Congenital Hyperinsulinism International
Donations deductibleCongenital Hyperinsulinism International's network
10 people1 organisationi10 people and 1 organisation on this map.The large node is the subject of this page. Solid lines are what the register itself records (10). Violet dotted lines (1) are likely: the same full name sits on the current board of another organisation in the same register and region. Form 990 filings give names without a person identifier; SEC insider filings carry a CIK. It may be a different person.The board
10 listediTime on the board is observed from the annual filings: the IRS files no appointment date, so the bar counts years from the first filing the person appears on - a lower bound, not a filed start date. Names are exactly as filed. The IRS publishes no person identifier, so this edition does not yet link a person across organisations in the tables. The network map shows same-name matches as likely links only, never as confirmed.Time served and departures are observed across annual filings. Observed time served is a lower bound - a member may have joined before the first year on record. The organisation reported 7 voting members of its governing body on its latest Form 990 Part VI; we list 10 in Part VII (Part VII does not always name every voting member).| Name | Role as filed | Since | On the board |
|---|---|---|---|
| Jennifer Schmitt | COO | 2023 | 3 yrs |
| Julie Raskin | CEO | 2018 | 8 yrs |
| Julie Sheldon | Vice President | 2019 | 7 yrs |
| Justyna Montemurro | Director | 2024 | 2 yrs |
| Laura Sullivan | President | 2023 | 3 yrs |
| Mason Smith | Treasurer | 2019 | 7 yrs |
| PAM Williams | Director | 2019 | 7 yrs |
| Sheila Bose | Company secretary | 2018 | 8 yrs |
| TAI Pasquini | Cro | 2023 | 3 yrs |
| Trudy Ward | Director | 2024 | 2 yrs |
Under 5 years5 to 6 years6 years or more
Officers and senior leadership
4 listediNamed in Part VII as officers, key employees or highest-compensated staff - not board members, shown for completeness.| Name | Title as filed | On the filings |
|---|---|---|
| Davelyn Hood | President | 2018 |
| Isabel Calderon | Vice President | 2018 |
| Mason Smith | Treasurer | 2018 |
| PAM Williams | Company secretary | 2018 |
Pay and hours
year to 31 December 2024iFrom Part VII of the Form 990: compensation reported for each officer, director, trustee, key employee and highest-paid staff member, and the average hours a week they report. Most board members are unpaid; a blank means nothing was reported. Pay from related organisations is shown separately.| Name | Title as filed | Hours a week | Pay from the organisation | Related organisations | Other |
|---|---|---|---|---|---|
| Julie Raskin | CEO | 40 | $114k | ||
| Tai Pasquini | Cro | 40 | $95k | ||
| Jennifer Schmitt | COO | 40 | $90k | ||
| Sheila Bose | Secretary | 6 | $0 | ||
| Laura Sullivan | President | 6 | $0 | ||
| Julie Sheldon | Vice President | 1 | $0 | ||
| Mason Smith | Treasurer | 2 | $0 | ||
| Justyna Montemurro | Director | 1 | $0 | ||
| Pam Williams | Director | 1 | $0 | ||
| Trudy Ward | Director | 1 | $0 |
Colorado roster
12 listediOfficers, directors and trustees from the latest filing with the Colorado Secretary of State (document 20253028773). Titles are as filed; some entries are registered agents or custodians of records rather than board members. Source: data.colorado.gov, public domain.| Name | Title as filed |
|---|---|
| Trudy Ward | Board Member |
| Laura Sullivan | President |
| Jennifer Schmitt | |
| Sheila Bose | Vice President |
| Pam Williams | Board Member |
| Justyna Montemurro | Secretary |
| Julie Raskin | Chief Executive Officer |
| Will Chou | Board Member |
| Jennifer Schmitt | Chief Operating Officer |
| Julie Sheldon | Treasurer |
| Tai Pasquini | Chief Research Officer |
| Wendy Will | Board Member |
About
- Legal name
- Congenital Hyperinsulinism International
- EIN
- 203068945
- Address
- Po Box 135, Glen Ridge, NJ, 07028-0135
- State
- New Jersey
- Mission
- Congenital Hyperinsulinism International (CHI) is a nonprofit 501(c)(3) corporation dedicated to improving the lives of babies, children, and adults affected by congenital hyperinsulinism (HI). HI is a life-threatening genetic disorder that causes severe low blood sugar (hypoglycemia) in infants and children, though in 50% of patients, the genetic cause is unknown. For those with HI, the... (as filed on the Form 990)
- Activity (NTEE)
- G12 Voluntary health associations and medical disciplines
- IRS classification
- 501(c)03 (tax-exempt under section 501(c)(3) where shown)
- Classified purpose
- Voluntary Health Associations & Medical Disciplines
- Size band
- 6 (IRS master file code)
- Formed
- 2006
- IRS ruling date
- 1 October 2006
- Status
- Code 01 (unconditional exemption)
- Form 990 filings on record
- 6, latest 2024
- IRS Publication 78
- PC (contributions deductible)
- Principal officer
- Matthew M Hopkins (Form 990-N, tax year 2010)
Most connected
Longest observed on the filings
≥8years on the filingsJulie Raskin
≥8years on the filingsSheila Bose
≥7years on the filingsJulie Sheldon
≥7years on the filingsMason Smith
Latest return
year to 31 December 2024iFigures from the newest Form 990 or 990-EZ in the IRS e-file releases of 2025 and 2026, for the year ending 31 December 2024. US dollars, as filed.- Total assets
- $2.2m
- Total liabilities
- $321k
- Net assets or fund balances
- $1.9m
- Contributions and grants received
- $260k
- Program service revenue
- $978k
- Grants and similar paid out
- $109k
- Employees
- 9
- Volunteers
- 130
Filed finances
1 yeariTotals as filed on the IRS Form 990 (revenue and expenses), by tax year.| Tax year | Total revenue | Total expenses | Surplus or deficit |
|---|---|---|---|
| 2024 | $1.3m | $1.1m | $149k |
As filed on the IRS Form 990. US dollars.
Grants paid
1 listediFrom Schedule I of the Form 990: grants and assistance to organisations in the United States, largest first (up to 25). Schedule I is filed only by organisations that gave more than $5,000 to any one recipient.| Recipient | Purpose | Amount |
|---|---|---|
| University of Pennsylvania | $67k |