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Governance Register
US nonprofit · EIN 161569293 · Largo, FLiSource and licenceOrganisation record IRS Exempt Organizations Business Master File (EIN 161569293) - NTEE activity code, address.Board and officers IRS Form 990 annual filings, Part VII (directors, trustees, officers, key employees), read year by year to observe tenure.Latest return IRS Form 990 series e-file data - 990 for the year to 31 December 2024: assets, liabilities, staff, website, telephone, pay.Renewal outlook Computed by Governance Register from the observed filing history and filed revenue (us-approach-v4-clean). Not a statement that the organisation is recruiting.Deductibility IRS Publication 78 data (code PC), downloaded 18 October 2026.Licence US Federal Government public domain.How we handle data

Cardio Facio Cutaneous International Inc's network

8 peoplei8 people on this map.The large node is the subject of this page. Solid lines are what the register itself records (8). Form 990 filings give names without a person identifier; SEC insider filings carry a CIK.

The board

8 listediTime on the board is observed from the annual filings: the IRS files no appointment date, so the bar counts years from the first filing the person appears on - a lower bound, not a filed start date. Names are exactly as filed. The IRS publishes no person identifier, so this edition does not yet link a person across organisations.Tenure and departures are observed across annual filings. Observed tenure is a lower bound - a member may have joined before the first year on record. The organisation reported 8 voting members of its governing body on its latest Form 990 Part VI, which matches the board listed here.
NameRole as filedSinceOn the board
Alexis NashPresident2022
4 yrs
Darin IacobelliTreasurer2023
3 yrs
Glenda HuxBoard Member2019
7 yrs
Jeff KohlerPast President2018
8 yrs
Pilar MagoulasBoard Member2019
7 yrs
Richard BoyceBoard Member2019
7 yrs
Troy GreisenCEO2023
3 yrs
Vidya RamabadranBoard Member2022
4 yrs
Under 5 years5 to 6 years6 years or more

Officers and senior leadership

2 listediNamed in Part VII as officers, key employees or highest-compensated staff - not board members, shown for completeness.
NameTitle as filedOn the filings
Elizabeth RosenbaumVice President2018
Jennifer IacobelliPresidentsince 2018

Pay and hours

year to 31 December 2024iFrom Part VII of the Form 990: compensation reported for each officer, director, trustee, key employee and highest-paid staff member, and the average hours a week they report. Most board members are unpaid; a blank means nothing was reported. Pay from related organisations is shown separately.
NameTitle as filedHours a weekPay from the organisationRelated organisationsOther
Troy GreisenFormer Executive Director5$71k
Tuesdi DyerExecutive Dir.5$20k
Alexis NashPresident5$0
Jeff KohlerPast President5$0
Richard BoyceBoard Member5$0
Darin IacobelliTreasurer5$0
Vidya RamabadranBoard Member5$0
Glenda HuxSecretary5$0
Pilar MagoulasVice President5$0

About

Legal name
Cardio Facio Cutaneous International Inc
EIN
161569293
Address
3665 E Bay Dr Ste 204, Largo, FL, 33771-1989
State
Florida
Mission
CFC International's mission is to improve the quality of life for individuals with Cardiofaciocutaneous Syndrome and their families through support, research, awareness, and education. Our vision is to advance understanding and treatment of CFC syndrome. We achieve our mission and seek our vision by providing comprehensive educational materials, a robust website, condition management... (as filed on the Form 990)
Activity (NTEE)
B99 Education
IRS classification
501(c)03 (tax-exempt under section 501(c)(3) where shown)
Classified purpose
Education
Size band
4 (IRS master file code)
IRS ruling date
1 October 1999
Status
Code 01 (unconditional exemption)
Form 990 filings on record
5, latest 2023
IRS Publication 78
PC (contributions deductible)

Most connected

Longest observed on the filings

≥8years on the filingsJeff Kohler
≥7years on the filingsGlenda Hux
≥7years on the filingsPilar Magoulas
≥7years on the filingsRichard Boyce

Latest return

year to 31 December 2024iFigures from the newest Form 990 or 990-EZ in the IRS e-file releases of 2025 and 2026, for the year ending 31 December 2024. US dollars, as filed.
Total assets
$345k
Total liabilities
$0
Net assets or fund balances
$345k
Contributions and grants received
$101k
Program service revenue
$58k
Employees
4
Volunteers
29