Hermansky Pudlak Syndrome Network Inc
Donations deductibleRevenue
$425k
year to 31 July 2025
Expenses
$447k
year to 31 July 2025
Total assets
$270k
$16k liabilities
Net assets
$254k
assets less liabilities
Directors and trustees
5
5.6 years on average
Staff
6
employees, year to 31 July 2025
Left since last filing
0
no seats appear to have opened
Voting members
5
reported in Part VI
Hermansky Pudlak Syndrome Network Inc's network
5 people2 organisationsi5 people and 2 organisations on this map.The large node is the subject of this page. Solid lines are what the register itself records (5). Violet dotted lines (2) are likely: the same full name sits on the current board of another organisation in the same register and region. Form 990 filings give names without a person identifier; SEC insider filings carry a CIK. It may be a different person.The board
5 listediTime on the board is observed from the annual filings: the IRS files no appointment date, so the bar counts years from the first filing the person appears on - a lower bound, not a filed start date. Names are exactly as filed. The IRS publishes no person identifier, so this edition does not yet link a person across organisations in the tables. The network map shows same-name matches as likely links only, never as confirmed.Time served and departures are observed across annual filings. Observed time served is a lower bound - a member may have joined before the first year on record. The organisation reported 5 voting members of its governing body on its latest Form 990 Part VI, which matches the board listed here.| Name | Role as filed | Since | On the board |
|---|---|---|---|
| Becky Nieves | Board Member | 2025 | 1 yr |
| Donna Appell | President | 2018 | 8 yrs |
| Heather Kirkwood | VP/Sec | 2018 | 8 yrs |
| Nancy Lee | Board Member | 2025 | 1 yr |
| Richard Appell | Treasurer | 2018 | 8 yrs |
Under 5 years5 to 6 years6 years or more
Pay and hours
year to 31 July 2025iFrom Part VII of the Form 990: compensation reported for each officer, director, trustee, key employee and highest-paid staff member, and the average hours a week they report. Most board members are unpaid; a blank means nothing was reported. Pay from related organisations is shown separately.| Name | Title as filed | Hours a week | Pay from the organisation | Related organisations | Other |
|---|---|---|---|---|---|
| Donna Appell | President | 25 | $22k | ||
| Richard Appell | Treasurer | $0 | |||
| Heather Kirkwood | VP/Sec | $0 | |||
| Nancy Lee | Board Member | $0 | |||
| Becky Nieves | Board Member | $0 |
Colorado roster
7 listediOfficers, directors and trustees from the latest filing with the Colorado Secretary of State (document 20263021648). Titles are as filed; some entries are registered agents or custodians of records rather than board members. Source: data.colorado.gov, public domain.| Name | Title as filed |
|---|---|
| Kim Dominguez | |
| Richard Appell | Treasurer |
| Donna Appel | President |
| Heather Kirkwood | VP/Sec |
| Nancy Lee | Board Member |
| Donna Appell | President |
| Becky Nieves | Board Member |
About
- Legal name
- Hermansky Pudlak Syndrome Network Inc
- EIN
- 113283268
- Address
- 1 South Rd, Oyster Bay, NY, 11771-1905
- State
- New York
- Mission
- The hermansky-pudlak syndrome (hps) network's mission is to provide advocacy, fellowship, education and hope to individuals and families affected by hps. We fund and facilitate research. We develope and produce material and resourses for healthcare. (as filed on the Form 990)
- Activity (NTEE)
- P20Z Human services
- IRS classification
- 501(c)03 (tax-exempt under section 501(c)(3) where shown)
- Classified purpose
- Human Services
- Size band
- 4 (IRS master file code)
- Formed
- 1992
- Principal officer
- Donna Appell (as named on the Form 990)
- IRS ruling date
- 1 March 1998
- Status
- Code 01 (unconditional exemption)
- Form 990 filings on record
- 8, latest 2025
- IRS Publication 78
- PC (contributions deductible)
Most connected
Longest observed on the filings
≥8years on the filingsDonna Appell
≥8years on the filingsHeather Kirkwood
≥8years on the filingsRichard Appell
≥1years on the filingsBecky Nieves
Latest return
year to 31 July 2025iFigures from the newest Form 990 or 990-EZ in the IRS e-file releases of 2025 and 2026, for the year ending 31 July 2025. US dollars, as filed.- Total assets
- $270k
- Total liabilities
- $16k
- Net assets or fund balances
- $254k
- Contributions and grants received
- $425k
- Program service revenue
- $0
- Employees
- 6
Filed finances
3 yearsiTotals as filed on the IRS Form 990 (revenue and expenses), by tax year.| Tax year | Total revenue | Total expenses | Surplus or deficit |
|---|---|---|---|
| 2023 | $323k | $459k | Deficit $136k |
| 2023 | $323k | $459k | Deficit $136k |
| 2023 | $323k | $459k | Deficit $136k |
As filed on the IRS Form 990. US dollars.
State registration
1 entityiBusiness-entity registers published by US states. These records are matched to this organisation by name and state, not by EIN, and are labelled as likely matches. Street addresses are not shown.Hermansky Pudlak Syndrome Network Inc. likely matchiMatched by exact name and state (and ZIP where shown). State registers do not publish EINs, so this is not a confirmed match. Source: New York Department of State, active corporations (data.ny.gov n9v6-gdp6). Licence: New York open data terms of use. Data last fetched 18 October 2026.
- State
- New York
- Entity type
- Domestic Not-For-Profit Corporation
- Status
- Active
- Formed
- 24 August 1995
- Registered agent
- Not stated