Cardio Facio Cutaneous International Inc
Donations deductibleCardio Facio Cutaneous International Inc's network
8 peoplei8 people on this map.The large node is the subject of this page. Solid lines are what the register itself records (8). Form 990 filings give names without a person identifier; SEC insider filings carry a CIK.The board
8 listediTime on the board is observed from the annual filings: the IRS files no appointment date, so the bar counts years from the first filing the person appears on - a lower bound, not a filed start date. Names are exactly as filed. The IRS publishes no person identifier, so this edition does not yet link a person across organisations.Tenure and departures are observed across annual filings. Observed tenure is a lower bound - a member may have joined before the first year on record. The organisation reported 8 voting members of its governing body on its latest Form 990 Part VI, which matches the board listed here.| Name | Role as filed | Since | On the board |
|---|---|---|---|
| Alexis Nash | President | 2022 | 4 yrs |
| Darin Iacobelli | Treasurer | 2023 | 3 yrs |
| Glenda Hux | Board Member | 2019 | 7 yrs |
| Jeff Kohler | Past President | 2018 | 8 yrs |
| Pilar Magoulas | Board Member | 2019 | 7 yrs |
| Richard Boyce | Board Member | 2019 | 7 yrs |
| Troy Greisen | CEO | 2023 | 3 yrs |
| Vidya Ramabadran | Board Member | 2022 | 4 yrs |
Under 5 years5 to 6 years6 years or more
Officers and senior leadership
2 listediNamed in Part VII as officers, key employees or highest-compensated staff - not board members, shown for completeness.| Name | Title as filed | On the filings |
|---|---|---|
| Elizabeth Rosenbaum | Vice President | 2018 |
| Jennifer Iacobelli | President | since 2018 |
Pay and hours
year to 31 December 2024iFrom Part VII of the Form 990: compensation reported for each officer, director, trustee, key employee and highest-paid staff member, and the average hours a week they report. Most board members are unpaid; a blank means nothing was reported. Pay from related organisations is shown separately.| Name | Title as filed | Hours a week | Pay from the organisation | Related organisations | Other |
|---|---|---|---|---|---|
| Troy Greisen | Former Executive Director | 5 | $71k | ||
| Tuesdi Dyer | Executive Dir. | 5 | $20k | ||
| Alexis Nash | President | 5 | $0 | ||
| Jeff Kohler | Past President | 5 | $0 | ||
| Richard Boyce | Board Member | 5 | $0 | ||
| Darin Iacobelli | Treasurer | 5 | $0 | ||
| Vidya Ramabadran | Board Member | 5 | $0 | ||
| Glenda Hux | Secretary | 5 | $0 | ||
| Pilar Magoulas | Vice President | 5 | $0 |
About
- Legal name
- Cardio Facio Cutaneous International Inc
- EIN
- 161569293
- Address
- 3665 E Bay Dr Ste 204, Largo, FL, 33771-1989
- State
- Florida
- Mission
- CFC International's mission is to improve the quality of life for individuals with Cardiofaciocutaneous Syndrome and their families through support, research, awareness, and education. Our vision is to advance understanding and treatment of CFC syndrome. We achieve our mission and seek our vision by providing comprehensive educational materials, a robust website, condition management... (as filed on the Form 990)
- Activity (NTEE)
- B99 Education
- IRS classification
- 501(c)03 (tax-exempt under section 501(c)(3) where shown)
- Classified purpose
- Education
- Size band
- 4 (IRS master file code)
- IRS ruling date
- 1 October 1999
- Status
- Code 01 (unconditional exemption)
- Form 990 filings on record
- 5, latest 2023
- IRS Publication 78
- PC (contributions deductible)
Most connected
Longest observed on the filings
≥8years on the filingsJeff Kohler
≥7years on the filingsGlenda Hux
≥7years on the filingsPilar Magoulas
≥7years on the filingsRichard Boyce
Latest return
year to 31 December 2024iFigures from the newest Form 990 or 990-EZ in the IRS e-file releases of 2025 and 2026, for the year ending 31 December 2024. US dollars, as filed.- Total assets
- $345k
- Total liabilities
- $0
- Net assets or fund balances
- $345k
- Contributions and grants received
- $101k
- Program service revenue
- $58k
- Employees
- 4
- Volunteers
- 29