PCD KS Foundation
Donations deductiblePCD KS Foundation's network
8 people1 organisationi8 people and 1 organisation on this map.The large node is the subject of this page. Solid lines are what the register itself records (8). Violet dotted lines (1) are likely: the same full name sits on the current board of another organisation in the same register and region. Form 990 filings give names without a person identifier; SEC insider filings carry a CIK. It may be a different person.The board
8 listediTime on the board is observed from the annual filings: the IRS files no appointment date, so the bar counts years from the first filing the person appears on - a lower bound, not a filed start date. Names are exactly as filed. The IRS publishes no person identifier, so this edition does not yet link a person across organisations in the tables. The network map shows same-name matches as likely links only, never as confirmed.Time served and departures are observed across annual filings. Observed time served is a lower bound - a member may have joined before the first year on record. The organisation reported 7 voting members of its governing body on its latest Form 990 Part VI, which matches the board listed here.| Name | Role as filed | Since | On the board |
|---|---|---|---|
| Bill Anton Chair | Chair | 2018 | 8 yrs |
| Amy Kovler | Director, Tr | 2018 | 8 yrs |
| Carrie Willis | Director, Vi | 2018 | 8 yrs |
| Dr Margaret Leigh | Director | 2020 | 6 yrs |
| Gary Joyner | Vice Chair | 2018 | 8 yrs |
| Lynn Ehrne | Director, Se | 2018 | 8 yrs |
| Michele Manion | Exec Dir, Pr | 2018 | 8 yrs |
| Tori Eastvold | Director | 2018 | 8 yrs |
Under 5 years5 to 6 years6 years or more
Pay and hours
year to 31 December 2024iFrom Part VII of the Form 990: compensation reported for each officer, director, trustee, key employee and highest-paid staff member, and the average hours a week they report. Most board members are unpaid; a blank means nothing was reported. Pay from related organisations is shown separately.| Name | Title as filed | Hours a week | Pay from the organisation | Related organisations | Other |
|---|---|---|---|---|---|
| Michele Manion | Exec Dir, Pr | 40 | $185k | ||
| Carrie Willis | Director, Vi | 1 | $0 | ||
| Amy Kovler | Director, Tr | 2 | $0 | ||
| Bill Anton | Chair | 5 | $0 | ||
| Gary Joyner | Vice Chair | 2 | $0 | ||
| Tori Eastvold | Director | 1 | $0 | ||
| Dr Margaret Leigh | Director | 5 | $0 |
Colorado roster
10 listediOfficers, directors and trustees from the latest filing with the Colorado Secretary of State (document 20213030636). Titles are as filed; some entries are registered agents or custodians of records rather than board members. Source: data.colorado.gov, public domain.| Name | Title as filed |
|---|---|
| Michele Manion | President and Executive Director |
| Lynn Ehrne | Secretary |
| Amy Kovler | Chair and Treasurer |
| Margaret Leigh | Director |
| Carrie Willis | Board Member |
| Bill Anton | Vice Chair |
| Tori Eastvold | Board Member |
| Gary Joyner | Board Member |
| Carey Kauffman | Director |
| Amy Kovler |
About
- Legal name
- PCD Ks Foundation
- EIN
- 200543474
- Address
- 10023 Morris Rd, Bloomington, MN, 55437-2303
- State
- Minnesota
- Mission
- To provide the leadership and resources needed to support increased research, accelerated diagnosis, improved health, and ultimately a cure for primary ciliary dyskinesia (pcd). (as filed on the Form 990)
- Activity (NTEE)
- H40 Medical research
- IRS classification
- 501(c)03 (tax-exempt under section 501(c)(3) where shown)
- Classified purpose
- Medical Research
- Size band
- 6 (IRS master file code)
- Formed
- 2004
- Principal officer
- Michele Manion (as named on the Form 990)
- IRS ruling date
- 1 May 2004
- Status
- Code 01 (unconditional exemption)
- Form 990 filings on record
- 6, latest 2023
- IRS Publication 78
- PC (contributions deductible)
Most connected
Longest observed on the filings
≥8years on the filingsBill Anton
≥8years on the filingsAmy Kovler
≥8years on the filingsCarrie Willis
≥8years on the filingsGary Joyner
Latest return
year to 31 December 2024iFigures from the newest Form 990 or 990-EZ in the IRS e-file releases of 2025 and 2026, for the year ending 31 December 2024. US dollars, as filed.- Total assets
- $3.6m
- Total liabilities
- $382k
- Net assets or fund balances
- $3.2m
- Contributions and grants received
- $1.9m
- Program service revenue
- $139k
- Grants and similar paid out
- $308k
- Employees
- 5
- Volunteers
- 20
Grants paid
5 listediFrom Schedule I of the Form 990: grants and assistance to organisations in the United States, largest first (up to 25). Schedule I is filed only by organisations that gave more than $5,000 to any one recipient.| Recipient | Purpose | Amount |
|---|---|---|
| Indiana University Research | Registry suppport | $15k |
| Uscf Foundation | Clinical support | $10k |
| Riley Childrens Health | Clincal development | $10k |
| Columbia University | Clincial development | $10k |
| Gordon Research Conference | Research grant | $7k |