Tourette Association of America Inc
Tourette Association of America Inc's network
19 peoplei19 people on this map.The large node is the subject of this page. Solid lines are what the register itself records (19). Form 990 filings give names without a person identifier; SEC insider filings carry a CIK.The board
19 listediTime on the board is observed from the annual filings: the IRS files no appointment date, so the bar counts years from the first filing the person appears on - a lower bound, not a filed start date. Names are exactly as filed. The IRS publishes no person identifier, so this edition does not yet link a person across organisations.Tenure and departures are observed across annual filings. Observed tenure is a lower bound - a member may have joined before the first year on record. The organisation reported 19 voting members of its governing body on its latest Form 990 Part VI, which matches the board listed here.| Name | Role as filed | Since | On the board |
|---|---|---|---|
| Stephen Barron Chair | Chairman of the Board | 2019 | 7 yrs |
| Alice Kane | Fourth Vice Chair | 2019 | 7 yrs |
| Anthony Acampora EFF 22425 | Director | 2025 | 1 yr |
| Bruce D Ochsman (also filed as Bruce Ochsman) | Director | 2019 | 7 yrs |
| Cheri G David CPA (also filed as Cheri David CPA) | Director | 2024 | 2 yrs |
| Cindy Kurtz | Director | 2019 | 7 yrs |
| Daniel McGarvey | Director | 2021 | 5 yrs |
| Dash Mihok EFF 22425 | Director | 2025 | 1 yr |
| David Schoenhaar | First Vice Chair | 2019 | 7 yrs |
| Jasmine Tarkoff | Second Vice Chair | 2019 | 7 yrs |
| Jeffrey Kramer | Third Vice Chair | 2019 | 7 yrs |
| John Walkup MD | Director | 2019 | 7 yrs |
| Karl Valentini | Director | 2024 | 2 yrs |
| Marc Benson | Director | 2025 | 1 yr |
| Monte Redman | Director | 2019 | 7 yrs |
| Paul S Devore (also filed as Paul Devore) | Director | 2019 | 7 yrs |
| Randi Zemsky | Director | 2019 | 7 yrs |
| Rovena Schirling | Director | 2019 | 7 yrs |
| Susan Courey PHD | Director | 2019 | 7 yrs |
Officers and senior leadership
16 listediNamed in Part VII as officers, key employees or highest-compensated staff - not board members, shown for completeness.| Name | Title as filed | On the filings |
|---|---|---|
| Amanda Talty | President & CEO | since 2019 |
| Claude Schofield | Vice Pres., Research & Med | 2021 |
| Diana Felner | Vice Pres., Public Policy | since 2019 |
| Diana Felner - Thru 12024 | VP of Public Policy | 2025 |
| Diana Shineman | Vice Pres., Research & Medical | since 2019 |
| James Nichols | VP of Public Policy | 2025 |
| James Saracini | VP, Marketing & Communications | 2025 |
| John Miller | President & CEO (Outgoing) | 2019 |
| Joshua Nadeau | VP of Med.&Sci. Research (Outgoing) | 2024 |
| Karon Harrison | VP Resource Dev. and Affiliate Serv. | 2024 |
| Karon Harrison - Thru 101624 | VP of Resource Development & Affiliates Services | 2025 |
| Karon Williams | VP. Resource Dev & Marketi | 2023 |
| Katrina Hermetet | VP, Medical & Scientific Affairs | 2025 |
| Scott Sterling | VP of Resource Development & Affiliate Services | 2025 |
| Sonja Mason-Vidal | VP of Finance & Administration | since 2019 |
| Tracey Alexander | VP, Resource Dev. & Chapter Services | since 2019 |
Pay and hours
year to 28 February 2025iFrom Part VII of the Form 990: compensation reported for each officer, director, trustee, key employee and highest-paid staff member, and the average hours a week they report. Most board members are unpaid; a blank means nothing was reported. Pay from related organisations is shown separately.| Name | Title as filed | Hours a week | Pay from the organisation | Related organisations | Other |
|---|---|---|---|---|---|
| Amanda Talty | President & CEO | 40 | $295k | $15k | |
| Sonja Mason-Vidal | VP of Finance & Adm. | 40 | $157k | $24k | |
| James Saracini | VP, Marketing & Communications | 40 | $146k | $5k | |
| Karon Harrison - Thru 101624 | VP of Resource Development & Affiliates Services | 40 | $134k | $23k | |
| Katrina Hermetet | VP, Medical & Scientific Affairs | 40 | $104k | $10k | |
| James Nichols | VP of Public Policy | 40 | $92k | $15k | |
| Scott Sterling | VP of Resource Development & Affiliate Services | 40 | $70k | ||
| Diana Felner - Thru 12024 | VP of Public Policy | 40 | $11k | ||
| Stephen Barron | Chairman of the Board | 2 | $0 | ||
| David Schoenhaar | First Vice Chair | 2 | $0 | ||
| Jasmine Tarkoff | Second Vice Chair | 2 | $0 | ||
| Jeffrey Kramer | Third Vice Chair | 2 | $0 | ||
| Alice Kane | Fourth Vice Chair | 2 | $0 | ||
| Cheri David CPA | Director | 2 | $0 | ||
| Monte Redman | Director | 2 | $0 | ||
| Paul Devore | Director | 2 | $0 | ||
| Marc Benson | Director | 2 | $0 | ||
| Bruce Ochsman | Director | 2 | $0 | ||
| Daniel McGarvey | Director | 2 | $0 | ||
| Cindy Kurtz | Director | 2 | $0 | ||
| Rovena Schirling | Director | 2 | $0 | ||
| Randi Zemsky | Director | 4 | $0 | ||
| Karl Valentini | Director | 2 | $0 | ||
| John Walkup MD | Director | 2 | $0 | ||
| Susan Courey PhD | Director | 2 | $0 | ||
| Anthony Acampora Eff 22425 | Director | 2 | $0 | ||
| Dash Mihok Eff 22425 | Director | 2 | $0 |
Colorado roster
24 listediOfficers, directors and trustees from the latest filing with the Colorado Secretary of State (document 20253001285). Titles are as filed; some entries are registered agents or custodians of records rather than board members. Source: data.colorado.gov, public domain.| Name | Title as filed |
|---|---|
| Susan Courey | Director |
| Randi Zemsky | Director |
| Sonja Mason-Vidal | VP of Finance & Adm. |
| Karl Valentini | Director |
| Monte Redman | Director |
| Jasmine Tarkoff | Second Vice Chair |
| Joshua Nadeau | VP of Med.&Sci. Research (Outgoing) |
| Sonja Mason-Vidal | |
| Cindy Kurtz | Director |
| Jeffrey Kramer | Third Vice Chair |
| Daniel McGarvey | Director |
| Cheri G David | Director |
| David Schoenhaar | First Vice Chair |
| John Walkup | Director |
| Alice Kane | Fourth Vice Chair |
| Bruce Ochsman | Director |
| Rovena Schirling | Director |
| Diana Felner | Vice Pres., Public Policy |
| Amanda Talty | President |
| Paul S. Devore | Director |
| Julie Moelis | Director |
| Karon Harrison | VP Resource Dev. and Affiliate Serv. |
| Stephen Barron | Chair |
| Amanda Talty | President & CEO |
About
- Legal name
- Tourette Association of America Inc
- EIN
- 237191992
- Address
- 42-40 Bell Boulevard, Bayside, NY, 11361-2201
- State
- New York
- Mission
- To identify the cause of, find the cure for, and control the effects of tourette syndrome. The tourette association is dedicated to making life better for all people affected by tourette and tic disorders. (as filed on the Form 990)
- Activity (NTEE)
- G50Z Voluntary health associations and medical disciplines
- IRS classification
- 501(c)03 (tax-exempt under section 501(c)(3) where shown)
- Classified purpose
- Voluntary Health Associations & Medical Disciplines
- Size band
- 7 (IRS master file code)
- Formed
- 1972
- Principal officer
- Andrew Julia (as named on the Form 990)
- IRS ruling date
- 1 December 1982
- Status
- Code 01 (unconditional exemption)
- Form 990 filings on record
- 6, latest 2025
- IRS Publication 78
- GROUP
Most connected
Longest observed on the filings
≥7years on the filingsStephen Barron
≥7years on the filingsAlice Kane
≥7years on the filingsBruce D Ochsman
≥7years on the filingsCindy Kurtz
Latest return
year to 28 February 2025iFigures from the newest Form 990 or 990-EZ in the IRS e-file releases of 2025 and 2026, for the year ending 28 February 2025. US dollars, as filed.- Total assets
- $9.5m
- Total liabilities
- $1.7m
- Net assets or fund balances
- $7.8m
- Contributions and grants received
- $4.7m
- Program service revenue
- $105k
- Grants and similar paid out
- $673k
- Employees
- 38
- Volunteers
- 52
Filed finances
1 yeariTotals as filed on the IRS Form 990 (revenue and expenses), by tax year.| Tax year | Total revenue | Total expenses | Surplus or deficit |
|---|---|---|---|
| 2024 | $5.2m | $5.8m | Deficit $563k |
As filed on the IRS Form 990. US dollars.
Grants paid
4 listediFrom Schedule I of the Form 990: grants and assistance to organisations in the United States, largest first (up to 25). Schedule I is filed only by organisations that gave more than $5,000 to any one recipient.| Recipient | Purpose | Amount |
|---|---|---|
| Regents of the University of Ca (Ucsd) | $150k | |
| Yale University | $150k | |
| University of Minnesota | $150k | |
| Rutgers | $150k |