Cystinosis Research Foundation
Donations deductibleCystinosis Research Foundation's network
17 people1 organisationi17 people and 1 organisation on this map.The large node is the subject of this page. Solid lines are what the register itself records (17). Violet dotted lines (1) are likely: the same full name sits on the current board of another organisation in the same register and region. Form 990 filings give names without a person identifier; SEC insider filings carry a CIK. It may be a different person.The board
17 listediTime on the board is observed from the annual filings: the IRS files no appointment date, so the bar counts years from the first filing the person appears on - a lower bound, not a filed start date. Names are exactly as filed. The IRS publishes no person identifier, so this edition does not yet link a person across organisations in the tables. The network map shows same-name matches as likely links only, never as confirmed.Tenure and departures are observed across annual filings. Observed tenure is a lower bound - a member may have joined before the first year on record. The organisation reported 17 voting members of its governing body on its latest Form 990 Part VI, which matches the board listed here.| Name | Role as filed | Since | On the board |
|---|---|---|---|
| Nancy J Stack Chair (also filed as Nancy Stack) | Chair - Trustee | 2018 | 8 yrs |
| Angela Kirchoff | Trustee | 2023 | 3 yrs |
| Barbara Kulyk | Trustee | 2020 | 6 yrs |
| Brian Sturgis | Trustee | 2018 | 8 yrs |
| Bruce Crair | Trustee | 2018 | 8 yrs |
| Clay Emerson PHD PE CFM | Trustee | 2023 | 3 yrs |
| David W Mossman | Trustee | 2018 | 8 yrs |
| Denice Flerchinger | Trustee | 2018 | 8 yrs |
| Donald L Solsby | Treasurer - Tte | 2018 | 8 yrs |
| Geoffrey Stack | Vice Chair-Ttee | 2018 | 8 yrs |
| Jill Emerson CPA | Trustee | 2019 | 7 yrs |
| Kevin Partington | Trustee | 2018 | 8 yrs |
| Kristen Murray | Trustee | 2023 | 3 yrs |
| Marcu Alexander | Trustee | 2018 | 8 yrs |
| Stephanie Cherqui PHD (also filed as Stephanie Cherqui) | Trustee | 2018 | 8 yrs |
| Stephen L Jenkins MD (also filed as Stephen L Jenkins) | Trustee | 2018 | 8 yrs |
| Teresa Partington | Trustee | 2018 | 8 yrs |
Pay and hours
year to 30 June 2025iFrom Part VII of the Form 990: compensation reported for each officer, director, trustee, key employee and highest-paid staff member, and the average hours a week they report. Most board members are unpaid; a blank means nothing was reported. Pay from related organisations is shown separately.| Name | Title as filed | Hours a week | Pay from the organisation | Related organisations | Other |
|---|---|---|---|---|---|
| Nancy J Stack | Chair - Trustee | 40 | $0 | ||
| Geoffrey Stack | Vice Chair-Ttee | 0 | $0 | ||
| Donald L Solsby | Treasurer - Tte | 2 | $0 | ||
| Marcu Alexander | Trustee | 0 | $0 | ||
| Stephanie Cherqui PhD | Trustee | 0 | $0 | ||
| Bruce Crair | Trustee | 0 | $0 | ||
| Jill Emerson CPA | Trustee | 0 | $0 | ||
| Denice Flerchinger | Trustee | 0 | $0 | ||
| Clay Emerson PhD Pe CFM | Trustee | 0 | $0 | ||
| Angela Kirchoff | Trustee | 0 | $0 | ||
| Stephen L Jenkins | Trustee | 0 | $0 | ||
| David W Mossman | Trustee | 0 | $0 | ||
| Kevin Partington | Trustee | 0 | $0 | ||
| Teresa Partington | Trustee | 0 | $0 | ||
| Kristen Murray | Trustee | 0 | $0 | ||
| Brian Sturgis | Trustee | 0 | $0 | ||
| Barbara Kulyk | Trustee | 0 | $0 |
No pay was reported for anyone in Part VII on this return.
About
- Legal name
- Cystinosis Research Foundation
- EIN
- 320067668
- Address
- 19200 von Karman Ave Ste 920, Irvine, CA, 92612-8525
- State
- California
- Mission
- CRF is committed to finding a cure through an aggressively funded research agenda. CRF awards research grants bi-annually to accelerate the research process and to ensure that there is never a gap in funding new, cutting-edge research projects. CRF is dedicated to improving the quality of life for cystinosis patients and to finding better treatments, including a cure, for our adults and... (as filed on the Form 990)
- Activity (NTEE)
- H80 Medical research
- IRS classification
- 501(c)03 (tax-exempt under section 501(c)(3) where shown)
- Classified purpose
- Medical Research
- Size band
- 8 (IRS master file code)
- Formed
- 2003
- IRS ruling date
- 1 July 2003
- Status
- Code 01 (unconditional exemption)
- Form 990 filings on record
- 8, latest 2025
- IRS Publication 78
- PC (contributions deductible)
Most connected
Longest observed on the filings
≥8years on the filingsNancy J Stack
≥8years on the filingsBrian Sturgis
≥8years on the filingsBruce Crair
≥8years on the filingsDavid W Mossman
Latest return
year to 30 June 2025iFigures from the newest Form 990 or 990-EZ in the IRS e-file releases of 2025 and 2026, for the year ending 30 June 2025. US dollars, as filed.- Total assets
- $10m
- Total liabilities
- $2.5m
- Net assets or fund balances
- $7.5m
- Contributions and grants received
- $2.4m
- Program service revenue
- $0
- Grants and similar paid out
- $2.2m
- Employees
- 1
- Volunteers
- 5
Grants paid
7 listediFrom Schedule I of the Form 990: grants and assistance to organisations in the United States, largest first (up to 25). Schedule I is filed only by organisations that gave more than $5,000 to any one recipient.| Recipient | Purpose | Amount |
|---|---|---|
| Massachusetts General Hospita | Medical research | $466k |
| The Scripps Institute | Medical research | $450k |
| University of California Sd | Medical research | $263k |
| Stanford University | Medical research | $245k |
| Harvard University Cambridge | Medical research | $150k |
| Univ of Ca-Irvine | Medical research | $118k |
| Harvard Medical School | Medical research | $75k |