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Governance Register
US nonprofit · EIN 201082179 · New York, NYiSource and licenceOrganisation record IRS Exempt Organizations Business Master File (EIN 201082179) - NTEE activity code, address.Board and officers IRS Form 990 annual filings, Part VII (directors, trustees, officers, key employees), read year by year to observe tenure.Latest return IRS Form 990 series e-file data - 990 for the year to 31 December 2024: assets, liabilities, staff, website, telephone, pay, grants paid (Schedule I).Renewal outlook Computed by Governance Register from the observed filing history and filed revenue (us-approach-v4-clean). Not a statement that the organisation is recruiting.Deductibility IRS Publication 78 data (code PC), downloaded 18 October 2026.State registers Colorado Secretary of State (17 October 2026).Licence US Federal Government public domain.How we handle data

Alzheimers Drug Discovery Foundation's network

23 people5 organisationsi23 people and 5 organisations on this map.The large node is the subject of this page. Solid lines are what the register itself records (23). Violet dotted lines (5) are likely: the same full name sits on the current board of another organisation in the same register and region. Form 990 filings give names without a person identifier; SEC insider filings carry a CIK. It may be a different person.

The board

23 listediTime on the board is observed from the annual filings: the IRS files no appointment date, so the bar counts years from the first filing the person appears on - a lower bound, not a filed start date. Names are exactly as filed. The IRS publishes no person identifier, so this edition does not yet link a person across organisations in the tables. The network map shows same-name matches as likely links only, never as confirmed.Tenure and departures are observed across annual filings. Observed tenure is a lower bound - a member may have joined before the first year on record. The organisation reported 23 voting members of its governing body on its latest Form 990 Part VI, which matches the board listed here.
NameRole as filedSinceOn the board
Leonard A Lauder Chair (also filed as Leonard Lauder)Co-Chairman /Governor2018
8 yrs
Ronald S Lauder Chair (also filed as Ronald Lauder)Co-Chairman /Governor2018
8 yrs
Sandra Day O'Connor ChairHonorary Chairman2020
6 yrs
Alice ShureGovernor2018
8 yrs
Beatriz Illescas Putzeys-ClaugusGovernor2022
4 yrs
Bonnie Pfeifer EvansGovernor2018
8 yrs
David WeinrebGovernor2020
6 yrs
Gary M LauderGovernor2018
8 yrs
Howard Fillit MDFounding Exec. Dir. & Chief Sci. Off.2018
8 yrs
Lanny Edelsohn MDGovernor2018
8 yrs
Laurence C Leeds Jr (also filed as Laurence Leeds JR)Governor2018
8 yrs
Melvin GoodesHonorary Governor2022
4 yrs
Miia Kivipelto MD PHDGovernor2022
4 yrs
Nancy CorzineGovernor2018
8 yrs
Nancy GoodesGovernor2018
8 yrs
Paula ZahnGovernor2018
8 yrs
Randal SandlerCo-Vice Chairman & Secretary2018
8 yrs
Richard Mohs PHDGovernor2018
8 yrs
Robert A Belfer (also filed as Robert Belfer)Governor2018
8 yrs
Roberta Diaz Brinton PHD (also filed as Roberta Diaz Brinton)Governor2018
8 yrs
Sharon SagerGovernor2020
6 yrs
Thomas F McWilliams (also filed as Thomas McWilliams)Co-Vice Chairman & Treasur2018
8 yrs
Thomas Smith JRGovernor2022
4 yrs
Under 5 years5 to 6 years6 years or moreShow all 23 →

Officers and senior leadership

12 listediNamed in Part VII as officers, key employees or highest-compensated staff - not board members, shown for completeness.
NameTitle as filedOn the filings
Aaron BursteinHead of Search and Evaluation2023
Christopher CarlsonDirector, Search & Evaluation2023
Jane McIntoshChief External Affairs and Philanthropy Officersince 2022
Jennifer S IselinDirector, Special Events (Outgoing)2022
Karen HarrisCFO and Head of Mission Relatesince 2022
Kevin DieterichTreasurersince 2018
Lakita CavinAttorney, Mission-Related Investments2023
Laura NisenbaumExecutive Director, Drug Developmentsince 2022
Lisa SomarAsst Treas/Secsince 2018
Marina D'EmicDirector of Finance2022
Mark RoithmayrCEOsince 2018
Sarah GiardinaAssociate Director, Dxa2022

Pay and hours

year to 31 December 2024iFrom Part VII of the Form 990: compensation reported for each officer, director, trustee, key employee and highest-paid staff member, and the average hours a week they report. Most board members are unpaid; a blank means nothing was reported. Pay from related organisations is shown separately.
NameTitle as filedHours a weekPay from the organisationRelated organisationsOther
Howard Fillit MDFounding Exec. Dir. & Chief Science Off.40$663k$35k
Mark RoithmayrCEO40$651k$41k
Laura NisenbaumExecutive Director, Drug Development40$443k$37k
Jane McIntoshChief External Affairs40$378k$14k
Karen HarrisCFO and Head of Mission Related Inv40$369k$26k
Aaron BursteinHead of Search and Evaluation40$314k$54k
Eli ShobinSenior Director Dxa40$236k$34k
Lakita CavinAttorney, Mission-Related40$220k$21k
Adam HoffmanGovernor1$0
Alice ShureGovernor1$0
Ann JacksonGovernor1$0
Bonnie Englebardt LautenbergGovernor1$0
Bonnie Pfeifer EvansGovernor1$0
Carol BoulangerGovernor1$0
David WeinrebGovernor1$0
Gary M LauderGovernor1$0
Henrik Zetterberg MD PhDGovernor1$0
Julieann Shanahan CfaGovernor1$0
Lanny Edelsohn MDGovernor1$0
Laura SteeleGovernor1$0
Laurence Leeds JrGovernor1$0
Leonard LauderCo-Chairman /Governor (Deceased)1$0
Miia Kivipelto MD PhDGovernor1$0
Nancy CorzineGovernor1$0
Nancy GoodesGovernor1$0
Niranjan Bose PhDGovernor1$0
Paula ZahnGovernor1$0
Philip Scheltens MD PhDGovernor1$0
Rachid IzzarGovernor1$0
Randal SandlerCo-Vice Chairman & Secretary1$0
Ric EdelmanGovernor1$0
Richard Mohs PhDGovernor1$0
Roberta Diaz Brinton PhDGovernor1$0
Ronald LauderCo-Chairman /Governor1$0
Sharon SagerGovernor1$0
Thomas McWilliamsCo-Vice Chairman & Treasurer1$0
Thomas Smith JrGovernor1$0

Colorado roster

25 listediOfficers, directors and trustees from the latest filing with the Colorado Secretary of State (document 20253017823). Titles are as filed; some entries are registered agents or custodians of records rather than board members. Source: data.colorado.gov, public domain.
NameTitle as filed
Thomas F. McWilliamsCo Vice Chairman, Treasurer
Leonard LauderCo-Chairman
Mark RoithmayrCEO
Lanny EdelsohnDirector
Sally SusmanHonorary Governer
Randal SandlerCo Vice Chairman, Secretary
Sandra Day O'connerHonorary Chairman
Beatriz IllescasDirector
Nancy CorzineDirector
Laurence C. LeedsDirector
Alice ShureDirector
Paula ZahnDirector
David WeinrebDirector
Bonnie Pfeifer EvansDirector
Ronald LauderCo-Chairman
Howard Fillit MDEx Officio
Nancy GoodesDirector
Roberta Diaz-BrintonDirector
Karen HarrisCFO
Melvin GoodesHonorary Director
Karen Harris
Gary LauderDirector
Marina D'emicController
Miia KivipeltoDirector
Robert BelferDirector

About

Legal name
Alzheimers Drug Discovery Foundation
EIN
201082179
Address
57 W 57th St Ste 904, New York, NY, 10019-2819
State
New York
Mission
Accelerate the discovery of drugs to prevent, treat and cure alzheimer's disease and related dementias. (as filed on the Form 990)
Activity (NTEE)
V36 Social science research
IRS classification
501(c)03 (tax-exempt under section 501(c)(3) where shown)
Classified purpose
Social Science
Size band
9 (IRS master file code)
Formed
2004
Principal officer
Howard Fillit MD (as named on the Form 990)
IRS ruling date
1 September 2005
Status
Code 01 (unconditional exemption)
Form 990 filings on record
5, latest 2023
IRS Publication 78
PC (contributions deductible)

Most connected

Longest observed on the filings

≥8years on the filingsLeonard A Lauder
≥8years on the filingsRonald S Lauder
≥8years on the filingsAlice Shure
≥8years on the filingsBonnie Pfeifer Evans

Latest return

year to 31 December 2024iFigures from the newest Form 990 or 990-EZ in the IRS e-file releases of 2025 and 2026, for the year ending 31 December 2024. US dollars, as filed.
Total assets
$299.4m
Total liabilities
$82.4m
Net assets or fund balances
$217m
Contributions and grants received
$36m
Program service revenue
$5.8m
Grants and similar paid out
$73.3m
Employees
48
Volunteers
28

Grants paid

25+ listediFrom Schedule I of the Form 990: grants and assistance to organisations in the United States, largest first (up to 25). Schedule I is filed only by organisations that gave more than $5,000 to any one recipient.
RecipientPurposeAmount
Alamar BiosciencesAlzheimers research$10m
C2N DiagnosticsAlzheimers research$7m
PharmatrophixAlzheimers research$5.6m
Coya TherapeuticsAlzheimers research$5m
Metro International BiotechedenrocAlzheimers research$5m
Modulo Bio IncAlzheimers research$4.8m
University of Nevada Las VegasAlzheimers research$3.2m
Aquinnah PharmaceuticalsAlzheimers research$3m
Davos Alzheimers CollaborativeAlzheimers research$2.5m
University of Arizona - Health SciencesAlzheimers research$1.8m
VaccinexAlzheimers research$1.8m
ViewmindAlzheimers research$1.4m
Esya IncAlzheimers research$789k
Trustees of Indiana UniversityAlzheimers research$600k
University of MinnesotaAlzheimers research$494k
Clearview Healthcare PartnersAlzheimers research$272k
Johns Hopkins UniversityAlzheimers research$270k
Neurotherapia IncAlzheimers research$250k
University of Kansas Medical CenterAlzheimers research$250k
Neuroage TherapeuticsAlzheimers research$250k
Mti Biotech IncAlzheimers research$159k
Trustees of Boston UniversityAlzheimers research$150k
Usagainstalzheimer's NetworkAlzheimers research$65k
The Milken InstituteAlzheimers research$25k
Global Alzheimer's Platform FoundationAlzheimers research$20k