National Organization of Disorders of the Corpus Callosum
Donations deductibleRevenue
$434k
year to 31 December 2024
Expenses
$437k
year to 31 December 2024
Total assets
$512k
$0 liabilities
Net assets
$512k
assets less liabilities
Directors and trustees
17
5.4 years on average
Staff
0
30 volunteers
Left since last filing
0
no seats appear to have opened
Officers and senior staff
5
named in Part VII
National Organization of Disorders of the Corpus Callosum's network
17 people5 organisationsi17 people and 5 organisations on this map.The large node is the subject of this page. Solid lines are what the register itself records (17). Violet dotted lines (5) are likely: the same full name sits on the current board of another organisation in the same register and region. Form 990 filings give names without a person identifier; SEC insider filings carry a CIK. It may be a different person.The board
17 listediTime on the board is observed from the annual filings: the IRS files no appointment date, so the bar counts years from the first filing the person appears on - a lower bound, not a filed start date. Names are exactly as filed. The IRS publishes no person identifier, so this edition does not yet link a person across organisations in the tables. The network map shows same-name matches as likely links only, never as confirmed.Time served and departures are observed across annual filings. Observed time served is a lower bound - a member may have joined before the first year on record. The organisation reported 17 voting members of its governing body on its latest Form 990 Part VI, which matches the board listed here.| Name | Role as filed | Since | On the board |
|---|---|---|---|
| David O'Brien (also filed as Dave O'Brien) | Vice President | 2018 | 8 yrs |
| DAX Norton | Director | 2024 | 2 yrs |
| Deona Kalala | President | 2023 | 3 yrs |
| Elliott Sherr MD PHD (also filed as Elliott Sherr) | Director | 2018 | 8 yrs |
| Heather Bahorich | Director | 2024 | 2 yrs |
| Ilana Davlin | Director | 2024 | 2 yrs |
| Jasmin Turner | Director | 2024 | 2 yrs |
| Jennifer Little | Director | 2023 | 3 yrs |
| Katherine Claxton | Director | 2020 | 6 yrs |
| Kevin Hight | Treasurer | 2019 | 7 yrs |
| KIP Oren | Director | 2018 | 8 yrs |
| Layton Shaffner | Director | 2020 | 6 yrs |
| Leann Schouten | Director | 2022 | 4 yrs |
| Mike Molettiere | Director | 2020 | 6 yrs |
| Natalie ERB | Company secretary | 2020 | 6 yrs |
| Thomas Frey | Director | 2022 | 4 yrs |
| Warren Brown | Director | 2019 | 7 yrs |
Officers and senior leadership
5 listediNamed in Part VII as officers, key employees or highest-compensated staff - not board members, shown for completeness.| Name | Title as filed | On the filings |
|---|---|---|
| Kevin Hight | Vice Preside | since 2018 |
| Kim Manning | Vice Preside | since 2018 |
| Linda Martin | Treasurer | 2018 |
| Lynn Snyder | President | 2018 |
| Natalie ERB | Treasurer | 2021 |
Pay and hours
year to 31 December 2024iFrom Part VII of the Form 990: compensation reported for each officer, director, trustee, key employee and highest-paid staff member, and the average hours a week they report. Most board members are unpaid; a blank means nothing was reported. Pay from related organisations is shown separately.| Name | Title as filed | Hours a week | Pay from the organisation | Related organisations | Other |
|---|---|---|---|---|---|
| Deona Kalala | President | 3 | $0 | ||
| Dave O'brien | Vice President | 3 | $0 | ||
| Natalie Erb | Secretary | 3 | $0 | ||
| Kevin Hight | Treasurer | 3 | $0 | ||
| Heather Bahorich | Director | 1 | $0 | ||
| Warren Brown | Director | 1 | $0 | ||
| Katherine Claxton | Director | 1 | $0 | ||
| Ilana Davlin | Director | 1 | $0 | ||
| Thomas Frey | Director | 1 | $0 | ||
| Jennifer Little | Director | 1 | $0 | ||
| Kip Oren | Director | 1 | $0 | ||
| Dax Norton | Director | 1 | $0 | ||
| Layton Shaffner | Director | 1 | $0 | ||
| Elliott Sherr | Director | 1 | $0 | ||
| Jasmin Turner | Director | 1 | $0 | ||
| Leann Schouten | Director | 1 | $0 | ||
| Mike Molettiere | Director | 1 | $0 |
No pay was reported for anyone in Part VII on this return.
About
- Legal name
- National Organization of Disorders of the Corpus Callosum
- EIN
- 331029337
- Address
- 18032 Lemon Dr Ste C PMB 363, Yorba Linda, CA, 92886-3386
- State
- California
- Mission
- The nodcc has become the leading nonprofit organization for the disorders of the corpus callosum and is dedicated to raising the profile, understanding and acceptance of these disorders through education, networking, advocacy and being a catalyst for research. (as filed on the Form 990)
- Activity (NTEE)
- H48 Medical research
- IRS classification
- 501(c)03 (tax-exempt under section 501(c)(3) where shown)
- Classified purpose
- Medical Research
- Size band
- 5 (IRS master file code)
- Formed
- 2005
- Principal officer
- Deona Kalala (as named on the Form 990)
- IRS ruling date
- 1 August 2003
- Status
- Code 01 (unconditional exemption)
- Form 990 filings on record
- 7, latest 2024
- IRS Publication 78
- PC (contributions deductible)
Most connected
Longest observed on the filings
≥8years on the filingsDavid O'Brien
≥8years on the filingsElliott Sherr MD PHD
≥8years on the filingsKIP Oren
≥7years on the filingsKevin Hight
Latest return
year to 31 December 2024iFigures from the newest Form 990 or 990-EZ in the IRS e-file releases of 2025 and 2026, for the year ending 31 December 2024. US dollars, as filed.- Total assets
- $512k
- Total liabilities
- $0
- Net assets or fund balances
- $512k
- Contributions and grants received
- $126k
- Program service revenue
- $211k
- Employees
- 0
- Volunteers
- 30
Filed finances
1 yeariTotals as filed on the IRS Form 990 (revenue and expenses), by tax year.| Tax year | Total revenue | Total expenses | Surplus or deficit |
|---|---|---|---|
| 2024 | $434k | $437k | Deficit $3k |
As filed on the IRS Form 990. US dollars.