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US nonprofit · EIN 262484253 · Cary, NCiSource and licenceOrganisation record IRS Exempt Organizations Business Master File (EIN 262484253) - NTEE activity code, address.Board and officers IRS Form 990 annual filings, Part VII (directors, trustees, officers, key employees), read year by year to observe time served.Latest return IRS Form 990 series e-file data - 990 for the year to 30 September 2025: assets, liabilities, staff, website, telephone, pay.Finances by year IRS Form 990 e-file data - total revenue and total expenses by tax year.Renewal outlook Computed by Governance Register from the observed filing history and filed revenue. Not a statement that the organisation is recruiting.Deductibility IRS Publication 78 data (code PC), downloaded 18 October 2026.State registers Colorado Secretary of State (17 October 2026).Licence US Federal Government public domain.How we handle data

Lung Transplant Foundation

Donations deductible
Revenue
$423k
year to 30 September 2025
Expenses
$261k
year to 30 September 2025
Total assets
$391k
$38k liabilities
Net assets
$352k
assets less liabilities
Directors and trustees
11
6.7 years on average
Staff
1
20 volunteers
Left since last filing
2
18% of the board
Officers and senior staff
2
named in Part VII
How am I connected?

Lung Transplant Foundation's network

11 people1 organisationi11 people and 1 organisation on this map.The large node is the subject of this page. Solid lines are what the register itself records (11). Violet dotted lines (1) are likely: the same full name sits on the current board of another organisation in the same register and region. Form 990 filings give names without a person identifier; SEC insider filings carry a CIK. It may be a different person.

The board

11 listediTime on the board is observed from the annual filings: the IRS files no appointment date, so the bar counts years from the first filing the person appears on - a lower bound, not a filed start date. Names are exactly as filed. The IRS publishes no person identifier, so this edition does not yet link a person across organisations in the tables. The network map shows same-name matches as likely links only, never as confirmed.Time served and departures are observed across annual filings. Observed time served is a lower bound - a member may have joined before the first year on record. The organisation reported 11 voting members of its governing body on its latest Form 990 Part VI, which matches the board listed here.
NameRole as filedSinceOn the board
Brian BennettTreasurer2018
8 yrs
Elia CollinsDirector2024
2 yrs
Ellen GoldsteinCompany secretary2018
8 yrs
Harry CollinsPresident2018
8 yrs
Janice SuttonDirector2019
7 yrs
John ReynoldDirector2024
2 yrs
Jonathan ReissEx Committee2018
8 yrs
Kelly DaggerVice President2018
8 yrs
Linda WalshDirector2021
5 yrs
Paul SunDirector2018
8 yrs
TIM BergerDirector2021
5 yrs
Under 5 years5 to 6 years6 years or moreShow all 11 →

Officers and senior leadership

2 listediNamed in Part VII as officers, key employees or highest-compensated staff - not board members, shown for completeness.
NameTitle as filedOn the filings
Amy SkibaExecutive Directorsince 2021
Emily EverettExecutive Director2020

Pay and hours

year to 30 September 2025iFrom Part VII of the Form 990: compensation reported for each officer, director, trustee, key employee and highest-paid staff member, and the average hours a week they report. Most board members are unpaid; a blank means nothing was reported. Pay from related organisations is shown separately.
NameTitle as filedHours a weekPay from the organisationRelated organisationsOther
Amy SkibaExecutive Director40$121k
Harry CollinsPresident8$0
Tim BergerDirector8$0
Ellen GoldsteinSecretary25$0
Brian BennettTreasurer1$0
Paul SunDirector0.5$0
Kelly DaggerVice President1$0
Jonathan ReissEx Committee4$0
John ReynoldsDirector2$0
Elisa CollinsDirector0.5$0
Janice SuttonDirector0.5$0
George ChatneuffDirector0.5$0

Colorado roster

16 listediOfficers, directors and trustees from the latest filing with the Colorado Secretary of State (document 20263024868). Titles are as filed; some entries are registered agents or custodians of records rather than board members. Source: data.colorado.gov, public domain.
NameTitle as filed
Tim BergerPresident/Executive Committee
Brian BennettTreasurer, Board of Directors
Janice SuttonBoard of Directors
Bennett Brian
Tim BergerPresident
Kelly Margolis-DaggerChief Legal Officer/Executive Committee
George ChatneuffBoard of Directors
E. WurstBoard of Directors
Elisa CollinsBoard of Directors
Ellen GoldsteinSecretary
Shari CarterBoard of Directors
Paul Sun, EsqBoard of Directors
Josh AbelsonBoard of Directors
Jonathan ReissVice President/Executive Committee
John ReynoldsBoard of Directors
Ginger SpitzerExecutive Director

About

Legal name
Lung Transplant Foundation
EIN
262484253
Address
1249 Kildaire Farm Rd, Cary, NC, 27511-5523
State
North Carolina
Mission
To improve the lives of lung transplant patients and their families by supporting research to improve long-term transplant outcomes, providing education and peer-to-peer mentoring, advocating for the lung transplant community, and connecting patients and caregivers with resources and support. (as filed on the Form 990)
Activity (NTEE)
G450 Voluntary health associations and medical disciplines
IRS classification
501(c)03 (tax-exempt under section 501(c)(3) where shown)
Classified purpose
Voluntary Health Associations & Medical Disciplines
Size band
4 (IRS master file code)
Formed
2009
Principal officer
Tim Berger (as named on the Form 990)
IRS ruling date
1 June 2009
Status
Code 01 (unconditional exemption)
Form 990 filings on record
7, latest 2024
IRS Publication 78
PC (contributions deductible)

Most connected

Longest observed on the filings

≥8years on the filingsBrian Bennett
≥8years on the filingsEllen Goldstein
≥8years on the filingsHarry Collins
≥8years on the filingsJonathan Reiss

Latest return

year to 30 September 2025iFigures from the newest Form 990 or 990-EZ in the IRS e-file releases of 2025 and 2026, for the year ending 30 September 2025. US dollars, as filed.
Total assets
$391k
Total liabilities
$38k
Net assets or fund balances
$352k
Contributions and grants received
$328k
Program service revenue
$0
Grants and similar paid out
$1k
Employees
1
Volunteers
20

Filed finances

1 yeariTotals as filed on the IRS Form 990 (revenue and expenses), by tax year.
Tax yearTotal revenueTotal expensesSurplus or deficit
2023$268k$219k$49k

As filed on the IRS Form 990. US dollars.

State registration

1 entityiBusiness-entity registers published by US states. These records are matched to this organisation by name and state, not by EIN, and are labelled as likely matches. Street addresses are not shown.
The Lung Transplant Foundation likely matchiMatched by exact name and state (and ZIP where shown). State registers do not publish EINs, so this is not a confirmed match. Source: Colorado Secretary of State (CDOS), business entities (data.colorado.gov 4ykn-tg5h). Licence: public domain. Data last fetched 18 October 2026.
State
Colorado
Entity type
nonprofit corporation
Status
Good Standing
Formed
24 August 2026
Registered agent
Colorado Registered Agents Inc (city and state not held)

This register does not publish officers or directors.