Lupus and Allied Diseases Association Inc
Donations deductibleRevenue
$987k
year to 30 September 2025
Expenses
$740k
year to 30 September 2025
Total assets
$2.8m
$0 liabilities
Net assets
$2.8m
assets less liabilities
Directors and trustees
10
5.7 years on average
Staff
0
108 volunteers
Left since last filing
0
no seats appear to have opened
Officers and senior staff
4
named in Part VII
Lupus and Allied Diseases Association Inc's network
10 peoplei10 people on this map.The large node is the subject of this page. Solid lines are what the register itself records (10). Form 990 filings give names without a person identifier; SEC insider filings carry a CIK.The board
10 listediTime on the board is observed from the annual filings: the IRS files no appointment date, so the bar counts years from the first filing the person appears on - a lower bound, not a filed start date. Names are exactly as filed. The IRS publishes no person identifier, so this edition does not yet link a person across organisations.Time served and departures are observed across annual filings. Observed time served is a lower bound - a member may have joined before the first year on record. The organisation reported 10 voting members of its governing body on its latest Form 990 Part VI, which matches the board listed here.| Name | Role as filed | Since | On the board |
|---|---|---|---|
| Anne M Zablotowicz | 2nd Vice President | 2020 | 6 yrs |
| Brian J Vogel | Director | 2020 | 6 yrs |
| David L Arntsen | Company secretary | 2020 | 6 yrs |
| Dina Thachet | Director | 2023 | 3 yrs |
| Jacqueline L Taylor | Director | 2020 | 6 yrs |
| Jane M Porter | Director | 2020 | 6 yrs |
| Kathleen A Arntsen | President and CEO | 2020 | 6 yrs |
| Lori A Vogel | Treasurer | 2020 | 6 yrs |
| Meghan P Valadez | Director | 2024 | 2 yrs |
| Sandra M Frear | 1st Vice President | 2020 | 6 yrs |
Under 5 years5 to 6 years6 years or more
Officers and senior leadership
4 listediNamed in Part VII as officers, key employees or highest-compensated staff - not board members, shown for completeness.| Name | Title as filed | On the filings |
|---|---|---|
| David L Arntsen | Company secretary | 2023 |
| Jacqueline L Taylor | 2nd Vice President | 2023 |
| Kathleen A Arntsen | President and CEO | 2023 |
| Sandra M Frear | 1st Vice President | 2023 |
Pay and hours
year to 30 September 2025iFrom Part VII of the Form 990: compensation reported for each officer, director, trustee, key employee and highest-paid staff member, and the average hours a week they report. Most board members are unpaid; a blank means nothing was reported. Pay from related organisations is shown separately.| Name | Title as filed | Hours a week | Pay from the organisation | Related organisations | Other |
|---|---|---|---|---|---|
| Kathleen A Arntsen | President and CEO | 25 | $0 | ||
| Lori A Vogel | Treasurer | 15 | $0 | ||
| David L Arntsen | Secretary | 12 | $0 | ||
| Sandra M Frear | 1st Vice President | 8 | $0 | ||
| Anne M Zablotowicz | 2nd Vice President | 14 | $0 | ||
| Jane M Porter | Director | 8 | $0 | ||
| Jacqueline L Taylor | Director | 4 | $0 | ||
| Dina Thachet | Director | 8 | $0 | ||
| Meghan P Valadez | Director | 4 | $0 | ||
| Brian J Vogel | Director | 4 | $0 |
No pay was reported for anyone in Part VII on this return.
About
- Legal name
- Lupus and Allied Diseases Association Inc
- EIN
- 161083229
- Address
- Po Box 170, Verona, NY, 13478-0170
- State
- New York
- Mission
- The Lupus and Allied Diseases Association's mission is to advocate for those affected by lupus and allied diseases through public awareness, education and research program initiatives to improve quality of life. (as filed on the Form 990)
- IRS classification
- 501(c)03 (tax-exempt under section 501(c)(3) where shown)
- Size band
- 6 (IRS master file code)
- Formed
- 1978
- Principal officer
- Kathleen A Arntsen (as named on the Form 990)
- IRS ruling date
- 1 November 1980
- Status
- Code 01 (unconditional exemption)
- Form 990 filings on record
- 6, latest 2025
- IRS Publication 78
- PC (contributions deductible)
Most connected
Longest observed on the filings
≥6years on the filingsAnne M Zablotowicz
≥6years on the filingsBrian J Vogel
≥6years on the filingsDavid L Arntsen
≥6years on the filingsJacqueline L Taylor
Latest return
year to 30 September 2025iFigures from the newest Form 990 or 990-EZ in the IRS e-file releases of 2025 and 2026, for the year ending 30 September 2025. US dollars, as filed.- Total assets
- $2.8m
- Total liabilities
- $0
- Net assets or fund balances
- $2.8m
- Contributions and grants received
- $894k
- Program service revenue
- $0
- Grants and similar paid out
- $565k
- Employees
- 0
- Volunteers
- 108
Filed finances
1 yeariTotals as filed on the IRS Form 990 (revenue and expenses), by tax year.| Tax year | Total revenue | Total expenses | Surplus or deficit |
|---|---|---|---|
| 2023 | $1.1m | $745k | $331k |
As filed on the IRS Form 990. US dollars.
Grants paid
5 listediFrom Schedule I of the Form 990: grants and assistance to organisations in the United States, largest first (up to 25). Schedule I is filed only by organisations that gave more than $5,000 to any one recipient.| Recipient | Purpose | Amount |
|---|---|---|
| Masonic Medical Research Institute | Lupus Research, Education Program | $225k |
| Lupus Research Alliance | Lupus Research | $150k |
| Carra | Pediatric Lupus Research | $89k |
| Rheumatology Research Foundation | Lupus Research, Preceptor | $75k |
| Lupus Foundation of America | Pediatric Lupus Research | $25k |
State registration
1 entityiBusiness-entity registers published by US states. These records are matched to this organisation by name and state, not by EIN, and are labelled as likely matches. Street addresses are not shown.Lupus And Allied Diseases Association, Inc. likely matchiMatched by exact name and state (and ZIP where shown). State registers do not publish EINs, so this is not a confirmed match. Source: New York Department of State, active corporations (data.ny.gov n9v6-gdp6). Licence: New York open data terms of use. Data last fetched 18 October 2026.
- State
- New York
- Entity type
- Domestic Not-For-Profit Corporation
- Status
- Active
- Formed
- 30 March 1978
- Registered agent
- N/A:the Corp. (city and state not held)