Neuroendocrine Tumor Research Foundation
Donations deductibleRevenue
$8.7m
year to 31 December 2025
Expenses
$4.8m
year to 31 December 2025
Total assets
$27.6m
$5.1m liabilities
Net assets
$22.5m
assets less liabilities
Directors and trustees
13
6.3 years on average
Staff
7
14 volunteers
Left since last filing
0
no seats appear to have opened
Officers and senior staff
5
named in Part VII
Neuroendocrine Tumor Research Foundation's network
13 people2 organisationsi13 people and 2 organisations on this map.The large node is the subject of this page. Solid lines are what the register itself records (13). Violet dotted lines (2) are likely: the same full name sits on the current board of another organisation in the same register and region. Form 990 filings give names without a person identifier; SEC insider filings carry a CIK. It may be a different person.The board
13 listediTime on the board is observed from the annual filings: the IRS files no appointment date, so the bar counts years from the first filing the person appears on - a lower bound, not a filed start date. Names are exactly as filed. The IRS publishes no person identifier, so this edition does not yet link a person across organisations in the tables. The network map shows same-name matches as likely links only, never as confirmed.Time served and departures are observed across annual filings. Observed time served is a lower bound - a member may have joined before the first year on record. The organisation reported 13 voting members of its governing body on its latest Form 990 Part VI, which matches the board listed here.| Name | Role as filed | Since | On the board |
|---|---|---|---|
| Anthony Detre | Director | 2021 | 5 yrs |
| Brendan Foley | Company secretary | 2019 | 7 yrs |
| Jonathan Soroff | Director | 2019 | 7 yrs |
| Joseph LI MD | Director | 2023 | 3 yrs |
| Josh Mailman | Treasurer | 2019 | 7 yrs |
| Julie Shaffer Mebane | Vice President | 2020 | 6 yrs |
| Laurie Littlepage | Director | 2023 | 3 yrs |
| Laurie Rains | Director | 2020 | 6 yrs |
| Mark Lewis MD (also filed as Mark Lewis, Mark Lewis) | Director | 2019 | 7 yrs |
| Stephen Blackwood | Director | 2019 | 7 yrs |
| Stephen Kaufer | Director | 2019 | 7 yrs |
| Suzanne Ludlow | Director | 2022 | 4 yrs |
| Todd Gilman | President | 2019 | 7 yrs |
Officers and senior leadership
5 listediNamed in Part VII as officers, key employees or highest-compensated staff - not board members, shown for completeness.| Name | Title as filed | On the filings |
|---|---|---|
| Christine Coffey | Director of Communications | since 2022 |
| Elyse Gellerman | Chief Executive Officer | since 2019 |
| John Kanki | Director of Research | since 2020 |
| Susan H Payson | Chief Development Officer | since 2019 |
| Susan Harrington | Chief Development Officer | 2023 |
Pay and hours
year to 31 December 2025iFrom Part VII of the Form 990: compensation reported for each officer, director, trustee, key employee and highest-paid staff member, and the average hours a week they report. Most board members are unpaid; a blank means nothing was reported. Pay from related organisations is shown separately.| Name | Title as filed | Hours a week | Pay from the organisation | Related organisations | Other |
|---|---|---|---|---|---|
| Elyse Gellerman | Chief Executive Officer | 40 | $213k | ||
| Susan Harrington | Chief Development Officer | 40 | $199k | $1k | |
| Anna Greene | Director of Research | 40 | $155k | ||
| Jessica Thomas | Director of Patient Education | 40 | $123k | $34k | |
| Mark Lewis MD Until 032025 | Director | 4 | $0 | ||
| Valorie Seyfert As of 492025 | Director | 4 | $0 | ||
| Julie Shaffer Mebane | Vice President | 4 | $0 | ||
| Laurie Rains | Director | 4 | $0 | ||
| Anthony Detre | Director | 4 | $0 | ||
| Elaine Nord As of 492025 | Director | 4 | $0 | ||
| Stephen Kaufer | Director | 4 | $0 | ||
| Josh Mailman | Treasurer | 4 | $0 | ||
| Joseph Li MD | Director | 4 | $0 | ||
| Todd Gilman | President | 4 | $0 | ||
| Suzanne Ludlow | Secretary | 4 | $0 | ||
| Laurie Littlepage | Director | 4 | $0 | ||
| Carrie Camino | Director | 4 | $0 |
About
- Legal name
- Neuroendocrine Tumor Research Foundation
- EIN
- 201945347
- Address
- 100 Hancock St Third Floor, Quincy, MA, 02171-1794
- State
- Massachusetts
- Mission
- To fund research to discover cures and more effective treatments for neuroendocrine cancers. The netrf is committed to improving the lives of those affected by neuroendocrine cancer by providing information & educational resources. (as filed on the Form 990)
- Activity (NTEE)
- G123 Voluntary health associations and medical disciplines
- IRS classification
- 501(c)03 (tax-exempt under section 501(c)(3) where shown)
- Classified purpose
- Voluntary Health Associations & Medical Disciplines
- Size band
- 8 (IRS master file code)
- Formed
- 2004
- Principal officer
- Elyse Gellerman (as named on the Form 990)
- IRS ruling date
- 1 March 2005
- Status
- Code 01 (unconditional exemption)
- Form 990 filings on record
- 5, latest 2023
- IRS Publication 78
- PC (contributions deductible)
Most connected
Longest observed on the filings
≥7years on the filingsBrendan Foley
≥7years on the filingsJonathan Soroff
≥7years on the filingsJosh Mailman
≥7years on the filingsMark Lewis MD
Latest return
year to 31 December 2025iFigures from the newest Form 990 or 990-EZ in the IRS e-file releases of 2025 and 2026, for the year ending 31 December 2025. US dollars, as filed.- Total assets
- $27.6m
- Total liabilities
- $5.1m
- Net assets or fund balances
- $22.5m
- Contributions and grants received
- $7.9m
- Program service revenue
- $0
- Grants and similar paid out
- $3m
- Employees
- 7
- Volunteers
- 14
Grants paid
10 listediFrom Schedule I of the Form 990: grants and assistance to organisations in the United States, largest first (up to 25). Schedule I is filed only by organisations that gave more than $5,000 to any one recipient.| Recipient | Purpose | Amount |
|---|---|---|
| The Board of Trustees of the Leland Stanford Junior University | $257k | |
| The Regents of University University of California Irvine | $257k | |
| The University of Michigan Medical Center (Michigan Medicine) | $257k | |
| Education and Research Foundation | $100k | |
| North Amer Neuroendocrine Tumor Society | $97k | |
| Dana-Farber Cancer Institute | $95k | |
| University of Colorado Denver Amc and DC | $95k | |
| Columbia University Irving Medical Center | $95k | |
| Beckman Research Institute of the City of Hope | $89k | |
| Johns Hopkins University School of Medicine | $89k |