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Governance Register
US nonprofit · EIN 270179192 · Orange, CAiSource and licenceOrganisation record IRS Exempt Organizations Business Master File (EIN 270179192) - NTEE activity code, address.Board and officers IRS Form 990 annual filings, Part VII (directors, trustees, officers, key employees), read year by year to observe time served.Latest return IRS Form 990 series e-file data - 990 for the year to 30 September 2025: assets, liabilities, staff, website, telephone, pay, grants paid (Schedule I).Finances by year IRS Form 990 e-file data - total revenue and total expenses by tax year.Renewal outlook Computed by Governance Register from the observed filing history and filed revenue. Not a statement that the organisation is recruiting.Deductibility IRS Publication 78 data (code PC), downloaded 18 October 2026.Licence US Federal Government public domain.How we handle data

Center for Comprehensive Care and Diagnosis of Inherited Blood's network

6 people5 organisationsi6 people and 5 organisations on this map.The large node is the subject of this page. Solid lines are what the register itself records (6). Violet dotted lines (5) are likely: the same full name sits on the current board of another organisation in the same register and region. Form 990 filings give names without a person identifier; SEC insider filings carry a CIK. It may be a different person.

The board

6 listediTime on the board is observed from the annual filings: the IRS files no appointment date, so the bar counts years from the first filing the person appears on - a lower bound, not a filed start date. Names are exactly as filed. The IRS publishes no person identifier, so this edition does not yet link a person across organisations in the tables. The network map shows same-name matches as likely links only, never as confirmed.Time served and departures are observed across annual filings. Observed time served is a lower bound - a member may have joined before the first year on record. The organisation reported 6 voting members of its governing body on its latest Form 990 Part VI, which matches the board listed here.
NameRole as filedSinceOn the board
Diane J Nugent MD ChairPresident/Chairperson2018
8 yrs
Amit Soni MD (also filed as Amit Soni)Vice President2018
8 yrs
Bertil Glader MD PHDDirector2018
8 yrs
Katie BirschbachCompany secretary2024
2 yrs
Mary BrownDirector2018
8 yrs
Randall CurtisDirector2018
8 yrs
Under 5 years5 to 6 years6 years or more

Officers and senior leadership

18 listediNamed in Part VII as officers, key employees or highest-compensated staff - not board members, shown for completeness.
NameTitle as filedOn the filings
Ateefa ChaudhuryPhysician2019
Barry StatonChief Executive Officer & Treasurersince 2020
Cheryl BateDirector of Finance/Controsince 2018
Esteban GomezPhysiciansince 2023
Grace HernandezPhysical Therapist2018
Jason ZamoraDirector of Pharmacysince 2018
Jeralyn TuckerClinic Managersince 2018
Judith BakerPublic Health Policy Director2023
Matthew CianciulliDirector of Clinicsince 2018
Michael WardenChief Financial Officersince 2020
Nina HwangPhysiciansince 2018
Phillip ChungPharmacy Manager2019
Robin TappeyHuman Resources Directorsince 2022
Samantha ChanPharmacy Managersince 2020
Shalini VoraGrants Directorsince 2021
Spencer DunnBusiness Development2021
Tania ZreikPharmacist2022
Vanessa Salinas LunaPhysiciansince 2019

Pay and hours

year to 30 September 2025iFrom Part VII of the Form 990: compensation reported for each officer, director, trustee, key employee and highest-paid staff member, and the average hours a week they report. Most board members are unpaid; a blank means nothing was reported. Pay from related organisations is shown separately.
NameTitle as filedHours a weekPay from the organisationRelated organisationsOther
Barry StatonChief Executive Officer & Treasurer40$406k$52k
Esteban GomezPhysician32$311k$24k
Michael WardenChief Financial Officer40$271k$41k
Nina HwangPhysician32$233k$30k
Vanessa Salinas LunaPhysician40$221k$29k
Robin TappeyHuman Resources Director40$209k$22k
Matthew CianciulliDirector of Clinic40$204k$21k
Samantha ChanPharmacy Manager40$200k$20k
Shalini VoraGrants Director40$188k$19k
Jeralyn TuckerClinic Manager40$168k$26k
Amit Soni MDVice President5$0
Diane J Nugent MDPresident/Chairperson5$0
Katie BirschbachSecretary1$0
Derek RobertsonDirector1$0
Mary BrownDirector0.5$0
Michael TarantinoDirector1$0
Michele WarnerDirector1$0
Randall CurtisDirector1$0
Troy AbercrombieDirector1$0

About

Legal name
Center for Comprehensive Care and Diagnosis of Inherited Blood
EIN
270179192
Address
701 S Parker St Ste 1200, Orange, CA, 92868-4727
State
California
Mission
To improve health and longevity and lower costs of care; by providing education, support, and services to deliver comprehensive care for patients and their families with rare, chronic inherited blood disorders. (as filed on the Form 990)
Activity (NTEE)
E24 Health care
IRS classification
501(c)03 (tax-exempt under section 501(c)(3) where shown)
Classified purpose
Health Care
Size band
9 (IRS master file code)
Formed
2009
IRS ruling date
1 February 2010
Status
Code 01 (unconditional exemption)
Form 990 filings on record
7, latest 2024
IRS Publication 78
PC (contributions deductible)

Most connected

Longest observed on the filings

≥8years on the filingsDiane J Nugent MD
≥8years on the filingsAmit Soni MD
≥8years on the filingsBertil Glader MD PHD
≥8years on the filingsMary Brown

Latest return

year to 30 September 2025iFigures from the newest Form 990 or 990-EZ in the IRS e-file releases of 2025 and 2026, for the year ending 30 September 2025. US dollars, as filed.
Total assets
$85m
Total liabilities
$19.8m
Net assets or fund balances
$65.2m
Contributions and grants received
$2.2m
Program service revenue
$6.4m
Grants and similar paid out
$4.8m
Employees
68
Volunteers
9

Filed finances

1 yeariTotals as filed on the IRS Form 990 (revenue and expenses), by tax year.
Tax yearTotal revenueTotal expensesSurplus or deficit
2023$23.3m$16.9m$6.4m

As filed on the IRS Form 990. US dollars.

Grants paid

24 listediFrom Schedule I of the Form 990: grants and assistance to organisations in the United States, largest first (up to 25). Schedule I is filed only by organisations that gave more than $5,000 to any one recipient.
RecipientPurposeAmount
Sickle Cell Disease Foundation of CaliforniaSubcontract hrsa & cdph grants sickle cell treatment demonstration program$1.7m
The Regents of the University of California (Davis)Subcontract hrsa & cdph grants sickle cell treatment demonstration program$515k
The Regents of the University of California (Ucsf)Subcontract hrsa & cdph grants sickle cell treatment demonstration program$440k
Ucsf Benioff Children's Hospitals FoundationSubcontract hrsa grant sickle cell treatment demonstration program$351k
The Regents of the University of California (Ucsd)Subcontract hrsa & cdph grants sickle cell treatment demonstration program$229k
Lundquist Institute for Biomedical Innovation at Harbor-UCLA MedicalSubcontract cdph grant sickle cell treatment demonstration program$171k
The Regents of the University of California (UCLA)Subcontract cdph grant sickle cell treatment demonstration program$161k
Arrowhead Regional Medical CenterSubcontract cdph grant sickle cell treatment demonstration program$155k
Hemostasis and Thrombosis Center of NVSubcontract hrsa grant hemophilia regional comprehensive care program$116k
Kern Medical Center FoundationSubcontract cdph grant sickle cell treatment demonstration program$114k
Valley Children's Hospital of Central CaliforniaSubcontract hrsa grant hemophilia regional comprehensive care program$111k
Loma Linda University Health CareSubcontract cdph grant sickle cell treatment demonstration program$109k
Lucile Packard Children's Hospital at StanfordSubcontract hrsa grant hemophilia regional comprehensive care program$108k
Seattle Children's HospitalSubcontract hrsa grant sickle cell treatment demonstration program$88k
Children's Hospital Los AngelesSubcontract hrsa grant hemophilia regional comprehensive care program$85k
Los Angeles Orthopaedic HospitalSubcontract hrsa grant hemophilia regional comprehensive care program$61k
Rady Children's Hospital - San DiegoSubcontract cdc/athn grant public health surveillance$61k
Phoenix Children's HospitalSubcontract hrsa grant sickle cell treatment demonstration program$58k
University of ColoradoSubcontract hrsa grant sickle cell treatment demonstration program$55k
Ihc Health Services IncSubcontract hrsa grant sickle cell treatment demonstration program$47k
The University of ArizonaSubcontract hrsa grant sickle cell treatment demonstration program$36k
Kapi'olani Medical Center for Women and ChildrenSubcontract hrsa grant hemophilia regional comprehensive care program$31k
Oregon Health and Science UniversitySubcontract hrsa grant sickle cell treatment demonstration program$28k
John Hopkins UniversitySubcontract hrsa grant sickle cell treatment demonstration program$5k