
nonprofit corporation
Status
Good Standing
Formed
29 January 2019
Registered agent
Incorp Services, Inc. (city and state not held)

This register does not publish officers or directors.