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US nonprofit · EIN 134166186 · New York, NYiSource and licenceOrganisation record IRS Exempt Organizations Business Master File (EIN 134166186) - NTEE activity code, address.Board and officers IRS Form 990 annual filings, Part VII (directors, trustees, officers, key employees), read year by year to observe tenure.Latest return IRS Form 990 series e-file data - 990 for the year to 31 March 2025: assets, liabilities, staff, website, telephone, pay, grants paid (Schedule I).Finances by year IRS Form 990 e-file data - total revenue and total expenses by tax year.Renewal outlook Computed by Governance Register from the observed filing history and filed revenue (us-approach-v4-clean). Not a statement that the organisation is recruiting.Deductibility IRS Publication 78 data (code PC), downloaded 18 October 2026.Licence US Federal Government public domain.How we handle data

Families and Friends Supporting Cystic Fibrosis Care

Donations deductible
Revenue
$194k
year to 31 March 2025
Expenses
$328k
year to 31 March 2025
Total assets
$1.9m
$0 liabilities
Net assets
$1.9m
assets less liabilities
Directors and trustees
15
7.4y av
Staff
0
employees, year to 31 March 2025
Left since last filing
0
no seats appear to have opened
Voting members
15
reported in Part VI
How am I connected?

Families and Friends Supporting Cystic Fibrosis Care's network

15 people3 organisationsi15 people and 3 organisations on this map.The large node is the subject of this page. Solid lines are what the register itself records (15). Violet dotted lines (3) are likely: the same full name sits on the current board of another organisation in the same register and region. Form 990 filings give names without a person identifier; SEC insider filings carry a CIK. It may be a different person.

The board

15 listediTime on the board is observed from the annual filings: the IRS files no appointment date, so the bar counts years from the first filing the person appears on - a lower bound, not a filed start date. Names are exactly as filed. The IRS publishes no person identifier, so this edition does not yet link a person across organisations in the tables. The network map shows same-name matches as likely links only, never as confirmed.Tenure and departures are observed across annual filings. Observed tenure is a lower bound - a member may have joined before the first year on record. The organisation reported 15 voting members of its governing body on its latest Form 990 Part VI, which matches the board listed here.
NameRole as filedSinceOn the board
David ShepherdDirector2019
7 yrs
Gwen M Engelhard DDSPresident2019
7 yrs
Jill DaltonChief Financial Officer2019
7 yrs
John Z JacobyPresident Emeritus/Secreta2019
7 yrs
Judy NanceDirector2019
7 yrs
Kaitlyn CheneyDirector2019
7 yrs
Lisa Troyano-AscoleseDirector2019
7 yrs
Lumi CastlenDirector2019
7 yrs
Marnee McCarthyAssistant Secretary2019
7 yrs
Melissa ArgenioDirector2019
7 yrs
Melissa SmithDirector2019
7 yrs
Robert M HutchinsonDirector2019
7 yrs
Rose Marie MangerDirector2019
7 yrs
Sean McCooeDirector2019
7 yrs
Thomas G LeahyVice President2019
7 yrs
Under 5 years5 to 6 years6 years or moreShow all 15 →

Pay and hours

year to 31 March 2025iFrom Part VII of the Form 990: compensation reported for each officer, director, trustee, key employee and highest-paid staff member, and the average hours a week they report. Most board members are unpaid; a blank means nothing was reported. Pay from related organisations is shown separately.
NameTitle as filedHours a weekPay from the organisationRelated organisationsOther
Gwen M Engelhard DDSPresident0$0
Jill DaltonChief Financial Officer0$0
John Z JacobyPresident Emeritus/Secreta0$0
Marnee McCarthyAssistant Secretary0$0
Kaitlyn CheneyDirector0$0
Robert M HutchinsonDirector0$0
Sean McCooeDirector0$0
Judy NanceDirector0$0
Lumi CastlenDirector0$0
Melissa ArgenioDirector0$0
David ShepherdDirector0$0
Thomas G LeahyVice President0$0
Rose Marie MangerDirector0$0
Melissa SmithDirector0$0
Lisa Troyano-AscoleseDirector0$0

No pay was reported for anyone in Part VII on this return.

About

Legal name
Families and Friends Supporting Cystic Fibrosis Care
EIN
134166186
Address
55 E End Ave Apt 14d, New York, NY, 10028-7937
State
New York
Mission
Families and friends supporting cystic fibrosis care, inc. Is an organization committed to enhancing the quality of life of cystic fibrosis patients while they await a cure. The organization accomplishes this by supporting and endeavoring to improve the special programs available for patients. (as filed on the Form 990)
Activity (NTEE)
G80 Voluntary health associations and medical disciplines
IRS classification
501(c)03 (tax-exempt under section 501(c)(3) where shown)
Classified purpose
Voluntary Health Associations & Medical Disciplines
Size band
6 (IRS master file code)
Formed
2001
Principal officer
Gwen Engelhard (as named on the Form 990)
IRS ruling date
1 February 2002
Status
Code 01 (unconditional exemption)
Form 990 filings on record
5, latest 2025
IRS Publication 78
PC (contributions deductible)

Most connected

Longest observed on the filings

≥7years on the filingsDavid Shepherd
≥7years on the filingsGwen M Engelhard DDS
≥7years on the filingsJill Dalton
≥7years on the filingsJohn Z Jacoby

Latest return

year to 31 March 2025iFigures from the newest Form 990 or 990-EZ in the IRS e-file releases of 2025 and 2026, for the year ending 31 March 2025. US dollars, as filed.
Total assets
$1.9m
Total liabilities
$0
Net assets or fund balances
$1.9m
Contributions and grants received
$128k
Program service revenue
$0
Grants and similar paid out
$250k
Employees
0

Filed finances

1 yeariTotals as filed on the IRS Form 990 (revenue and expenses), by tax year.
Tax yearTotal revenueTotal expensesSurplus or deficit
2024$194k$328kDeficit $134k

As filed on the IRS Form 990. US dollars.

Grants paid

1 listediFrom Schedule I of the Form 990: grants and assistance to organisations in the United States, largest first (up to 25). Schedule I is filed only by organisations that gave more than $5,000 to any one recipient.
RecipientPurposeAmount
Northwell Health FoundationTo assist with the operating costs of a cystic fibrosis center at lenox hill hospital in new york that endeavors to enhance the quality of l$250k

State registration

1 entityiBusiness-entity registers published by US states. These records are matched to this organisation by name and state, not by EIN, and are labelled as likely matches. Street addresses are not shown.
Families And Friends Supporting Cystic Fibrosis Care likely matchiMatched by exact name and state (and ZIP where shown). State registers do not publish EINs, so this is not a confirmed match. Source: New York Department of State, active corporations (data.ny.gov n9v6-gdp6). Licence: New York open data terms of use. Data last fetched 18 October 2026.
State
New York
Entity type
Domestic Not-For-Profit Corporation
Status
Active
Formed
30 March 2001
Registered agent
Not stated