Hereditary Angioedema Association Inc
Donations deductibleRevenue
$10m
year to 31 December 2024
Expenses
$5.5m
year to 31 December 2024
Total assets
$21.9m
$654k liabilities
Net assets
$21.2m
assets less liabilities
Directors and trustees
6
7.4 years on average
Staff
21
1,000 volunteers
Left since last filing
0
no seats appear to have opened
Officers and senior staff
5
named in Part VII
Hereditary Angioedema Association Inc's network
6 people1 organisationi6 people and 1 organisation on this map.The large node is the subject of this page. Solid lines are what the register itself records (6). Violet dotted lines (1) are likely: the same full name sits on the current board of another organisation in the same register and region. Form 990 filings give names without a person identifier; SEC insider filings carry a CIK. It may be a different person.The board
6 listediTime on the board is observed from the annual filings: the IRS files no appointment date, so the bar counts years from the first filing the person appears on - a lower bound, not a filed start date. Names are exactly as filed. The IRS publishes no person identifier, so this edition does not yet link a person across organisations in the tables. The network map shows same-name matches as likely links only, never as confirmed.Time served and departures are observed across annual filings. Observed time served is a lower bound - a member may have joined before the first year on record. The organisation reported 5 voting members of its governing body on its latest Form 990 Part VI, which matches the board listed here.| Name | Role as filed | Since | On the board |
|---|---|---|---|
| Anthony Castaldo | Chairchief Executive Officer | 2018 | 8 yrs |
| Dr Eric Phillips | Director | 2018 | 8 yrs |
| Henrik Balle Boysen | President | 2019 | 7 yrs |
| Karen Baird | Director | 2018 | 8 yrs |
| Larry Salus | Treasurerchief Compliance of | 2018 | 8 yrs |
| Lois Perry | Director | 2023 | 3 yrs |
Under 5 years5 to 6 years6 years or more
Officers and senior leadership
5 listediNamed in Part VII as officers, key employees or highest-compensated staff - not board members, shown for completeness.| Name | Title as filed | On the filings |
|---|---|---|
| Christine Selva | Senior Director Health & Rese | since 2022 |
| David Mallory | Community Engagement Manager | 2022 |
| Leigh Farrar | Executive Vpchief Financial | since 2020 |
| Lois Perry | Retired Director of Health Se | 2022 |
| Michelle Cuevas | Senior Executive Vpcoo | since 2020 |
Pay and hours
year to 31 December 2024iFrom Part VII of the Form 990: compensation reported for each officer, director, trustee, key employee and highest-paid staff member, and the average hours a week they report. Most board members are unpaid; a blank means nothing was reported. Pay from related organisations is shown separately.| Name | Title as filed | Hours a week | Pay from the organisation | Related organisations | Other |
|---|---|---|---|---|---|
| Michelle Cuevas | Former Senior Executive Vpcoo | 20 | $337k | ||
| Anthony Castaldo | Chairchief Executive Officer | 40 | $245k | ||
| Leigh Farrar | Executive Vpchief Financial Office | 40 | $225k | ||
| Christine Selva | Senior Director Health & Research | 40 | $181k | ||
| Larry Salus | Director | 2 | $8k | ||
| Dr Eric Phillips | Director | 2 | $0 | ||
| Henrik Balle Boysen | President | 20 | $0 | ||
| Karen Baird | Director | 2 | $0 | ||
| Lois Perry | Director | 2 | $0 |
Colorado roster
10 listediOfficers, directors and trustees from the latest filing with the Colorado Secretary of State (document 20253032926). Titles are as filed; some entries are registered agents or custodians of records rather than board members. Source: data.colorado.gov, public domain.| Name | Title as filed |
|---|---|
| Eric Phillips | Director |
| Leigh Farrar | Executive VP/Chief Financial Officer |
| Michelle Cuevas | Former Senior Executive VP/COO |
| Leigh Farrar | |
| Henrik Balle Boysen | President |
| Larry Salus | Director |
| Christine Selva | Senior Director Health & Research |
| Karen Baird | Director |
| Anthony Castaldo | Chair/Chief Executive Officer |
| Lois Perry | Director |
About
- Legal name
- Hereditary Angioedema Association Inc
- EIN
- 251852548
- Address
- 10560 Main St Ste PS40, Fairfax, VA, 22030-7114
- State
- Virginia
- Mission
- (as filed on the Form 990)
- Activity (NTEE)
- E99 Health care
- IRS classification
- 501(c)03 (tax-exempt under section 501(c)(3) where shown)
- Classified purpose
- Health Care
- Size band
- 8 (IRS master file code)
- Formed
- 2005
- Principal officer
- Anthony Castaldo (as named on the Form 990)
- IRS ruling date
- 1 January 2007
- Status
- Code 01 (unconditional exemption)
- Form 990 filings on record
- 5, latest 2023
- IRS Publication 78
- PC (contributions deductible)
Most connected
Longest observed on the filings
≥8years on the filingsAnthony Castaldo
≥8years on the filingsDr Eric Phillips
≥8years on the filingsKaren Baird
≥8years on the filingsLarry Salus
Latest return
year to 31 December 2024iFigures from the newest Form 990 or 990-EZ in the IRS e-file releases of 2025 and 2026, for the year ending 31 December 2024. US dollars, as filed.- Total assets
- $21.9m
- Total liabilities
- $654k
- Net assets or fund balances
- $21.2m
- Contributions and grants received
- $9.3m
- Program service revenue
- $0
- Grants and similar paid out
- $675k
- Employees
- 21
- Volunteers
- 1,000
Grants paid
1 listediFrom Schedule I of the Form 990: grants and assistance to organisations in the United States, largest first (up to 25). Schedule I is filed only by organisations that gave more than $5,000 to any one recipient.| Recipient | Purpose | Amount |
|---|---|---|
| Uc San Diego Foundation | Research & medicine | $185k |
State registration
1 entityiBusiness-entity registers published by US states. These records are matched to this organisation by name and state, not by EIN, and are labelled as likely matches. Street addresses are not shown.Hereditary Angioedema Association Inc. likely matchiMatched by exact name and state (and ZIP where shown). State registers do not publish EINs, so this is not a confirmed match. Source: Colorado Secretary of State (CDOS), business entities (data.colorado.gov 4ykn-tg5h). Licence: public domain. Data last fetched 18 October 2026.
- State
- Colorado
- Entity type
- nonprofit corporation
- Status
- Good Standing
- Formed
- 2 February 2026
- Registered agent
- Colorado Registered Agents Inc (city and state not held)
This register does not publish officers or directors.