Huntington S Disease Foundation
Donations deductibleHuntington S Disease Foundation's network
19 people3 organisationsi19 people and 3 organisations on this map.The large node is the subject of this page. Solid lines are what the register itself records (19). Violet dotted lines (3) are likely: the same full name sits on the current board of another organisation in the same register and region. Form 990 filings give names without a person identifier; SEC insider filings carry a CIK. It may be a different person.The board
19 listediTime on the board is observed from the annual filings: the IRS files no appointment date, so the bar counts years from the first filing the person appears on - a lower bound, not a filed start date. Names are exactly as filed. The IRS publishes no person identifier, so this edition does not yet link a person across organisations in the tables. The network map shows same-name matches as likely links only, never as confirmed.Tenure and departures are observed across annual filings. Observed tenure is a lower bound - a member may have joined before the first year on record. The organisation reported 18 voting members of its governing body on its latest Form 990 Part VI, which matches the board listed here.| Name | Role as filed | Since | On the board |
|---|---|---|---|
| Karen Newman Chair | Chair | 2018 | 8 yrs |
| Alice Wexler PHD (also filed as Alice Wexler PhD) | Company secretary | 2018 | 8 yrs |
| Anne B Young MD PHD (also filed as Anne Young MD PhD) | Vice Chair | 2018 | 8 yrs |
| Barry Evenchick | Director Thru 9/23 | 2019 | 7 yrs |
| Berta A Gehry (also filed as Berta Gehry) | Director | 2018 | 8 yrs |
| Bruce Donaldson | Treasurer | 2018 | 8 yrs |
| C Frank Bennett PHD | Director | 2022 | 4 yrs |
| David Housman PHD (also filed as David Housman PhD) | Director | 2018 | 8 yrs |
| David Zwally | Director | 2018 | 8 yrs |
| Frank O Gehry (also filed as Frank Gehry) | Director | 2018 | 8 yrs |
| Herbert Pardes MD | Director | 2018 | 8 yrs |
| Joan Leiman PHD (also filed as Joan Leiman) | Director | 2018 | 8 yrs |
| Lauren Baker Pinkus | Director | 2022 | 4 yrs |
| Leslie M Thompson PHD | Director | 2022 | 4 yrs |
| Meghan Donaldson | CEO | 2018 | 8 yrs |
| Nancy S Wexler PHD (also filed as Nancy Wexler PhD) | President | 2018 | 8 yrs |
| Robi Blumenstein | Director | 2018 | 8 yrs |
| Sandy Fox (also filed as Sandy Fox) | Director | 2018 | 8 yrs |
| Tacie Fox | Director | 2022 | 4 yrs |
Officers and senior leadership
3 listediNamed in Part VII as officers, key employees or highest-compensated staff - not board members, shown for completeness.| Name | Title as filed | On the filings |
|---|---|---|
| Julie Porter | Head of Science | since 2022 |
| Sarah Hernandez | Dir. of Research Programs | 2023 |
| Travis Carey | CFO | since 2018 |
Pay and hours
year to 31 December 2025iFrom Part VII of the Form 990: compensation reported for each officer, director, trustee, key employee and highest-paid staff member, and the average hours a week they report. Most board members are unpaid; a blank means nothing was reported. Pay from related organisations is shown separately.| Name | Title as filed | Hours a week | Pay from the organisation | Related organisations | Other |
|---|---|---|---|---|---|
| Sarah Hernandez PhD | Dir. of Research Programs | 40 | $155k | $62k | |
| Julie Porter | Dir. of Administration | 40 | $124k | $34k | |
| Karen Newman | Chair | 24 | $72k | ||
| Meghan Donaldson | CEO | 40 | $50k | ||
| Tim Kelleher | CFO | 6 | $32k | ||
| Nancy S Wexler PhD | President | 1 | $0 | ||
| Anne B Young MD PhD | Vice Chair | 1 | $0 | ||
| Bruce Donaldson | Treasurer | 1 | $0 | ||
| Alice Wexler PhD | Secretary | 1 | $0 | ||
| C Frank Bennett PhD | Director | 1 | $0 | ||
| Robi Blumenstein | Director | 1 | $0 | ||
| Sandy Fox | Director | 1 | $0 | ||
| Tacie Fox | Director | 1 | $0 | ||
| Berta A Gehry | Director | 1 | $0 | ||
| Frank O Gehry | Director (Through 12/5/25) | 1 | $0 | ||
| David Housman PhD | Director | 1 | $0 | ||
| Thomas Obersteiner | Director (Joined 4/25) | 1 | $0 | ||
| Lauren Baker Pinkus | Director | 1 | $0 | ||
| Leslie M Thompson PhD | Director | 1 | $0 | ||
| David Zwally | Director | 1 | $0 | ||
| Melissa Moser | Director | 1 | $0 |
About
- Legal name
- Huntington S Disease Foundation
- EIN
- 237376197
- Address
- 601 W 168th St Apt 54, New York, NY, 10032-3717
- State
- New York
- Mission
- To fund transformative research to find treatments, and ultimately a cure, for huntington's disease. (as filed on the Form 990)
- Activity (NTEE)
- H200 Medical research
- IRS classification
- 501(c)03 (tax-exempt under section 501(c)(3) where shown)
- Classified purpose
- Medical Research
- Size band
- 8 (IRS master file code)
- Formed
- 1968
- Principal officer
- Meghan Donaldson (as named on the Form 990)
- IRS ruling date
- 1 June 1974
- Status
- Code 01 (unconditional exemption)
- Form 990 filings on record
- 6, latest 2023
- IRS Publication 78
- PC (contributions deductible)
Most connected
Longest observed on the filings
≥8years on the filingsKaren Newman
≥8years on the filingsAlice Wexler PHD
≥8years on the filingsAnne B Young MD PHD
≥8years on the filingsBerta A Gehry
Latest return
year to 31 December 2025iFigures from the newest Form 990 or 990-EZ in the IRS e-file releases of 2025 and 2026, for the year ending 31 December 2025. US dollars, as filed.- Total assets
- $23.1m
- Total liabilities
- $2.3m
- Net assets or fund balances
- $20.8m
- Contributions and grants received
- $3.3m
- Program service revenue
- $53k
- Grants and similar paid out
- $3.2m
- Employees
- 4
- Volunteers
- 45
Grants paid
11 listediFrom Schedule I of the Form 990: grants and assistance to organisations in the United States, largest first (up to 25). Schedule I is filed only by organisations that gave more than $5,000 to any one recipient.| Recipient | Purpose | Amount |
|---|---|---|
| Massachusetts General Hospital (Mass General) | Scientific research | $200k |
| Massachusetts Institute of Technology - MIT | Scientific research | $200k |
| The Board of Trustees of the Leland Stanford Junior University | Scientific research | $200k |
| The Regents of the University of California Los Angeles | Scientific research | $200k |
| Chan Zuckerberg Biohub (San Francisco) | Scientific research | $100k |
| Massachusetts General Hospital (Mass General) | Scientific research | $100k |
| Massachusetts Institute of Technology - MIT | Scientific research | $100k |
| The Corporation of Mercer University | Scientific research | $100k |
| Washington University | Scientific research | $100k |
| The Regents of the University of California Los Angeles | Scientific research | $50k |
| The Trustees of Columbia University in the City of New York | Scientific research | $50k |
State registration
1 entityiBusiness-entity registers published by US states. These records are matched to this organisation by name and state, not by EIN, and are labelled as likely matches. Street addresses are not shown.Huntington's Disease Foundation likely matchiMatched by exact name and state (and ZIP where shown). State registers do not publish EINs, so this is not a confirmed match. Source: New York Department of State, active corporations (data.ny.gov n9v6-gdp6). Licence: New York open data terms of use. Data last fetched 18 October 2026.
- State
- New York
- Entity type
- Foreign Not-For-Profit Corporation
- Status
- Active
- Formed
- 31 March 2003
- Registered agent
- Not stated