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US nonprofit · EIN 201211828 · Cincinnati, OHiSource and licenceOrganisation record IRS Exempt Organizations Business Master File (EIN 201211828) - NTEE activity code, address.Board and officers IRS Form 990 annual filings, Part VII (directors, trustees, officers, key employees), read year by year to observe tenure.Latest return IRS Form 990 series e-file data - 990 for the year to 31 December 2025: assets, liabilities, staff, website, telephone, pay.Renewal outlook Computed by Governance Register from the observed filing history and filed revenue (us-approach-v4-clean). Not a statement that the organisation is recruiting.Deductibility IRS Publication 78 data (code PC), downloaded 18 October 2026.State registers Colorado Secretary of State (17 October 2026).Licence US Federal Government public domain.How we handle data

Childrens Interstitial Lung Disease Foundation Inc

Donations deductible
Revenue
$996k
year to 31 December 2025
Expenses
$115k
year to 31 December 2025
Total assets
$1.3m
$7k liabilities
Net assets
$1.2m
assets less liabilities
Directors and trustees
5
6.2y av
Staff
1
employees, year to 31 December 2025
Chair observed
≥4 yrs
Heather Thompson
Left since last filing
0
no seats appear to have opened
How am I connected?

Childrens Interstitial Lung Disease Foundation Inc's network

5 people1 organisationi5 people and 1 organisation on this map.The large node is the subject of this page. Solid lines are what the register itself records (5). Violet dotted lines (1) are likely: the same full name sits on the current board of another organisation in the same register and region. Form 990 filings give names without a person identifier; SEC insider filings carry a CIK. It may be a different person.

The board

5 listediTime on the board is observed from the annual filings: the IRS files no appointment date, so the bar counts years from the first filing the person appears on - a lower bound, not a filed start date. Names are exactly as filed. The IRS publishes no person identifier, so this edition does not yet link a person across organisations in the tables. The network map shows same-name matches as likely links only, never as confirmed.Tenure and departures are observed across annual filings. Observed tenure is a lower bound - a member may have joined before the first year on record.
NameRole as filedSinceOn the board
Heather Thompson ChairChairman2019
7 yrs
Dr Elizabeth FiorinoDirector2021
5 yrs
Dr Katelyn KrivcheniaDirector2022
4 yrs
Greg R Porta (also filed as Gregory Porta)Treasurer2018
8 yrs
Maura RoseCompany secretary2021
5 yrs
Under 5 years5 to 6 years6 years or more

Pay and hours

year to 31 December 2025iFrom Part VII of the Form 990: compensation reported for each officer, director, trustee, key employee and highest-paid staff member, and the average hours a week they report. Most board members are unpaid; a blank means nothing was reported. Pay from related organisations is shown separately.
NameTitle as filedHours a weekPay from the organisationRelated organisationsOther
Virginia DimakisDirector15$0
Dr Elizabeth FiorinoDirector15$0
Christina MacroneDirector15$0
Greg PortaTreasurer15$0
Maura RoseSecretary10$0
Heather ThompsonChairman15$0

No pay was reported for anyone in Part VII on this return.

Colorado roster

7 listediOfficers, directors and trustees from the latest filing with the Colorado Secretary of State (document 20243004527). Titles are as filed; some entries are registered agents or custodians of records rather than board members. Source: data.colorado.gov, public domain.
NameTitle as filed
Wayne I. Danson
Wayne I. DansonPresident
Wayne I. DansonChairman and CEO
Dr. Katelyn KrivcheniaDirector
Maura RoseDirector
Dr Elizabeth FiorinoDirector
Heather ThompsonDirector

About

Legal name
Childrens Interstitial Lung Disease Foundation Inc
EIN
201211828
Address
311 Elm Street C1, Cincinnati, OH, 45202-2736
State
Ohio
Mission
The child foundation is a 501(c)(3) non-profit organization whose mission is to accelerate research to cure all forms of children's interstitial and diffuse lung disease (child) and to provide compassionate support, education, and hope to children and families affected by these life- altering diseases. (as filed on the Form 990)
Activity (NTEE)
H12 Medical research
IRS classification
501(c)03 (tax-exempt under section 501(c)(3) where shown)
Classified purpose
Medical Research
Size band
6 (IRS master file code)
Formed
2004
Principal officer
Greg Porta (as named on the Form 990)
IRS ruling date
1 October 2005
Status
Code 01 (unconditional exemption)
Form 990 filings on record
5, latest 2023
IRS Publication 78
PC (contributions deductible)

Most connected

Longest observed on the filings

≥8years on the filingsGreg R Porta
≥7years on the filingsHeather Thompson
≥5years on the filingsDr Elizabeth Fiorino
≥5years on the filingsMaura Rose

Latest return

year to 31 December 2025iFigures from the newest Form 990 or 990-EZ in the IRS e-file releases of 2025 and 2026, for the year ending 31 December 2025. US dollars, as filed.
Total assets
$1.3m
Total liabilities
$7k
Net assets or fund balances
$1.2m
Contributions and grants received
$980k
Program service revenue
$0
Employees
1