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Governance Register
US nonprofit · EIN 351040153 · Carmel, INiSource and licenceOrganisation record IRS Exempt Organizations Business Master File (EIN 351040153) - NTEE activity code, address.Board and officers IRS Form 990 annual filings, Part VII (directors, trustees, officers, key employees), read year by year to observe time served.Latest return IRS Form 990 series e-file data - 990 for the year to 31 December 2024: assets, liabilities, staff, website, telephone, pay.Finances by year IRS Form 990 e-file data - total revenue and total expenses by tax year.Renewal outlook Computed by Governance Register from the observed filing history and filed revenue. Not a statement that the organisation is recruiting.Deductibility IRS Publication 78 data (code PC), downloaded 18 October 2026.State registers Colorado Secretary of State (17 October 2026).Licence US Federal Government public domain.How we handle data

Muscular Dystrophy Family Foundation Inc's network

10 peoplei10 people on this map.The large node is the subject of this page. Solid lines are what the register itself records (10). Form 990 filings give names without a person identifier; SEC insider filings carry a CIK.

The board

10 listediTime on the board is observed from the annual filings: the IRS files no appointment date, so the bar counts years from the first filing the person appears on - a lower bound, not a filed start date. Names are exactly as filed. The IRS publishes no person identifier, so this edition does not yet link a person across organisations.Time served and departures are observed across annual filings. Observed time served is a lower bound - a member may have joined before the first year on record. The organisation reported 14 voting members of its governing body on its latest Form 990 Part VI; we list 10 in Part VII (Part VII does not always name every voting member).
NameRole as filedSinceOn the board
Barney QuinnDirector2021
5 yrs
Dawn DodsonDirector2024
2 yrs
Edward SatchwillDirector2024
2 yrs
Jeff TraubDirector2023
3 yrs
Jim BadgerDirector2020
6 yrs
Kathy TraubDirector2023
3 yrs
Matt SiglerDirector2024
2 yrs
Mindy CameronDirector2020
6 yrs
Niki LeinbergerDirector2024
2 yrs
Robbin AbneyDirector2023
3 yrs
Under 5 years5 to 6 years6 years or more

Officers and senior leadership

7 listediNamed in Part VII as officers, key employees or highest-compensated staff - not board members, shown for completeness.
NameTitle as filedOn the filings
Andy CowenCompany secretary2020
David ThyenVice Presidentsince 2021
Jacob BuehlerPresident2024
Matt SiglerVice Presidentsince 2020
Omar RosasTreasurersince 2021
PAM FowlerTreasurer2020
TIM DoylePresidentsince 2020

Pay and hours

year to 31 December 2024iFrom Part VII of the Form 990: compensation reported for each officer, director, trustee, key employee and highest-paid staff member, and the average hours a week they report. Most board members are unpaid; a blank means nothing was reported. Pay from related organisations is shown separately.
NameTitle as filedHours a weekPay from the organisationRelated organisationsOther
Jim BadgerDirector1$0
Mindy CameronDirector1$0
Edward SatchwillDirector1$0
Niki LeinbergerDirector1$0
Barney QuinnDirector1$0
Dawn DodsonDirector1$0
Jeff TraubDirector1$0
Kathy TraubDirector1$0
Robbin AbneyDirector1$0
Matt SiglerDirector1$0
Jacob BuehlerPresident5$0
David ThyenVice President1$0
Omar RosasTreasurer1$0

No pay was reported for anyone in Part VII on this return.

Colorado roster

12 listediOfficers, directors and trustees from the latest filing with the Colorado Secretary of State (document 20083000383). Titles are as filed; some entries are registered agents or custodians of records rather than board members. Source: data.colorado.gov, public domain.
NameTitle as filed
Jamie Gross, PhDDirector
Luis Excobar, MDDirector
Sarah Lochner ThompsonDirector
Suzanne Pierson, PhDDirector
Chris HaighDirector
Fred ShirleyCustodian of Financial Records
Derryl PittsPresident
Elizabeth WallaceSecretary
Doug BaileyDirector
Hazel M WalkerExec. Director
Fred ShirleyTreasurer
Judith R. DuncanNon-Voting Member

About

Legal name
Muscular Dystrophy Family Foundation Inc
EIN
351040153
Address
Po Box 776, Carmel, IN, 46082-0776
State
Indiana
Mission
The muscular dystrophy family foundation uses the power of giving to increase the quality of life and independence of people with muscular dystrophy - and empower their families - through advocacy, education, and financial assistance. (as filed on the Form 990)
Activity (NTEE)
G52Z Voluntary health associations and medical disciplines
IRS classification
501(c)03 (tax-exempt under section 501(c)(3) where shown)
Classified purpose
Voluntary Health Associations & Medical Disciplines
Size band
6 (IRS master file code)
Formed
1958
Principal officer
Jacob T Buehler (as named on the Form 990)
IRS ruling date
1 September 1960
Status
Code 01 (unconditional exemption)
Form 990 filings on record
5, latest 2024
IRS Publication 78
PC (contributions deductible)

Most connected

Longest observed on the filings

≥6years on the filingsJim Badger
≥6years on the filingsMindy Cameron
≥5years on the filingsBarney Quinn
≥3years on the filingsJeff Traub

Latest return

year to 31 December 2024iFigures from the newest Form 990 or 990-EZ in the IRS e-file releases of 2025 and 2026, for the year ending 31 December 2024. US dollars, as filed.
Total assets
$1m
Total liabilities
$4k
Net assets or fund balances
$997k
Contributions and grants received
$442k
Program service revenue
$0
Grants and similar paid out
$266k
Employees
5
Volunteers
88

Filed finances

1 yeariTotals as filed on the IRS Form 990 (revenue and expenses), by tax year.
Tax yearTotal revenueTotal expensesSurplus or deficit
2024$635k$442k$193k

As filed on the IRS Form 990. US dollars.