Rocky Mountain Rett Association
Donations deductibleRevenue
$367k
year to 31 December 2024
Expenses
$183k
year to 31 December 2024
Total assets
$808k
$23k liabilities
Net assets
$784k
assets less liabilities
Directors and trustees
16
5.4y av
Staff
0
employees, year to 31 December 2024
Left since last filing
0
no seats appear to have opened
Voting members
16
reported in Part VI
Rocky Mountain Rett Association's network
16 people1 organisationi16 people and 1 organisation on this map.The large node is the subject of this page. Solid lines are what the register itself records (16). Violet dotted lines (1) are likely: the same full name sits on the current board of another organisation in the same register and region. Form 990 filings give names without a person identifier; SEC insider filings carry a CIK. It may be a different person.The board
16 listediTime on the board is observed from the annual filings: the IRS files no appointment date, so the bar counts years from the first filing the person appears on - a lower bound, not a filed start date. Names are exactly as filed. The IRS publishes no person identifier, so this edition does not yet link a person across organisations in the tables. The network map shows same-name matches as likely links only, never as confirmed.Tenure and departures are observed across annual filings. Observed tenure is a lower bound - a member may have joined before the first year on record. The organisation reported 16 voting members of its governing body on its latest Form 990 Part VI, which matches the board listed here.| Name | Role as filed | Since | On the board |
|---|---|---|---|
| Abby Boyer | Director | 2023 | 3 yrs |
| Dave Shaw | Director | 2019 | 7 yrs |
| Heidi Hedges Greenall | Company secretary | 2022 | 4 yrs |
| Herndon Luce | Director | 2022 | 4 yrs |
| Jeff Galloway | Director | 2019 | 7 yrs |
| Jessica Roschen | Director | 2023 | 3 yrs |
| Jim Schroath | President | 2019 | 7 yrs |
| Justin Allen | Vice President | 2018 | 8 yrs |
| Karin Streifel | Director | 2023 | 3 yrs |
| Richard Hill | Director | 2018 | 8 yrs |
| Sarah Alhstrom | Director | 2022 | 4 yrs |
| Sarah Morrison | Director | 2022 | 4 yrs |
| Sierra Gilbride | Treasurer | 2022 | 4 yrs |
| Timothy Benke (also filed as TIM Benke) | Director | 2018 | 8 yrs |
| Tristen Dinkel | Director | 2023 | 3 yrs |
| Ursula Webhofer | Director | 2023 | 3 yrs |
Pay and hours
year to 31 December 2024iFrom Part VII of the Form 990: compensation reported for each officer, director, trustee, key employee and highest-paid staff member, and the average hours a week they report. Most board members are unpaid; a blank means nothing was reported. Pay from related organisations is shown separately.| Name | Title as filed | Hours a week | Pay from the organisation | Related organisations | Other |
|---|---|---|---|---|---|
| Justin Allen | Vice President | 1 | $0 | ||
| Richard Hill | Director | 1 | $0 | ||
| Dave Shaw | Director | 8 | $0 | ||
| Heidi Hedges Greenall | Secretary | 3 | $0 | ||
| Jim Schroath | President | 3 | $0 | ||
| Sarah Morrison | Director | 1 | $0 | ||
| Sarah Alhstrom | Director | 2 | $0 | ||
| Karin Streifel | Director | 1 | $0 | ||
| Abby Boyer | Director | 1 | $0 | ||
| Timothy Benke | Director | 1 | $0 | ||
| Tristen Dinkel | Director | 1 | $0 | ||
| Ursula Webhofer | Director | 3 | $0 | ||
| Jessica Roschen | Director | 3 | $0 |
No pay was reported for anyone in Part VII on this return.
Colorado roster
11 listediOfficers, directors and trustees from the latest filing with the Colorado Secretary of State (document 20253038156). Titles are as filed; some entries are registered agents or custodians of records rather than board members. Source: data.colorado.gov, public domain.| Name | Title as filed |
|---|---|
| Schroath Jim | |
| Jim Schroath | President |
| Shaw Dave | Board Member |
| Sarah Morrison | Board Member |
| Justin Allen | Vice President |
| Richard Hill | Board Member |
| Schroath Jim | President |
| Heidi Hedges | Secretary |
| Sarah Allstrom | Board Member |
| Boyer Abigail | Board Member |
| Tim Benke | Board Member |
About
- Legal name
- Rocky Mountain Rett Association
- EIN
- 264698552
- Address
- Po Box 1294, Morrison, CO, 80465-5294
- State
- Colorado
- Mission
- Rmra is organized for the primary purpose of funding research for the development of treatments and cures for rett syndrome and related mecp2 disorders. We also promote other related activites that provide support and advocacy to area families. (as filed on the Form 990)
- Activity (NTEE)
- G80 Voluntary health associations and medical disciplines
- IRS classification
- 501(c)03 (tax-exempt under section 501(c)(3) where shown)
- Classified purpose
- Voluntary Health Associations & Medical Disciplines
- Size band
- 5 (IRS master file code)
- Formed
- 2009
- Principal officer
- Jim Schroath (as named on the Form 990)
- IRS ruling date
- 1 June 2009
- Status
- Code 01 (unconditional exemption)
- Form 990 filings on record
- 5, latest 2023
- IRS Publication 78
- PC (contributions deductible)
Most connected
Longest observed on the filings
≥8years on the filingsJustin Allen
≥8years on the filingsRichard Hill
≥8years on the filingsTimothy Benke
≥7years on the filingsDave Shaw
Latest return
year to 31 December 2024iFigures from the newest Form 990 or 990-EZ in the IRS e-file releases of 2025 and 2026, for the year ending 31 December 2024. US dollars, as filed.- Total assets
- $808k
- Total liabilities
- $23k
- Net assets or fund balances
- $784k
- Contributions and grants received
- $735k
- Program service revenue
- $0
- Grants and similar paid out
- $60k
- Employees
- 0
Grants paid
1 listediFrom Schedule I of the Form 990: grants and assistance to organisations in the United States, largest first (up to 25). Schedule I is filed only by organisations that gave more than $5,000 to any one recipient.| Recipient | Purpose | Amount |
|---|---|---|
| Children's Hospital of Colorado | To address the needs of families and to facilitate treatment and research | $0 |
State registration
1 entityiBusiness-entity registers published by US states. These records are matched to this organisation by name and state, not by EIN, and are labelled as likely matches. Street addresses are not shown.Rocky Mountain Rett Association likely matchiMatched by exact name and state (and ZIP where shown). State registers do not publish EINs, so this is not a confirmed match. Source: Colorado Secretary of State (CDOS), business entities (data.colorado.gov 4ykn-tg5h). Licence: public domain. Data last fetched 18 October 2026.
- State
- Colorado
- Entity type
- nonprofit corporation
- Status
- Good Standing
- Formed
- 18 April 2009
- Registered agent
- Carolyn Sue Shaw (city and state not held)
This register does not publish officers or directors.